Bad feelings I have:-
-
MAIN ISSUE: head/neck pain on/off all day, everyday. Mostly not
debilitating pain but constant discomfort adding stress to my life.
WHEN: Wake up feel pain and/or pressure in head. This subsides a bit
after I’ve fully woken up then I will get pain later in the day. When I
am fully distracted the pain is either not noticed or gone. Other times I
find the pain distracts me from anything else I am doing. Go to bed, get
bothered by feelings of discomfort in head.
TYPE OF PAIN: Often feel discomfort in neck. Behind eyes. Pressure sides
of head. Pain crown of head. Pain is not always in the same place, nor
consistent. I recognise familiar places where I get it but it’s basically all
over my head.
SICK: Occasionally leads to feelings of ‘sickness’ where I am unwilling
to eat. This mostly has subsided (when I got my first attack I couldn’t
eat properly for a very long time) but keep getting tiny moments of
queasiness. Never been sick from it, just feel unable to eat or burning sick
feeling in throat/chest area.
DIZZY: Sometimes dizziness when I stand up/change position suddenly.
Frightening.
UNBALANCED: Sometimes unbalanced feeling when I am walking etc.
and/ or hard to focus properly.
LOO: If I have a moment of feeling very bad/sick/disorientated with my
head this can lead to me having to go the loo and be loose. After that I
usually feel a little better but not great.
Feelings of discomfort worsen when I am feeling stressed but this in itself
leads to stress.
COLD: I get cold way quicker than before. I’ve had problems with feeling
cold since winter last year (first attack happened in July where I also got
hot/cold and was shaking for over an hour uncontrollably). Once my body
gets that cold I end up shaking and taking a long time to warm up (say I
put heater on etc.) I would say I tend to get cold usually when it is cold in
the surrounding area. It takes me a while to notice and once I do not much
I can do about it but I don’t seem to be able to retain body heat properly
the way I used to.
WEAK: Can feel quite weak/feeble because of these sensations. I got
very run down and had really bad type of flu for which I was prescribed
antibiotics in February time. Although I think things have improved
on that level there was a time when it was hard for me to walk into uni
(because of above sensations and also feeling weak).
YAWN: When I first got it I couldn’t stop yawning and was trying to pop
my ears all the time even though this didn’t make me feel any better. The
yawning if anything made my jaw ache and feel worse. This has pretty
much stopped.
OVERTIRED: I sometimes get this overtired feeling even if I shouldn’t feel
-
-
-
-
-
-
-
-
-
-
-
overtired where I can’t think anymore and I need to go to bed to sleep it
off or feel all crazy. Getting up early often makes me feel sick/overtired
even if I get enough sleep, although more sleep does help. This means I
struggle to go out late anymore! These feelings are really limiting what I
can do on a daily basis.
-
-
NO HELP: Although for periods I can feel almost normal the threat of it
being something serious that no one cares to do anything about is really
getting to me.
-
-
I keep coming to ask for help and no one seems that bothered. First I got
told it was just a stomach bug, nothing to worry about, no medication.
Given that I avoid the doctors at all costs unless feeling really poorly, and
I’ve barely ever been sick this is the first time I’ve really asked for help
and got shafted.
Then I got told I was pregnant when I came back desperate a week later,
after retching emptily into a toilet before I was meant to drive south to
leave for Holland. As a consequence I was forced to wait whilst feeling
incredibly sick for my period, as well as being advised to try not eating in
case it was still a stomach bug, which made me able to eat even less when
I realised this was making things worse, not better. The doctor said I was
ok to Holland, so I did as don’t have the money to waste.
Got to Holland with bf on train after 12-24 hours of no food as still feeling
sick and following advice to try and ‘starve out the bug’ thus extremely
weak and almost delirious in hindsight it was a really bad idea. Why did
I go feeling so bad? He seemed to be the only one who cared, no one here
wanted to help me (my dad and his new wife decided I was definitely
pregnant and needed to get an abortion, no help whatsoever and totally
premature with conclusions) and I needed the support.
I was in Holland like that for about a week feeling like death dragged up
until I finally went to the doctor in Holland out of sheer desperation.
Got given antibiotics against chest infection there because at that point
in my symptoms I was coughing up green slime and stuff as well and
feeling sick… these gave me really bad sunburn on my nose and not sure it
helped any.
Went back to England as had to go back to uni, but still feeling really
unwell so went to Cripps. Then got told it was probably all stress related
stuff in my head by first doctor in Notts who gave me vertigo pills as
another option because of my unblanced feelings. Unsure whether this
helped as some of those feelings have subsided to an extent.
Finally got given nasal spray as the next doctor thought it was blocked ear
thing, again because of dizziness etc. really affecting me.
Also unsure if this had any effect as shortly before finishing the 1 month
time slot of the spray I went down with worst flu ever where I was
struggling to breathe, went for emergency trip to Cripps, saw someone
else. Got given antibiotics for that and told not to take nasal spray while ill
with that, not been back since as I improved a little, have been really busy
with work and all of this is costing me money but no answers have been
found. I feel really disheartened to turn up all the time and have to keep
waiting for something that probably won’t even work.
I feel like any improvements have come from me and not the medication,
but I’m still not right. I do feel better than I did but I still can have really
bad moments, which are incredibly frightening. I am also scared of having
another ‘attack’ and relapse into things being as bad as they were as I still
don’t know what caused it. I don’t know if some of it is caused by stress.
The only causal factor I can think of is how stressed I got about my bf’s
eye operation about 2 weeks before I went down with this. At the time I
had no stress and I don’t believe I did anything to myself that would have
made me ill. Since I had that attack I’ve not been right since.
I just want the pain to go away and to be able to lead a normal life without
fear.
I’ve given up telling people I feel bad because they just don’t want to hear
it and think I’m making it up.