Aa
What's wrong with me?
Hi everyone, please bear with me and be patient, i could talk litreally for days and days about the multiple issues wrong with me, but I'll do my best to break it down and keep it as short as possible, i know i need to see specialist docs, and that's underway, in the meantime, i would appreciate some feedback on what the hell is going on with me. Im seeing a rheumatologist in just over 2 weeks, i have been to the docs countless times in the past 15 months, need to get to the bottom of this and fix myself up. Here goes.
I am 19 years old, a male, and from the UK, specifically, England.
It all started in October 2010. In the last week of sepetember, i was away on holiday with some friends in Cyprus, on a 3 week vacation, on the last week, only I feel really ill out there, and i had severe sickness and diarheaa, even when on the beach i had to go to the toilet and make myself sick for litreally 30mins flat. I was told by a pharmacist out there it was due to change in climate.
So, in october 2010, i started working with my father, just doing some painting, i noticed i starting experiencing low back pain, i initally thought this was just me not used to the work and i pushed through expecting it to get better, but it never want away, it was in my sacrum area if you would like specifics.
I used to workout and lift weights and run to keep fit also id like to point out, but never had an injury or trauma to cause any of these events.
In January 2011, whilst i was working out, i noticed my neck started to hurt really bad, deep right in my cervical spine, i took it easy, but again this seemed to get aggravated whenever i tried training and i went to the doctors to get it checked, they ordered x-rays, but they came back normal.
During the couse of the year, my neck started to get progressively, slowly worse, it become weak and i found it difficult at times to look down and read a book, sleeping on the back of my head, and still to this day, i sleep on my side because of it.
In the summer, i was staying away on vacation, the mattress was really old and i woke up with BAD low back pain, so i decided to go for a walk, within 20mins, both my achilles tendons starting aching bad, i rested for the pain to ease up, then made my way back, used anti-inflammatory gels, and this seemed to solve the problem.
So i would occasionally get this problem.
In around july 2011, i tore my lateral meniscus of my right knee, i have no idea how, i got up from a push up position and just could not straighten my knee, i got it MRI scanned in October to get it confirmed. My knees had previously been hurting for years, the tendon in the inner side of my knee, had always been aggravated, even at the age of 15, i got it checked in the past, but apparently it was fine, both knees this was.
I went on holiday in september 2011 to Teneriffe for a week, long walks and all, but nothing too bothersome, i would occasionaly need to rub an anti-inflammatory gel on my heels and knees, but i was pretty muh ok for the whole holiday.
I started further investigating what was wrong with me, researching and going to the docs back and fourth, Ive had blood tests and i can't even remember some of the stuff Ive had tested for. I do remember having 2 blood tests in the past (FBC - Full blood count), one time i was anaemic in iron, so was given iron supps, 420mg daily. My levels raised back up, but what a concern from the doctor was, was a slightly low platelet level (thrombocytopenia), i had it tested twice, the later session, it was better than previous, from research, i know co-infections of lyme - babesia can cause this, yet at the time i had no idea, even what lyme disease was. I was referred to haemotology for investigations, and the consultant diagnosed me with "chronic ITP", and discharged me stating i had nothing to worry about as my platelet level was only just under the normal range.
Now before i went on holiday to Turkey in october 2011, i had been obesessing about what was wrong with me, i was convinced i had AS (Ankloysing spondylitis), 2 doctors, a chiropractor, and an osteopath, all believed this was not the case, it spoiled my holiday, and i developed bad psychomatic issues, such as anxiety and depression. Ive had ESR tested and that was low, Ive even had my lumbar spine MRI'ED but the doctors have no concerns as it came back normal. I eventually got this off my mind and started to wonder what was going on.
I noticed in August, and this was only from thinking about the past, that for about 2 weeks, my eyes were bothering me. They were really watery and i was continously blinking, constantly, i saw an optician and she said they were fine, this was before i went to teneriffe, and the problem went away.
So around novemember-december 2011, i started experiencing more problems, i started getting a dull ache in my left distal bicep tendon, i was referred to an osteopath for the low back issues, the tendon pain started also occuring in my right bicep tendon and progressed to a lot of cracking (crepitus), when i straightened the elbow, the osteo initally thought it was just growing pains along with bad anxiety, but recently advises i get checked out by a rheumatologist, but ultimately, he feels i'll be fine.
Now, in december 2011, i had agonising pain. I woke up one night with severe back pain, 3am, my whole back was hurting badly, i took some pain killers, sprayed deep heat on my back, tried sleeping on a heat pack, but it was too bad to get back to sleep, so i went to A+E. I was given more pain killers but they didn't do a thing, i was seen by a couple of doctors, one said there was some swelling, but couldn't spot anything wrong, as i had good mobility, and nothing seemed obvious to aggravate the pain. The next doctor i saw said she felt it was muscular, gave me a muscle relxant and more pain killers, during my time at A+E i had an uranylisis and an x-ray on my chest (which would show my spine), both came back fine. Within 8 hours the pain started go away. On this day i had severe diarhea and vommitting. I even had diarheaa, litreally 5mins before seeing a doctor, he examined my bowel and back and i told him i had litreally just had diarhea in the toilet and said my bowel was fine, and im just after pain killers to become a drug addict - made me furious!
I am 19 years old, a male, and from the UK, specifically, England.
It all started in October 2010. In the last week of sepetember, i was away on holiday with some friends in Cyprus, on a 3 week vacation, on the last week, only I feel really ill out there, and i had severe sickness and diarheaa, even when on the beach i had to go to the toilet and make myself sick for litreally 30mins flat. I was told by a pharmacist out there it was due to change in climate.
So, in october 2010, i started working with my father, just doing some painting, i noticed i starting experiencing low back pain, i initally thought this was just me not used to the work and i pushed through expecting it to get better, but it never want away, it was in my sacrum area if you would like specifics.
I used to workout and lift weights and run to keep fit also id like to point out, but never had an injury or trauma to cause any of these events.
In January 2011, whilst i was working out, i noticed my neck started to hurt really bad, deep right in my cervical spine, i took it easy, but again this seemed to get aggravated whenever i tried training and i went to the doctors to get it checked, they ordered x-rays, but they came back normal.
During the couse of the year, my neck started to get progressively, slowly worse, it become weak and i found it difficult at times to look down and read a book, sleeping on the back of my head, and still to this day, i sleep on my side because of it.
In the summer, i was staying away on vacation, the mattress was really old and i woke up with BAD low back pain, so i decided to go for a walk, within 20mins, both my achilles tendons starting aching bad, i rested for the pain to ease up, then made my way back, used anti-inflammatory gels, and this seemed to solve the problem.
So i would occasionally get this problem.
In around july 2011, i tore my lateral meniscus of my right knee, i have no idea how, i got up from a push up position and just could not straighten my knee, i got it MRI scanned in October to get it confirmed. My knees had previously been hurting for years, the tendon in the inner side of my knee, had always been aggravated, even at the age of 15, i got it checked in the past, but apparently it was fine, both knees this was.
I went on holiday in september 2011 to Teneriffe for a week, long walks and all, but nothing too bothersome, i would occasionaly need to rub an anti-inflammatory gel on my heels and knees, but i was pretty muh ok for the whole holiday.
I started further investigating what was wrong with me, researching and going to the docs back and fourth, Ive had blood tests and i can't even remember some of the stuff Ive had tested for. I do remember having 2 blood tests in the past (FBC - Full blood count), one time i was anaemic in iron, so was given iron supps, 420mg daily. My levels raised back up, but what a concern from the doctor was, was a slightly low platelet level (thrombocytopenia), i had it tested twice, the later session, it was better than previous, from research, i know co-infections of lyme - babesia can cause this, yet at the time i had no idea, even what lyme disease was. I was referred to haemotology for investigations, and the consultant diagnosed me with "chronic ITP", and discharged me stating i had nothing to worry about as my platelet level was only just under the normal range.
Now before i went on holiday to Turkey in october 2011, i had been obesessing about what was wrong with me, i was convinced i had AS (Ankloysing spondylitis), 2 doctors, a chiropractor, and an osteopath, all believed this was not the case, it spoiled my holiday, and i developed bad psychomatic issues, such as anxiety and depression. Ive had ESR tested and that was low, Ive even had my lumbar spine MRI'ED but the doctors have no concerns as it came back normal. I eventually got this off my mind and started to wonder what was going on.
I noticed in August, and this was only from thinking about the past, that for about 2 weeks, my eyes were bothering me. They were really watery and i was continously blinking, constantly, i saw an optician and she said they were fine, this was before i went to teneriffe, and the problem went away.
So around novemember-december 2011, i started experiencing more problems, i started getting a dull ache in my left distal bicep tendon, i was referred to an osteopath for the low back issues, the tendon pain started also occuring in my right bicep tendon and progressed to a lot of cracking (crepitus), when i straightened the elbow, the osteo initally thought it was just growing pains along with bad anxiety, but recently advises i get checked out by a rheumatologist, but ultimately, he feels i'll be fine.
Now, in december 2011, i had agonising pain. I woke up one night with severe back pain, 3am, my whole back was hurting badly, i took some pain killers, sprayed deep heat on my back, tried sleeping on a heat pack, but it was too bad to get back to sleep, so i went to A+E. I was given more pain killers but they didn't do a thing, i was seen by a couple of doctors, one said there was some swelling, but couldn't spot anything wrong, as i had good mobility, and nothing seemed obvious to aggravate the pain. The next doctor i saw said she felt it was muscular, gave me a muscle relxant and more pain killers, during my time at A+E i had an uranylisis and an x-ray on my chest (which would show my spine), both came back fine. Within 8 hours the pain started go away. On this day i had severe diarhea and vommitting. I even had diarheaa, litreally 5mins before seeing a doctor, he examined my bowel and back and i told him i had litreally just had diarhea in the toilet and said my bowel was fine, and im just after pain killers to become a drug addict - made me furious!
I left the hospital because i had, had enough of their help, on my way out of the hospital i was vommitting last nights meal, and this is unusual for me, because when im sick, a lot of the time i have to make myself sick, but i was vomitting a lot. I got home and went to bed for the whole day.
I went out for some christmas drinks with friends, but had to go home early due to agonising pain. I fighted it for most of the night, but i couldn't bear it no more, during the time i was out, my low back and sacroiliac joints were really hurting, and when it eased off, i had an ache in my shoulder, the pain got so bad i had to go home. I got home, drunk plenty of water, took cod liver oil, and the pain eased off, i went to sleep, only to be awoken within a few hours to severe pain in both achilles tendons and the front of my feet, it took me a good couple of hours for the pain to ease up enough to get some sleep.
In january 2012, the symptoms seemed to come on suddenly and out of no where. For about 5 days, i became exhausted, i was sleeping for the majority of the day, along with this i suddenly became very dizzy and lightheaded, along with nausea. They would all come out of the blue. For the past 5 days or week though, thankfully they have eased off slightly, however, one day i got up to get a drink and was so dizzy i fell over. The fatigue, dizziness and nausea has eased off a bit the past week or so, i feel i have no control over what's going on. I notice when i have a better mental attiude my symptoms are better, however today has been hell.
I woke up, my back was aching, then my feet, almost as if i had been walking for miles on end. The pain normally moves from place to place and is migrating, when one area eases off, another hurts, the low back pain is normally sharp and stabbing and is even hurting me badly now. Ive noticed weird sensations developing recently, Ive notied that my left eye twitching, which it did in the past, could actually be a symptom of something. My neck is constantly stiff and weak.
Now, for as long as i can remember, another issue had been frequent urination/dehydration/drymouth/bitter taste in mouth. I don't know which one is the culprit. All i remember is that even when i was little, my mother said i was always asking to go to the toilet. I don't know if the dehydration is caused by frequent urination or vise versa. I remember wheni was around 15-16, getting checked for it, and was checked for diabetes at least twice, both which came back negative, since then i haven't bothered so muh, as my main concerns is the pain preventing me from living my life, which i used to workout a lot, and go out with friends.
Any other info, please let me know, i had been really anxious/depressed, am urrently taking anti depressants and pain killers, when i need to, could this be lyme disease? Don't recall a rash or bite, know it's not as common in the UK though. I did camp a few times in my teenage years with friends in forests. I did have a mole almost idential to this;
http://en.wikipedia.org/wiki/File:Borrelial_lymphocytoma.jpg a few years bak, which i had to have removed, other than that i don't know.
Ive noticed more symptoms daily, for instane, today in my right tricep i have noticed a throbbing sensation like a sped up pulse occuring for around 20 seconds and then dissapearing. I have also had just under 2 pints of cider to relax a little, and my nose and face feels numb, like when you're having dental work and your face is numbed, this is all getting too weird for me.
Sorry for the mountain of text, i have raynauds, no family history of any disease or illnesses like this. I think the raynauds started after the mole, not entirely sure though off hand.
Thanks for reading, will have to visit rheumy in 2 weeks, but just thought id post.
I went out for some christmas drinks with friends, but had to go home early due to agonising pain. I fighted it for most of the night, but i couldn't bear it no more, during the time i was out, my low back and sacroiliac joints were really hurting, and when it eased off, i had an ache in my shoulder, the pain got so bad i had to go home. I got home, drunk plenty of water, took cod liver oil, and the pain eased off, i went to sleep, only to be awoken within a few hours to severe pain in both achilles tendons and the front of my feet, it took me a good couple of hours for the pain to ease up enough to get some sleep.
In january 2012, the symptoms seemed to come on suddenly and out of no where. For about 5 days, i became exhausted, i was sleeping for the majority of the day, along with this i suddenly became very dizzy and lightheaded, along with nausea. They would all come out of the blue. For the past 5 days or week though, thankfully they have eased off slightly, however, one day i got up to get a drink and was so dizzy i fell over. The fatigue, dizziness and nausea has eased off a bit the past week or so, i feel i have no control over what's going on. I notice when i have a better mental attiude my symptoms are better, however today has been hell.
I woke up, my back was aching, then my feet, almost as if i had been walking for miles on end. The pain normally moves from place to place and is migrating, when one area eases off, another hurts, the low back pain is normally sharp and stabbing and is even hurting me badly now. Ive noticed weird sensations developing recently, Ive notied that my left eye twitching, which it did in the past, could actually be a symptom of something. My neck is constantly stiff and weak.
Now, for as long as i can remember, another issue had been frequent urination/dehydration/drymouth/bitter taste in mouth. I don't know which one is the culprit. All i remember is that even when i was little, my mother said i was always asking to go to the toilet. I don't know if the dehydration is caused by frequent urination or vise versa. I remember wheni was around 15-16, getting checked for it, and was checked for diabetes at least twice, both which came back negative, since then i haven't bothered so muh, as my main concerns is the pain preventing me from living my life, which i used to workout a lot, and go out with friends.
Any other info, please let me know, i had been really anxious/depressed, am urrently taking anti depressants and pain killers, when i need to, could this be lyme disease? Don't recall a rash or bite, know it's not as common in the UK though. I did camp a few times in my teenage years with friends in forests. I did have a mole almost idential to this;
http://en.wikipedia.org/wiki/File:Borrelial_lymphocytoma.jpg a few years bak, which i had to have removed, other than that i don't know.
Ive noticed more symptoms daily, for instane, today in my right tricep i have noticed a throbbing sensation like a sped up pulse occuring for around 20 seconds and then dissapearing. I have also had just under 2 pints of cider to relax a little, and my nose and face feels numb, like when you're having dental work and your face is numbed, this is all getting too weird for me.
Sorry for the mountain of text, i have raynauds, no family history of any disease or illnesses like this. I think the raynauds started after the mole, not entirely sure though off hand.
Thanks for reading, will have to visit rheumy in 2 weeks, but just thought id post.
Medical schools often have professors who are especially good at guessing what condition you have in order to ask the right one of their students. Is there one within a reasonable distance?
Just a guess - you might ask to be tested for a specific type of diabetes, named diabetes insipidus. People with that tend to need to drink more liquids and have frequent urination.
Do you use unusual amounts of salt? If so, a test for hyponatremia may be appropriate.
No idea on the rest..
Just a guess - you might ask to be tested for a specific type of diabetes, named diabetes insipidus. People with that tend to need to drink more liquids and have frequent urination.
Do you use unusual amounts of salt? If so, a test for hyponatremia may be appropriate.
No idea on the rest..
Lyme disease is possible. An article entitled "Mists and myths swirl around inverness" has some info on the labs that test in the UK and on misdiagnosis:
"Scotland has its very own Lyme diagnostic laboratory at Raigmore Hospital in Inverness, while the rest of the British Isles relies on one reference laboratory at Southampton in England."
"Myth 5: All laboratories produce dependable results. Verdict: False. This is perhaps the only myth on which we have a point of agreement: if all laboratory tests were reliable, Ho-Yen would not have published his 2005 paper, saying that his lab had had to reinterpret a third of its own tests."
Dr Ho-Yen is the chief microbiologist at Raigmore. I had a look and found this hospital at Southhampton is called The Health Protection Agency's Lyme Borreliosis Unit (LBU).
A good video is about misdiagnosis of Lyme disease is called "Under Our Skin". The trailer is on youtube. Lyme disease is also associated with Raynaud's.
Primary Raynaud's - without an underlying disease or associated medical problem.
Secondary Raynaud's has a number of associations:
Connective tissue disorders:
Scleroderma
Systemic lupus erythematosus
Rheumatoid arthritis
Sjögren's syndrome
Dermatomyositis
Polymyositis
Mixed connective tissue disease
Cold agglutinin disease
Ehlers-Danlos Syndrome
Eating disorders:
Anorexia nervosa
Obstructive disorders:
Atherosclerosis
Buerger's disease
Takayasu's arteritis
Subclavian aneurysms
Thoracic outlet syndrome
Drugs:
Beta-blockers
Cytotoxic drugs - particularly chemotherapeutics and most especially Bleomycin
Ciclosporin
Ergotamine
Sulfasalazine
Anthrax vaccines
Occupation:
Jobs involving vibration, particularly drilling, suffer from vibration white finger
Exposure to vinyl chloride, mercury
Exposure to the cold (e.g. by working as a frozen food packer)
Others:
Physical Trauma
Traumatic events
Lyme Disease
Hypothyroidism
Cryoglobulinemia
Malignancy
Reflex sympathetic dystrophy
Carpal tunnel syndrome
Magnesium Deficiency
Multiple Sclerosis
Erythromelalgia
"Scotland has its very own Lyme diagnostic laboratory at Raigmore Hospital in Inverness, while the rest of the British Isles relies on one reference laboratory at Southampton in England."
"Myth 5: All laboratories produce dependable results. Verdict: False. This is perhaps the only myth on which we have a point of agreement: if all laboratory tests were reliable, Ho-Yen would not have published his 2005 paper, saying that his lab had had to reinterpret a third of its own tests."
Dr Ho-Yen is the chief microbiologist at Raigmore. I had a look and found this hospital at Southhampton is called The Health Protection Agency's Lyme Borreliosis Unit (LBU).
A good video is about misdiagnosis of Lyme disease is called "Under Our Skin". The trailer is on youtube. Lyme disease is also associated with Raynaud's.
Primary Raynaud's - without an underlying disease or associated medical problem.
Secondary Raynaud's has a number of associations:
Connective tissue disorders:
Scleroderma
Systemic lupus erythematosus
Rheumatoid arthritis
Sjögren's syndrome
Dermatomyositis
Polymyositis
Mixed connective tissue disease
Cold agglutinin disease
Ehlers-Danlos Syndrome
Eating disorders:
Anorexia nervosa
Obstructive disorders:
Atherosclerosis
Buerger's disease
Takayasu's arteritis
Subclavian aneurysms
Thoracic outlet syndrome
Drugs:
Beta-blockers
Cytotoxic drugs - particularly chemotherapeutics and most especially Bleomycin
Ciclosporin
Ergotamine
Sulfasalazine
Anthrax vaccines
Occupation:
Jobs involving vibration, particularly drilling, suffer from vibration white finger
Exposure to vinyl chloride, mercury
Exposure to the cold (e.g. by working as a frozen food packer)
Others:
Physical Trauma
Traumatic events
Lyme Disease
Hypothyroidism
Cryoglobulinemia
Malignancy
Reflex sympathetic dystrophy
Carpal tunnel syndrome
Magnesium Deficiency
Multiple Sclerosis
Erythromelalgia
Thanks for the reply. Never heard of DI, but it seems to match my symptoms, even though it's rare. When i have the rheumatology appointment, i could ask for testing on this also.
Or maybe it can all be tired in with 1 problem, guess it's worth testing for, as Ive had it for as long as i can remember.
Or maybe it can all be tired in with 1 problem, guess it's worth testing for, as Ive had it for as long as i can remember.
I watched the trailer of under my skin and it did interest me. I guess i'll be able to provide more information after the rheumatology app. I will also search for that article in the meantime.
Thanks
Thanks
I did have a rheumatology appointment for investigations on the 1st of feb. But it had been changed to 22nd feb which angered me. I feel IF i have lyme disease, then it's potentially getting worse, i have pain which i guess is similar to fibromyalgia, but i don't think i can accept that as a diagnosis, partly being because im 19 and a male, and i don't feel i would be as unfortunate to suffer for ever.
lyme is a real possibilty and it can get worse over time.... though i wouldnt rule out fibro... another concern would be lupus.... as far as the bitter taste in your mouth dehydration and frequent urination have your kidney values been checked? if your kidneys dont function properly lactic acid can build um in you muscles and tissues damaging them and causeing pain.
Recently i have been doing ALOT of research on lyme disease and some people suggest that it's the cause of conditions like FM and CFS. Now i don't recall getting a bite or rash at all, but my symptoms have been getting worse over time, and my BIGGEST obvious complaint is mirating pain. It seems to move from body part to body part, for example, now both THUMBS are hurting, not much, but definitely noticeable.
And before them, both my bi tendons were aching and felt weak. The testing in the UK is apparently poor and even a google search for a lyme specialist or "LLMD" has found me nothing.
Even if i have to pay privately to see one, im willing too, i feel bad and guilty sitting here knowing things aren't going away and maybe getting worse. Kidneys haven't been checked, just an uranlysis once at A+E.
The reason i don't want to feel that i have FM is that the majority are women with the average age being 45, i know men can get it too, but even so, at 19, it's unlikely surely.
What should i do? I don't think it's right to sit around waiting until the 22nd feb just for some tests, i think ANA blood was done in past which is used for lupus i think, and doctors weren't concerned, but i am trying to get my medical records.
Have a knee op next week for torn meniscus.
And before them, both my bi tendons were aching and felt weak. The testing in the UK is apparently poor and even a google search for a lyme specialist or "LLMD" has found me nothing.
Even if i have to pay privately to see one, im willing too, i feel bad and guilty sitting here knowing things aren't going away and maybe getting worse. Kidneys haven't been checked, just an uranlysis once at A+E.
The reason i don't want to feel that i have FM is that the majority are women with the average age being 45, i know men can get it too, but even so, at 19, it's unlikely surely.
What should i do? I don't think it's right to sit around waiting until the 22nd feb just for some tests, i think ANA blood was done in past which is used for lupus i think, and doctors weren't concerned, but i am trying to get my medical records.
Have a knee op next week for torn meniscus.
if you got a u/a it probaly would have shown signs of kidney problems if there were any... and as far as getting bitten there may be no sign of that or a rash becaue most of the ticks that carry it are very small
Now i think back, im not sure when my raynauds started, but the only mole or bite that i do remember, is something i had removed was around my shoulder. Also a couple years back i remember in the summer getting extremely hungry a couple times in the mornings. I remember eating tons of cereal and a whole loaf of bread for breakfast, i thought it was worms or something. It eventually went away.
Don't know what to do int he mean time, but it hink i should get things checked, i don't want to sit about another month feeling helpless and wasting my life.
Don't know what to do int he mean time, but it hink i should get things checked, i don't want to sit about another month feeling helpless and wasting my life.
yah its best to get it looked at again no one should have to live with so much pain. maybe its something nurological have you ever had any nerve tests or mri's.. as far as the hunger lyme can cause a varity of strange symptoms that very from individual to individual... and can effect mood , appite , pain, almost anything. how are you being treated for thrombocitopenia? has it been corrected or is it still being monitared.. my mom had that and it could have been a side effect of her lupus.
My symptoms seem to come and go and change. For instance, past few days I haven't had much nausea or dizziness, but instead Ive started waking up with back pain again, which i did in the past, but went away, now here it is again, and nothing Ive done which could of caused it. I can't keep up with all these symptoms.
With the thrombocitopenia, nothing. I saw a haemotologist who diagnosed it and she just discharged me as she said the level was only just under normal range. Ive read that co-infections like babesia can cause it too.
With the thrombocitopenia, nothing. I saw a haemotologist who diagnosed it and she just discharged me as she said the level was only just under normal range. Ive read that co-infections like babesia can cause it too.
How can i get accurate testing for LD in the UK? Surely i don't have to travel to the US just to get testing? There must be some reliable labs here. I want to take action sooner rather than later.
Back to the guy that suggested DI - i notice that the excessive thirst may be something else. I mean perhaps salt related. Ive just been to MC D's which is fairly salty, and although Ive drank water, i feel no different, often with the excessive thirst, i have a foul taste in my mouth with an incredibly dry mouth. For instance, wheneve i SPIT on the floor, it's real white or i can barely make any spit/slavia.
Should i make a GP appointment about all this and tell them? It is important. I have rheumatology in a month, but there not really designed to deal with this stuff i guess, unless it's all tied into one disease - LD?
Should i make a GP appointment about all this and tell them? It is important. I have rheumatology in a month, but there not really designed to deal with this stuff i guess, unless it's all tied into one disease - LD?
NOT sure if this is related. Today i haven't been in as much physical pain, except for bad low back pain in the morning. However, i have definitely noticed the thirst/frequent urination a lot more today. I woke up, and didn't even have 1 glass of water, and already felt as though i was urinating a lot, and with this i became thirsty, drink water, it would go right through me.
If im honest, i think it might have something to do with salts, sodium, something like that. Because usually with the dry mouth/thirst i have a bad foul taste in my mouth, and feel i'll need to eat something - not necessarily sugary, as i could eat say a biscuit, to take away some of the bad taste. Again Ive had this for as long as i can remember, only it is a nuiscane and today it has been affecting my life, not sure if related to possible lyme disease, but will try and get a docs appointment to get it checked out for sure.
If im honest, i think it might have something to do with salts, sodium, something like that. Because usually with the dry mouth/thirst i have a bad foul taste in my mouth, and feel i'll need to eat something - not necessarily sugary, as i could eat say a biscuit, to take away some of the bad taste. Again Ive had this for as long as i can remember, only it is a nuiscane and today it has been affecting my life, not sure if related to possible lyme disease, but will try and get a docs appointment to get it checked out for sure.
a rheumatologist doesnt specialize in these other things but should be aware of them because before they specialize they still recieve a full range of medical training... the thirst and urination is a common symptom of diabetes or kidney problems. i doubt it wuld be salt intake unless it is extremlly excessive. if your spit is white and foamy you are dehydrated and should drink more water, not soda or tea or anything but actual water. the foul taste could just be a side effect of the dry mouth. though it can also indicate other things... is it sweet? that leans tword diabetes if its ammonia like or metalic could be kidneys. just let the doctor know all of your symptoms and likely they will refer you to someone more appropriate. have you ever been exposed to heavey metals?
as far as testing for lyme, even if there are no labs that do that in europe test samples can be sent over seas.
as far as testing for lyme, even if there are no labs that do that in europe test samples can be sent over seas.
Nope, no heavy metals. I have the thirst/urination issue for as long as i can remember. A few years back i took the complaints to the GP's and they tested me i think twice for diabetes which both came back negative. Maybe should consider DI though. Only u/a i had was at A+E when i went in for severe back pain, perhaps they didn't test the thirst/urination as i didn't mention it, however when i was up there, i drunk ALOT of water.
The spit/slavia isn't sweet, just a really disgusting taste which usually only goes away with some type of food. It's almost as though there's a prolem with my tongue,
The spit/slavia isn't sweet, just a really disgusting taste which usually only goes away with some type of food. It's almost as though there's a prolem with my tongue,
I just don't understand what's going on with me and it's all getting overwhelming and TOO much to bear. Raynauds, probaly DI, knee op in few days, pain everyday, i just can't deal with it no more and it's coming to the point where it is making me depressed and making me feel as though i just don't want to be here and end this misery, im ******* 19 and i haven't even had chance to get on with my life yet.
Today, Ive had to pee 3 times in 2 hours, and that's from drinking 2 glasses of water. I don't understand this though, Ive had this for as long as i can remember, but although it's been a nuisance, it's not been as bothersome or major as it is now. Perhaps because i know what it likely is im worrying, i don't know, but again, it's been a lot worse, and i haven't been in as much physical pain, so don't know if that's a possible connection from lyme magnifiying things? Going to go to the docs later, if i can't get in, i'll go to the hospital because this is making me sick.
Last night for instance, when in MC D's, had a coffee, and we were out a good hour or so and i was fine, perhaps i was just dehydrated, but the coffee got rid of the bad taste in my mouth, i just dunno, but Ive had it for as long as i can remember, but only the past couple days has it been ruling my life.
Today, Ive had to pee 3 times in 2 hours, and that's from drinking 2 glasses of water. I don't understand this though, Ive had this for as long as i can remember, but although it's been a nuisance, it's not been as bothersome or major as it is now. Perhaps because i know what it likely is im worrying, i don't know, but again, it's been a lot worse, and i haven't been in as much physical pain, so don't know if that's a possible connection from lyme magnifiying things? Going to go to the docs later, if i can't get in, i'll go to the hospital because this is making me sick.
Last night for instance, when in MC D's, had a coffee, and we were out a good hour or so and i was fine, perhaps i was just dehydrated, but the coffee got rid of the bad taste in my mouth, i just dunno, but Ive had it for as long as i can remember, but only the past couple days has it been ruling my life.
So, in a nutshell;
- Pain over most areas of my body, varies in intensity and each day is different;
Neck - weakness and stiffness
Back - Both upper and lower back, low back is often severe.
Ankles/heels - aching tendons
Wrists + thumbs, sometimes go numb
Tendons at elbow, sometimes ache and make my arms feel weak
- Occasional fatigue/tiredness.
-Dizziness/Lightheaded/Weak.
-Nausea, increased motion sickness
-Excessive thirst and urination + dry mouth with foul taste.
-Itchy bottom - sometimes after going to the toilet, with this when i use the tissue, there is often waste there (embarrasing, sorry)
- Left eye twitching
-Increased sensitivty to cold (i have raynauds, but even so this is relevant)
All i cna think of right now, ut every day is different, for instance where i have been in less physical pain, i have noticed the excessive thirst and urination a lot more? I feel if i go to the docs about all this they will just label me as nuts or a hypochrondriac, im going there later today to ring up the thirst and urination, but im sure they'll just say, possible urinary infection. My dad says he has one at the moment, so could well be, but ive had this for years, just more noticeable past few days.
- Pain over most areas of my body, varies in intensity and each day is different;
Neck - weakness and stiffness
Back - Both upper and lower back, low back is often severe.
Ankles/heels - aching tendons
Wrists + thumbs, sometimes go numb
Tendons at elbow, sometimes ache and make my arms feel weak
- Occasional fatigue/tiredness.
-Dizziness/Lightheaded/Weak.
-Nausea, increased motion sickness
-Excessive thirst and urination + dry mouth with foul taste.
-Itchy bottom - sometimes after going to the toilet, with this when i use the tissue, there is often waste there (embarrasing, sorry)
- Left eye twitching
-Increased sensitivty to cold (i have raynauds, but even so this is relevant)
All i cna think of right now, ut every day is different, for instance where i have been in less physical pain, i have noticed the excessive thirst and urination a lot more? I feel if i go to the docs about all this they will just label me as nuts or a hypochrondriac, im going there later today to ring up the thirst and urination, but im sure they'll just say, possible urinary infection. My dad says he has one at the moment, so could well be, but ive had this for years, just more noticeable past few days.
See, now this is weird. Today, i woke up, went a pee, had a coffee, few cups of water, and ddn't need to pee for a good 4 hours or so. Ive got tests to do in a couple days anyway, for blood glucose and urea/electrolyes, perhaps im slightly low on salt or something, but some investigations inthat respect.
Seriously guys, is this looking like lyme? Today Ive got back pain again, but it's not just upper back or low back, the common areas, even the uncommon areas like my mid back hurt, and it's aches, and directly in my spine it feels, also the surrounding muscles usually feel stiff. Ive read lyme can mimic many disease, but am i just hopefully wishing here that it's the answer?
Ive heard of people being disabled and being spoon fed by loved ones from lyme, guess that's severe cases, even so though, the back ache and pains which pain killers don't seem to touch - last night my low back was severe pain, but i managed to get to sleep from it.
Ive done nothing or any injury that could of caused it, what do you guys honestly think? Should i push the docs for some tests, even if i convince them, they'll likely try to avoid testing, or just give me the unrealiable ELISA one. Should i say i remember a tick bite? I mean, i feel i'd have to almost say that to push them to get me some testing, i can't wait around no more, im wasting my life and precious time by sitting around.
Sorry to go on and on but any suggestions on what i should do next is massively appreciated, thanks.
Seriously guys, is this looking like lyme? Today Ive got back pain again, but it's not just upper back or low back, the common areas, even the uncommon areas like my mid back hurt, and it's aches, and directly in my spine it feels, also the surrounding muscles usually feel stiff. Ive read lyme can mimic many disease, but am i just hopefully wishing here that it's the answer?
Ive heard of people being disabled and being spoon fed by loved ones from lyme, guess that's severe cases, even so though, the back ache and pains which pain killers don't seem to touch - last night my low back was severe pain, but i managed to get to sleep from it.
Ive done nothing or any injury that could of caused it, what do you guys honestly think? Should i push the docs for some tests, even if i convince them, they'll likely try to avoid testing, or just give me the unrealiable ELISA one. Should i say i remember a tick bite? I mean, i feel i'd have to almost say that to push them to get me some testing, i can't wait around no more, im wasting my life and precious time by sitting around.
Sorry to go on and on but any suggestions on what i should do next is massively appreciated, thanks.
Ive had pain in my spine almost constantly today, upper back mostly, but mid back too, tried having a bath with muscle gel, pain killers, didn't help at all. I used the foam roller and it helped a bit. Went for a walk but still not much help. Used the foam roller again and it took away the stiffness and pain in my back, but then instantly after the glands in the side of my neck are now hurting, im starting to feel like, why?
The pain in my spine is deep and feels like someone needs to push it back into place, what should i do int he meantime, i can't get to the docs yet, but i honestly can't sit around another month in pain just to see a rheumatologist.
The pain in my spine is deep and feels like someone needs to push it back into place, what should i do int he meantime, i can't get to the docs yet, but i honestly can't sit around another month in pain just to see a rheumatologist.
One cause of pain that moves around is a heart attack. Not everyone gets the chest pain symptoms. Not the only cause, though.
Is there a medical school within the distance you can travel? If there is, you could call them and ask if they're training any doctors who might be able to handle some of your problems. Medical schools often offer free medical care except for expenses travelling there and back, for those who volunteer to be treated by their students.
Is there a medical school within the distance you can travel? If there is, you could call them and ask if they're training any doctors who might be able to handle some of your problems. Medical schools often offer free medical care except for expenses travelling there and back, for those who volunteer to be treated by their students.
Ive had the pain for a while, i am quite young for a heart attack being 19. Ive read Lyme can cause migratory pain that moves around, i just don't get it, i mean, the tendon pain in my elbows, both elbows, never goes away when it arises, hot bath, pain killers, nothing works.
The pain killers i have are solpadol (co-codamol 30mg/500mg paracetmol) and dicoflenax 50mg used to work when i had neck pain back in october, now i take them for my tendon pain in my arms. It doesn't touch it or help at all, i have a knee op tomorrow but im more worried about everything else and it being something incurable, it's becomming overwhelming.
The pain killers i have are solpadol (co-codamol 30mg/500mg paracetmol) and dicoflenax 50mg used to work when i had neck pain back in october, now i take them for my tendon pain in my arms. It doesn't touch it or help at all, i have a knee op tomorrow but im more worried about everything else and it being something incurable, it's becomming overwhelming.
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