If its not MS what is it????

[JustMyLuck5]

Im new to this forum, I am a 26yr old female that for the past 3 years i've had very strange symptoms, the start was that my feet were very  painful, and felt like a pins were pricking my feet, then my knees began to ache to the point that I didnt want to walk. I went to a doctor and had Bloodwork including Lyme titers and everything was normal. Within a week or two my left arm go completly numb and also cold to the touch. I went to the ER and had CT scans and xray of cervical spine (results normal). was told to go home from the hospital and go to a neurologist when ever I could. I made an apt but couldnt get in right away and went to an internal medicine specialist a few days later. By the time I made it to him, I was very dizzy, and failed the neuro test he gave me, I actually fell over when he asked me to shut my eyes.  That doctor had me do an MRI  and more bloodwork including more lyme tests and others like lupus, it was negative. Both arms at this point have little sensitivity to hot/cold (I could touch a burning pot or clean the snow from my car with my bare hands).  My symptoms also go on to include extreme fatigue, my memory became really poor (I forgot the name of  the drink that was in my hands and I always drink), mood swings, I had a band like feeling around my left arm that lasted for weeks, I also developed a fluttering sensation in my chest and migraines that would literally last for 5 weeks. During this 3 year period has been 19 doctors and several different "trials" of medications, and almost every medication I had an allergic reaction to.  I did have a holter monitor placed for 24hrs that came back as a moderate-severe level of premature ventricular contractions but the cardiologist didnt seem to alarmed by it and said to continue on metoprolol. One month ago I had a spinal tap and it came back negative. The last test was for hemochromatosis since my dad was just diagnosed with it, Also negative. One Doctor told me he suspected I had one of three things, MS, ALS or a cancerous tumor of some sort. The only medication I am on right now is 20mg Adderall for the fatigue.
Whatever I have, It's ruining my life, I have three children that need me. With that, Im asking/begging if anyone has heard of such symptoms and what diseases might be out there that I need to ask my doctor about.

[JustMyLuck5]

So I was thrown for a curve ball. I went back to my Neurologist that had done the lumbar puncture on me. I mentioned to him that I was shocked the LP came back as negative and that I dont have MS. He said that we havent ruled out MS just because my LP was negative, and that he still suspected it. Has anyone else had or heard of a negative LP yet still have MS? I had a MRI without contract of brain only 3 years ago, that was negative too.
Thanks!

[JustMyLuck5]

I haven't tried medications like prednisone, although I had on doctor that mentioned it to see what it would do to my sympoms. So your symptoms still come and go, when the symptoms are present, do you find that they aren't as bad with steriods? Im sorry to hear that your luck with doctors are about as good as mine. My insurance is also fighting me  and my new neurologist by denying me everytime for another MRI . I do have another appointment with him on Wed. Ill let you know the next direction we take!
Good luck to you as well.

[JustMyLuck5]

I really thought I had MS, I fit almost all of the symptoms. But as I do more research, I find my symptoms are a lot like other illnesses. Since my spinal tap and MRI has came back as negative, my doctor has shut the book on that thought.

[Red_Star]

A condition called syringomyelia (a cyst or cavity within the spinal cord) symptoms include a loss of the ability to feel extremes of hot or cold, especially in the hands. An MRI of the spine is needed to pick this condition up. Just to add, vitamin B12 deficiency mimics ALS and MS.

[JAZZY4me]

Do you think you have MS?

[boognell]

I had nearly the same story as you, it's so frustrating. My onset was gradual; one night at work my right arm was so weak that I couldn't perform my job correctly. On my way out of work that night with my friends, I fell down,just all of a sudden.  IT became less gradual and I went on a medical leave for 90 days. Like you, I had the bloodwork, EEGs, heart monitor, MRIs,,the test where they stick needles all over the backs of your legs and the back in generak...it's very painful. I was recommended to a neurologist who was supposed to be stellar. He promised me he would solve this. Well, 2 months later I was in the ER of his hospital, and he sent 2 interns to assess me. They had put a Foley catheter in and it filled up immediately. I didn't even feel that I had to go to the bathroom! Then, they kept trying to get me to stand up, which was impossible. After my 2nd or third fall to the floor, they began discussing that maybe it was psychological. At that point, my husband intervened. He was very angry and they discharged me immediately. I never heard from the fabulous neurologist again. After another 6 weeks of this (in the am I could walk and it was normal, but by noon the symptoms would start and increase as the day went on. Finally, my husband (he is an RN) said to me, "I am going to give you a big dose of prednisone" (which I had for my asthma.). I took roughly 70 mg. and the next day was like a miracle, no symptoms ever showed up, I could walk, do dishes, wash clothes! The doctors knew that I was doind this but none of them wanted to take responsibility. It still happens sometimes, usually when I'm not taking care of myself and haven't got proper sleep.  I know I didn't answer your question, I am sorry! I was never diagnosed. Every test was negative. So I really empathize with you, especially with 3 children! Good luck and God bless you. Keep me posted.

[bambi60]

did you look into the correlation with your weight?
did you look into your diet?
do you eat organic, no gluten, no Splenda, no preservatives....are you exposed to some constant toxins in your environment?
i recommend to go that route. you have nothing to loose.