Thats kind of the problem, Because the surgeon has not been able to find a Endo there has been no further steps taken. I am sitting in limbo, not I will do as you suggested and go on cancellation lists ect..... Thank you.
It the pervious endo they wanted me to see, just can't go there again. I will contact my doctor tomorrow and talk to him about options. Have a great weekend!
I know it must be very frustrating for you. How did your auto-immune tests come out? Did your thyroid function tests come out okay? Thyroiditis have pain and fever listed as symptoms.
Also, since you've had the fever, have they done a differential white blood cell count on you?
Regarding the disliked endocrinologist who has appointments- this may be why he had appointments available. If there is another one whose schedule is way out there, you may try to get an appointment with them (after researching their schooling and experience- PM me if you want a more info on how) and get put on their cancellation list. Meanwhile, what has the doctor said who ordered your records from your previous endo?
Good Morning, Problem: The only Endo that has available appts. is the one I do not trust or like very much. Second appt with him, he came into the exam room yelling about the labs, saying they couldn't be correct. He called the hospital to see if they had cooled the sample or whatever and he was really upset. He told me I would have to take steriods for the rest of my life at that point. Really didn't say to much else. When I tried to talk to him he just ignored me basically. At the point in my life of these appts. I was pretty shut down, My son had been home from rehab for a short time, money was tight, balancing work, care for my son, ect was a bit overwhelming, I just didn't have the energy to be firm with this doctor or use any of my life tools to calm him and get answers.
First appt he told me I was fat: I am 5ft 3" tall, weight 132 pounds and am in pretty good shape for 48. He also told me my ability to move was impared, like I was 70 years old. I had just told him I had a spinal injury and it was acting up but he must of forgotten. Some days are better than others with my back and leg pain. He was certian I was a diabetic, I told him that was impossible. I am correct by the way he did the tests. My mom was and I took care of her, so I know a bit about the disease.
Last appt with him, I asked if there was something other than the steriods that we could try, he said no. I told him what was happening to me, he said deal with it, I told him I valued quality of life. He said he wouldn't treat me anymore if I didn't take them.
I have been feeling terrible, want a treatment or resolution, got any suggestions? Sorry to pour my heart out. This morning woke up and every joint I have hurts, even hips, and the top on my legs, I had a hard time climbing the stairs. Had to take motrin, this should be just wonderful for my stomach. Starting to feel like my back is against the wall. Oh and I also have a low grade fever, don't know how this plays into it. Have had one for a few days. My stomach is still much the same, nothing acute thank goodness. Horrible if I try to eat beef, but if I am very careful I can keep the pain under control with diet. The bloating is not fun, or the gas, but some of the other symptioms have calmed.
Yes, hope is a very good thing to have!
Yes he is sending me for testing, by now he has contacted my last Endo for my records, copies of by blood tests ect. These I am sure will follow me to the new doctor. Maybe this time I will get some answers, and I will feel better. One can hope.
Did he order blood testing for auto-immune problems, like lupus and rheumatoid arthritis?
You can type of a list of your symptoms and a list of questions, most important ones to you at the top of the list. You can see if the doctor will read it but often they want to listen and not bother to look. So, you can use your own list to try to be sure you don't leave out anything important that you'll wish later you remembered to mention. Bring someone with you (your daughter would be a great choice since she is having some of the same problems) to be a second pair of ears to listen to what the doctor has to say and to take notes.
It's good to prepare for your appointment- do some research so you can have some idea of what tests you want to request with the reasons why you are requesting them. A good doctor will hopefully order at least some of the tests you mention and maybe some you didn't know about as well.
You may want to research the doctor first, find out when and where they graduated and if they are board certified (if the office doesn't give out that info when you call for some reason & you want to know where you can find out this info, feel free to private message me). And you might even take a look at nurse practicioners who are experienced, because sometimes they seem to be more thorough and give you more time than a doctor in the same office would.