Aa
Aa
A
A
A
Close
Avatar universal

Very Strange Symptoms

MALE 32, no previous health problems

Jan '10 - got sick in Thailand (vacation) some sort of throat infection. (swollen neck lymph nodes, slight fever, swollen uvula, no appetite, difficulty swallowing), course of Amoxicillin cleared throat problem and seemed to end the problem at the time.

Feb '10 - slight discomfort on the right side of the jaw (lymph node), gum irritation, slight fever. Course of Avelox (5 days), no effect, difficulty swallowing reappeared, pain in right neck lymph node and slight enlargement.

Mar'10 - pain switched to the left neck lymph node along with lymph node enlargement (the nodes are hard, but not fixed, dull pressure in ears appeared (similar to pressure when diving).

Apr'10 - pain in lymph nodes increased, Ultra Sound of lymph nodes is clear, no malignancies, the lymph nodes are not extremely large, but constantly painful as if there is a wound inside (deep burning pain). Went to another ENT, he prescribed Ceftriaxone (10 shots 12 hours interval), the course was prescribed without any . Finished the course by the end of April.

May'10 - after Ceftriaxone, tongue turned yellowish black, intense nasal discharge has started, the feeling in nose and throat as if everything has been cut with knife inside. The discharge appears as a clear thick mucus.

June'10 - immense headache and head pressure added on top of the above symptoms along with muscle burning pain and muscle twitches all over body in random places with no particular pattern. Slight crackling noises appeared in ears as if bubble wraps popping. (no pain at that time yet, just popping sounds in ears).

July'10 - feeling of fluid in ears and extreme burning pain in both ears, volumes of clear discharge and another prescribed course of antibiotics Ciprinol. Antibiotics once again had no effect.

Aug'10 - Dec'10 - very dull headache, nausea (no vomiting, but on the verge of vomiting), extreme pain in lymph nodes, terrible headache, waking up several times during the night each night due to headache and nausea, very stiff neck and constant crackling sounds in neck when turning head, great burning pain in gums, tongue is constantly in white coating. Ear pain got so bad that it hurts when breathing in and out, since it feels like there is some object in the ear that is moving along with breathing process making a scratching sound and inflicting very unpleasant hardly bearable pain (mostly in left ear, since it is much more painful than the right, and same can be said of the left lymph node). When breathing through mouth this does not happen, but the pressure and general pain in ears persists.

Dec'10 went back to Thailand thinking they might find something local, the doctors at Burmungrad only could come with explanation of some sort of inflammation and prescribed Zithromax for 5 days, which made no changes whatsoever.

Jan'11-Aug'11 - still in pain, nausea, stiff neck, and overall fatigue and weakness, clear discharge (thick mucus both from throat and nose), ear pain when breathing in and out, problem with sleeping, muscle pains and twitches, neck and jaw muscles sore and painful, random gum burning at times, headache gets so bad at times that it seems that the head is about to explode, the location of the headache in the back of the head (area of skull adjacent to ears).

I have done tests for around $10 000 total within this 1.5 year interim:

CBC - normal
HIV - 6 times with 3 months interim NEGATIVE
STD screening panel - NEGATIVE
Rheumatoid Arthritis- NEGATIVE
MRI head and neck - slight signs of sinus inflammation visible
CT - of jaws (looks normal to doctors) checked for TMJ
Hep A,B,C - negative
EBV PCR- negative (although antibody titers are high for EBV, HHV type 6, and HHV-3)
TORCH panel - negative
Cancer Markers - negative

Blood Work Immunology shows exhaustion of immune system (T-killers too high, T-helpers too low, and according to immunologist body is fighting something).

Tried different immunological shots to boos immune system (no positive changes observed).

Tried antidepressants and tranquilizers, which doctors prescribed believing i was hypochondriac, but i doubt a man goes from normal to hypochondriac for no reason. Antidepressants and tranquilizers made me sleepy, but did not change ear pain or discharge even slightly.

So here I am stuck with some strange disease which gives me chronic pain and cripples my life quite a bit.

Any ideas, at this point i am ready to try anything, any other tests i have missed?

Any input is greatly appreciated, I have spent immense amount of money on tests, doctors and drugs and no one seems to figure out what is happening. I still do have resources and desire to get back to normal life.

Thank you for any input,

Dmytro


4 Responses
Sort by: Helpful Oldest Newest
Avatar universal
A related discussion, Strange Symptoms Still No Answer. Anyone? was started.
Helpful - 0
1756321 tn?1547095325
Lyme's Disease symptoms may slowly reveal themselves over a long period of time. I did find a very informative link that is humourously titled: Lyme Disease - An exercise in nailing Jello® to a wall.  The laboratories stated below are in the US. Not that helpful if you live elsewhere. :)

Best tests:
Western Blot; PCR (blood, urine, cerebral spinal fluid); urine antigen; DOT assay.

Worthless Tests:
ELISA and EIA.

For testing, IGeneX and MDL labs are highly recommended by knowledgeable Lyme patients and physicians. A new test has been developed by Bowen Lab; as it is still in the research phase, it is not at this time covered by insurance, Medicare or Medi-Cal.

http://www.anapsid.org/lyme/


Helpful - 0
Avatar universal
Hi Red_Star,

Thank you for your reply. I did test for Lyme Borreliosis bacteria here and I do not seem to have in blood PCR tests. Is there any definitive test to make sure that I don't have it. Also would it affect head and neck so much and would it progress continuously?

I mean neurological symptoms seem to be progressing at some slow but steady pace, and the head and jaw ache is excruciating.

Thank you for your reply. Before I commit to months of antibiotic, I would like to actually find the diagnosis.

Whatever it is, it is not going away on its own :(
Helpful - 0
1756321 tn?1547095325
A good possibility of Lyme's Disease which is one of the diseases that can be transmitted in Thailand.  Treatment of Lyme disease usually consists of a minimum one month course of antibiotics, preferably doxycycline in the early stages. With the chronic late stage form of the disease, it may be necessary to continue antibiotic treatment for months or years.  Lyme's Disease is very misdiagnosed due to false negatives.

Lyme's Disease symptoms >>>
http://www.lymediseaseblog.com/lyme-disease-symptoms/
http://www.canlyme.com/patsymptoms.html

Lyme's Disease >>>
http://en.wikipedia.org/wiki/Lyme_disease

Misdiagnosis of Lyme's Disease >>>
http://www.youtube.com/watch?v=W-nJDHVD8QQ

Thailand staying healthy >>>
http://www.letsgo.com/7083-asia_and_pacific-travel-guides-thailand-planning_your_trip-safety_and_health-staying_healthy-c#ixzz1VOBvejHy



Helpful - 0
Have an Answer?

You are reading content posted in the Undiagnosed Symptoms Community

Top General Health Answerers
363281 tn?1643235611
Nelson, New Zealand
1756321 tn?1547095325
Queensland, Australia
19694731 tn?1482849837
AL
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Discharge often isn't normal, and could mean an infection or an STD.
In this unique and fascinating report from Missouri Medicine, world-renowned expert Dr. Raymond Moody examines what really happens when we almost die.
Think a loved one may be experiencing hearing loss? Here are five warning signs to watch for.
When it comes to your health, timing is everything
We’ve got a crash course on metabolism basics.
Learn what you can do to avoid ski injury and other common winter sports injury.