Hi I have a son how has 3 brain tumors but that doctors don't know what they are. Hamartoma, glioma -(possible neurofibromatosis which he only has the optic nerve glioma to back up this one nothing else), and sarcoidosis are what they are saying thay are considering he also differenlty has precocious puberty associated with hypothalamic region lesion. The thing that is confusing the docters is Jake has nothing wrong with him no headachs no vomiting, nothing so the doctors are confused and can't tell us what it is or what to do but we'll just wait and see do more MRIs in 6 months and for me I feel they are not doing enough.
I do have one big question do lumber puntures rule out cancer in the brain do they show up tumor markers in the brain as they were looking for a Germinoma but have said that the lumber puncture came back fine. I have read in other articals on the internet that tumor makers can not be found in lumber puntures regarding brain tumors is this ture???? I also thought they should treat all these thing with radation as they can't be taken out as it is to risky....
Thank you for your time and looking forward to reply
from one very tired and worried mother...