End of March - 40 yrs. old; Dx'd Mono as well as UTI, flank and low back pain, fatigue, loss of appetite, nausea, depression, weight 129 then 118 two or three wks later; brain fog like I was in my own bubble; memory problems; dark circles under eyes; feeling full all the time even when not eating; chills mostly at night & fatigue; shaky legs; left sided chest pain under ribs; hair loss. UTI treated with CIPRO, fully recovered. Two family members had recovered fully from mono, not me.
April -- start of GERD - never had before & no heartburn, appetite still decreased; burning pain behind left scapula w/arm weakness; Prevacid 2 X day, one before breakfast, one before dinner; started to feel funny while at comp & wanted to roll my head to the side, let it pass because it felt like an adrenaline rush, then felt very relaxed & wanted to relax my head. Stood up from the computer to try to "shake it off," and when stepping foot seemed liked I picked it up too high & floor was far away. Second time more pronounced. Acute burning sensation in stomach, adrenaline rush, relaxation, then feeling of fear, and temp muscle weakness.
May - Appetite a bit better, then gout or pseudogout w/heat begins in right big toe & footpad; continues off and on. Gout, GERD, fatigue, dark circles under eyes seem to occur together. Gout worsens when active. Few petechiae on my upper arms & multiple cherry angiomas appear.
June - Appetite still a bit better; Cravings for chips & salsa, other than that no food appeals to me but salty & even that rarely appeals to me, still ate what I could, gained 5 lbs.
July - GERD worsens; ER visit because I think it's possibly a heart attack. Serious chest pain radiating down back of left arm, BP higher than normal as well as heartbeat. Given a GERD "cocktail," pain resolved shortly thereafter. Tests and x-rays negative. Home w/a GERD diganoses. Cocktail left throat numb & feeling as if lump there for about a week; acute arthritis begins in fingers & toes w/paresthesias, fatigue worsens again; waking up with fingers curled into a ball; bilateral hip pain, as if glued in place, hurts to lay on either hip; after some time requested Medrol due to pain because doctors offered no diagnosis or help. Ibuprofen was no longer cutting it. GERD medication not resolving the issue. Have tried Prevacid, Protonix, Aciphex, Omeprazole and OTCs. Prevacid worked best but still doesn't resolve. Mild dizziness off & on, cleared up in a week or two.
Endoscopy performed without biopsy (grrrr, should have biopsied) -- normal. Not even signs of GERD. GERD still suspected by general. Prevacid continued.
August - dark circles almost daily; more cherry angiomas appearing -- over 50 in a two-month period; BP is getting slightly lower each time they take it 114/74 my usual norm for 10 years is now down to 100 over 60. Odd to me, but not to the doctors. Doctors disregard cherry angiomas. Low back pain off & on throughout whole ordeal but has lessened; Medrol helped arthritis & gout pain subside for about a month and a half. Shortly after, hands & feet got extremely cold especially when exposed to cold. I am also feeling cold more often. Thyroid peroxidase antibodies are mildly high on blood tests ordered by neurologist. His diagnosis after EMG studies was bilateral progressive carpal tunnel which do not currently need repairing. I have lived w/it for years so fine w/me as well. Brought the TP antiobodies to general's attention and he said, retest in 6 months. Frustrated because I have to wait 6 months to maybe find out what is wrong. Right big toe area swells intermittently, hurts to walk on and is heating up again. Doctor says fluid aspiration will do no good, probably gouty arthritis.
Late August - Every test so far other than mono & TP antibodies are normal, including TSH & T4. Mono retested shows a miniscule drop in titers so told I have a flare up. GERD & arm pain w/ weakness continues. Injured that shoulder years ago. Possibly it's being exacerbated by mono? Weeding the yard and every time I stood up, felt like I was going to pass out. Occurring more frequently. Cold a lot especially hands and feet. If I don't wear socks in bed my feet get so cold even under the down comforter & blanket on top of that they wake me up & I have to put socks on; restless leg syndrome off & on most often when sitting & required me to get up. The more tired I was the worse the RLS. Bowels slower but not horrible or painful. Things still moving through.
Neurologist in August had ordered an MRI of the brain & thoracic spine to check for possible MS or other disorders. I also followed up on a CT scan of the abdomen which the ER doctor said he would order if I wanted. I took him up on it. Everything normal but for three hemangiomas on the liver, one near the gall bladder fossa. CBCs with diff, H-Pylori, ESRs, Rh Factor, ANA -- etc. were run a few times over the course of this illness. All normal until the TP Antibodies. Colonoscopy performed two years ago was normal.
Gave up on two generals and went to a doctor recommended to me. Took all my medical records. He spent about an hour going over my reports and asking questions (this is a general physician) and asked me, "Hasn't anyone ever taken your Iron?" I said, nope. He ordered some more blood tests which showed, Iron deficiency anemia by checking Ferritin levels and a severe Vitamin D deficiency. Explains a lot. Not only was I anemic but I had almost used up all my backup iron stores. Vitamin D levels were 11.8.
Why are these tests overlooked in medicine? A simple search of Vitamin D and Ferritin on the web will show that these two deficiencies cover almost every symptom I have, including causing the "GERD" like problems. Perhaps it actually is GERD but can't be resolved because of the deficiencies. I am now on 2,000 units of Vitamin D & one Chromagen pill every day.
I have a test coming this week to see if GERD is actually gastroparesis. It makes more sense to me than the GERD. I am hoping as I raise the levels of vitamins and iron that this GERD issue resolves as well. I am pale in comparison to family members but until someone finally told me I was anemic I really didn't notice because it was so gradual and you start to think you are crazy anyway because I'm pretty sure those two generals did.
Anyone experienced this with mono?
Is it possible I got mono because I was already deficient and it just didn't get that bad until the mono kicked in? Is it possible that the deficiency caused the GERD since it seemed acute or more possible that I had silent GERD that worsened with these issues?
Without yet knowing the exact cause of the iron deficiency, and I'm not thinking it's malnutrition, what other conditions can cause these deficiences other than colon cancer and malnutrition?
Is it possible that for that short of a time I could have become so malnutritioned that it would bring these deficieincies on that quick?
Is it possible that if this were not actually GERD that the medicine given for GERD could have caused the vitamin deficiencies because the acid that I needed for digestion was non-existent?
Has anyone with Hashimoto's thyroiditis experienced these types of issues?
I am 5'3" and now 126 pounds so I'm definitely not anorexic nor overweight. How easy is it really to become malnutritioned if you do happen to eat meats and will eat pretty much anything but just had to cut back for those few short months?
In light of the anemia, should I be more concerned about those liver hemangiomas?
Sorry the post is so long but any stories or advice or thoughts are appreciated.