Aa
What's wrong with me?
Hi everyone, please bear with me and be patient, i could talk litreally for days and days about the multiple issues wrong with me, but I'll do my best to break it down and keep it as short as possible, i know i need to see specialist docs, and that's underway, in the meantime, i would appreciate some feedback on what the hell is going on with me. Im seeing a rheumatologist in just over 2 weeks, i have been to the docs countless times in the past 15 months, need to get to the bottom of this and fix myself up. Here goes.
I am 19 years old, a male, and from the UK, specifically, England.
It all started in October 2010. In the last week of sepetember, i was away on holiday with some friends in Cyprus, on a 3 week vacation, on the last week, only I feel really ill out there, and i had severe sickness and diarheaa, even when on the beach i had to go to the toilet and make myself sick for litreally 30mins flat. I was told by a pharmacist out there it was due to change in climate.
So, in october 2010, i started working with my father, just doing some painting, i noticed i starting experiencing low back pain, i initally thought this was just me not used to the work and i pushed through expecting it to get better, but it never want away, it was in my sacrum area if you would like specifics.
I used to workout and lift weights and run to keep fit also id like to point out, but never had an injury or trauma to cause any of these events.
In January 2011, whilst i was working out, i noticed my neck started to hurt really bad, deep right in my cervical spine, i took it easy, but again this seemed to get aggravated whenever i tried training and i went to the doctors to get it checked, they ordered x-rays, but they came back normal.
During the couse of the year, my neck started to get progressively, slowly worse, it become weak and i found it difficult at times to look down and read a book, sleeping on the back of my head, and still to this day, i sleep on my side because of it.
In the summer, i was staying away on vacation, the mattress was really old and i woke up with BAD low back pain, so i decided to go for a walk, within 20mins, both my achilles tendons starting aching bad, i rested for the pain to ease up, then made my way back, used anti-inflammatory gels, and this seemed to solve the problem.
So i would occasionally get this problem.
In around july 2011, i tore my lateral meniscus of my right knee, i have no idea how, i got up from a push up position and just could not straighten my knee, i got it MRI scanned in October to get it confirmed. My knees had previously been hurting for years, the tendon in the inner side of my knee, had always been aggravated, even at the age of 15, i got it checked in the past, but apparently it was fine, both knees this was.
I went on holiday in september 2011 to Teneriffe for a week, long walks and all, but nothing too bothersome, i would occasionaly need to rub an anti-inflammatory gel on my heels and knees, but i was pretty muh ok for the whole holiday.
I started further investigating what was wrong with me, researching and going to the docs back and fourth, Ive had blood tests and i can't even remember some of the stuff Ive had tested for. I do remember having 2 blood tests in the past (FBC - Full blood count), one time i was anaemic in iron, so was given iron supps, 420mg daily. My levels raised back up, but what a concern from the doctor was, was a slightly low platelet level (thrombocytopenia), i had it tested twice, the later session, it was better than previous, from research, i know co-infections of lyme - babesia can cause this, yet at the time i had no idea, even what lyme disease was. I was referred to haemotology for investigations, and the consultant diagnosed me with "chronic ITP", and discharged me stating i had nothing to worry about as my platelet level was only just under the normal range.
Now before i went on holiday to Turkey in october 2011, i had been obesessing about what was wrong with me, i was convinced i had AS (Ankloysing spondylitis), 2 doctors, a chiropractor, and an osteopath, all believed this was not the case, it spoiled my holiday, and i developed bad psychomatic issues, such as anxiety and depression. Ive had ESR tested and that was low, Ive even had my lumbar spine MRI'ED but the doctors have no concerns as it came back normal. I eventually got this off my mind and started to wonder what was going on.
I noticed in August, and this was only from thinking about the past, that for about 2 weeks, my eyes were bothering me. They were really watery and i was continously blinking, constantly, i saw an optician and she said they were fine, this was before i went to teneriffe, and the problem went away.
So around novemember-december 2011, i started experiencing more problems, i started getting a dull ache in my left distal bicep tendon, i was referred to an osteopath for the low back issues, the tendon pain started also occuring in my right bicep tendon and progressed to a lot of cracking (crepitus), when i straightened the elbow, the osteo initally thought it was just growing pains along with bad anxiety, but recently advises i get checked out by a rheumatologist, but ultimately, he feels i'll be fine.
Now, in december 2011, i had agonising pain. I woke up one night with severe back pain, 3am, my whole back was hurting badly, i took some pain killers, sprayed deep heat on my back, tried sleeping on a heat pack, but it was too bad to get back to sleep, so i went to A+E. I was given more pain killers but they didn't do a thing, i was seen by a couple of doctors, one said there was some swelling, but couldn't spot anything wrong, as i had good mobility, and nothing seemed obvious to aggravate the pain. The next doctor i saw said she felt it was muscular, gave me a muscle relxant and more pain killers, during my time at A+E i had an uranylisis and an x-ray on my chest (which would show my spine), both came back fine. Within 8 hours the pain started go away. On this day i had severe diarhea and vommitting. I even had diarheaa, litreally 5mins before seeing a doctor, he examined my bowel and back and i told him i had litreally just had diarhea in the toilet and said my bowel was fine, and im just after pain killers to become a drug addict - made me furious!
I am 19 years old, a male, and from the UK, specifically, England.
It all started in October 2010. In the last week of sepetember, i was away on holiday with some friends in Cyprus, on a 3 week vacation, on the last week, only I feel really ill out there, and i had severe sickness and diarheaa, even when on the beach i had to go to the toilet and make myself sick for litreally 30mins flat. I was told by a pharmacist out there it was due to change in climate.
So, in october 2010, i started working with my father, just doing some painting, i noticed i starting experiencing low back pain, i initally thought this was just me not used to the work and i pushed through expecting it to get better, but it never want away, it was in my sacrum area if you would like specifics.
I used to workout and lift weights and run to keep fit also id like to point out, but never had an injury or trauma to cause any of these events.
In January 2011, whilst i was working out, i noticed my neck started to hurt really bad, deep right in my cervical spine, i took it easy, but again this seemed to get aggravated whenever i tried training and i went to the doctors to get it checked, they ordered x-rays, but they came back normal.
During the couse of the year, my neck started to get progressively, slowly worse, it become weak and i found it difficult at times to look down and read a book, sleeping on the back of my head, and still to this day, i sleep on my side because of it.
In the summer, i was staying away on vacation, the mattress was really old and i woke up with BAD low back pain, so i decided to go for a walk, within 20mins, both my achilles tendons starting aching bad, i rested for the pain to ease up, then made my way back, used anti-inflammatory gels, and this seemed to solve the problem.
So i would occasionally get this problem.
In around july 2011, i tore my lateral meniscus of my right knee, i have no idea how, i got up from a push up position and just could not straighten my knee, i got it MRI scanned in October to get it confirmed. My knees had previously been hurting for years, the tendon in the inner side of my knee, had always been aggravated, even at the age of 15, i got it checked in the past, but apparently it was fine, both knees this was.
I went on holiday in september 2011 to Teneriffe for a week, long walks and all, but nothing too bothersome, i would occasionaly need to rub an anti-inflammatory gel on my heels and knees, but i was pretty muh ok for the whole holiday.
I started further investigating what was wrong with me, researching and going to the docs back and fourth, Ive had blood tests and i can't even remember some of the stuff Ive had tested for. I do remember having 2 blood tests in the past (FBC - Full blood count), one time i was anaemic in iron, so was given iron supps, 420mg daily. My levels raised back up, but what a concern from the doctor was, was a slightly low platelet level (thrombocytopenia), i had it tested twice, the later session, it was better than previous, from research, i know co-infections of lyme - babesia can cause this, yet at the time i had no idea, even what lyme disease was. I was referred to haemotology for investigations, and the consultant diagnosed me with "chronic ITP", and discharged me stating i had nothing to worry about as my platelet level was only just under the normal range.
Now before i went on holiday to Turkey in october 2011, i had been obesessing about what was wrong with me, i was convinced i had AS (Ankloysing spondylitis), 2 doctors, a chiropractor, and an osteopath, all believed this was not the case, it spoiled my holiday, and i developed bad psychomatic issues, such as anxiety and depression. Ive had ESR tested and that was low, Ive even had my lumbar spine MRI'ED but the doctors have no concerns as it came back normal. I eventually got this off my mind and started to wonder what was going on.
I noticed in August, and this was only from thinking about the past, that for about 2 weeks, my eyes were bothering me. They were really watery and i was continously blinking, constantly, i saw an optician and she said they were fine, this was before i went to teneriffe, and the problem went away.
So around novemember-december 2011, i started experiencing more problems, i started getting a dull ache in my left distal bicep tendon, i was referred to an osteopath for the low back issues, the tendon pain started also occuring in my right bicep tendon and progressed to a lot of cracking (crepitus), when i straightened the elbow, the osteo initally thought it was just growing pains along with bad anxiety, but recently advises i get checked out by a rheumatologist, but ultimately, he feels i'll be fine.
Now, in december 2011, i had agonising pain. I woke up one night with severe back pain, 3am, my whole back was hurting badly, i took some pain killers, sprayed deep heat on my back, tried sleeping on a heat pack, but it was too bad to get back to sleep, so i went to A+E. I was given more pain killers but they didn't do a thing, i was seen by a couple of doctors, one said there was some swelling, but couldn't spot anything wrong, as i had good mobility, and nothing seemed obvious to aggravate the pain. The next doctor i saw said she felt it was muscular, gave me a muscle relxant and more pain killers, during my time at A+E i had an uranylisis and an x-ray on my chest (which would show my spine), both came back fine. Within 8 hours the pain started go away. On this day i had severe diarhea and vommitting. I even had diarheaa, litreally 5mins before seeing a doctor, he examined my bowel and back and i told him i had litreally just had diarhea in the toilet and said my bowel was fine, and im just after pain killers to become a drug addict - made me furious!
if you got a u/a it probaly would have shown signs of kidney problems if there were any... and as far as getting bitten there may be no sign of that or a rash becaue most of the ticks that carry it are very small
Recently i have been doing ALOT of research on lyme disease and some people suggest that it's the cause of conditions like FM and CFS. Now i don't recall getting a bite or rash at all, but my symptoms have been getting worse over time, and my BIGGEST obvious complaint is mirating pain. It seems to move from body part to body part, for example, now both THUMBS are hurting, not much, but definitely noticeable.
And before them, both my bi tendons were aching and felt weak. The testing in the UK is apparently poor and even a google search for a lyme specialist or "LLMD" has found me nothing.
Even if i have to pay privately to see one, im willing too, i feel bad and guilty sitting here knowing things aren't going away and maybe getting worse. Kidneys haven't been checked, just an uranlysis once at A+E.
The reason i don't want to feel that i have FM is that the majority are women with the average age being 45, i know men can get it too, but even so, at 19, it's unlikely surely.
What should i do? I don't think it's right to sit around waiting until the 22nd feb just for some tests, i think ANA blood was done in past which is used for lupus i think, and doctors weren't concerned, but i am trying to get my medical records.
Have a knee op next week for torn meniscus.
And before them, both my bi tendons were aching and felt weak. The testing in the UK is apparently poor and even a google search for a lyme specialist or "LLMD" has found me nothing.
Even if i have to pay privately to see one, im willing too, i feel bad and guilty sitting here knowing things aren't going away and maybe getting worse. Kidneys haven't been checked, just an uranlysis once at A+E.
The reason i don't want to feel that i have FM is that the majority are women with the average age being 45, i know men can get it too, but even so, at 19, it's unlikely surely.
What should i do? I don't think it's right to sit around waiting until the 22nd feb just for some tests, i think ANA blood was done in past which is used for lupus i think, and doctors weren't concerned, but i am trying to get my medical records.
Have a knee op next week for torn meniscus.
lyme is a real possibilty and it can get worse over time.... though i wouldnt rule out fibro... another concern would be lupus.... as far as the bitter taste in your mouth dehydration and frequent urination have your kidney values been checked? if your kidneys dont function properly lactic acid can build um in you muscles and tissues damaging them and causeing pain.
I did have a rheumatology appointment for investigations on the 1st of feb. But it had been changed to 22nd feb which angered me. I feel IF i have lyme disease, then it's potentially getting worse, i have pain which i guess is similar to fibromyalgia, but i don't think i can accept that as a diagnosis, partly being because im 19 and a male, and i don't feel i would be as unfortunate to suffer for ever.
I watched the trailer of under my skin and it did interest me. I guess i'll be able to provide more information after the rheumatology app. I will also search for that article in the meantime.
Thanks
Thanks
Thanks for the reply. Never heard of DI, but it seems to match my symptoms, even though it's rare. When i have the rheumatology appointment, i could ask for testing on this also.
Or maybe it can all be tired in with 1 problem, guess it's worth testing for, as Ive had it for as long as i can remember.
Or maybe it can all be tired in with 1 problem, guess it's worth testing for, as Ive had it for as long as i can remember.
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