i asked my dad if anyone in my family has even had problems from something like that and he doesnt know of anyone that has. So i am wonderin if it is that where i could have got it from.
Actually, nobody in the family knew for years. I had an uncle who died from hemmoraging and a cousin who had a brain hemmorage. Another uncle was found to have it on an autopsy which is how we all found out what happened to everyone. My aunt has it in her colon which was just discovered and she is in hers70's and had had many colonoscopies before. It would be fromo my mom's side and she never had ANY symptoms at all, ever. But my sis has been genetically tested and for sure has it. So you never know. It affects about 1 in 100,000 people so it isn't THAT rare. I hope you find some answers.
I have to say that your symptoms sound very similar to the ones that I am having right now. I've had a problem going on for over a year- I have these little 'episodes' that will come on very quickly and it's a sharp pain that starts in my upper right abdominal area....mine spreads though and it goes up into my neck, chest, shoulder and down in my arm...all of it on my right side. It goes through to my back, and seems like when all of that pain dies down, I still feel nauseated and my back is killing me. My doc said that he thought it was a fatty liver, but I hate to say I never went further with the CAT scan or whatever because I just couldn't afford the expense. That's been several months ago, but I had to go to the ER a couple nights ago because of another 'episode'. Been suffering with the lingering nausea and back pain for 3 days now, and my hubby is after me to go to the doctor. Anyone have any ideas for how they even treat a fatty liver? Last month I had this back pain and nausea, but no 'episode' and they told me I had a bladder infection...hard to believe I have one again only a month later when I've never had this before...
wouldnt i have to inherit it from a family member? i dont know anyone who has been through this like i have.
tonna -
what were the symptoms your sister had?
I just went back and read your symptoms and they sound just like what she told me. She felt like **** and just hurt right over her liver. Didn't matter if she ate or drank, it just hurt. I don't know what test she had done to see the mass of vessels, and we don't talk much for me to ask her, but it's worth looking into. There's a lot of info on it on line. The thing is, neither her or I have had any symptoms, all I have is the purple dots, and she didn't have them. I haven't been genetically tested yet,too expensive, but i may because my son's nose bleeds more than I think is normal , and that's a common sign.They say you have to have so many symptoms before you are tested, but she has NONE. Just liver pain.
My sister and I don't live in the same city, so I wasn't there first hand, but from what I understand it was just painful. She had been experiencing pain in the place her liver is on and off for a while, then it became so bad they did major tests(what, I'm not sure). She was in the hospital for 4 days and they still dodn't know why she was in pain. I think they thought it was in her head.
Anyway, I mentioned it to an aunt and she said to have her checked for Osler Weber. I had never been told of this(our mom died a long time ago). It can show up in a lot of organs. I have a tiny purple dot on my lip, as does my son, and I have a couple of spots on my hands, didn't realize what it was until then. Could have more inside my body, haven't been scanned. All I know is it is genetic and some people NEVER know they have it. It is symptomless a lot of the time. They checked her out after she told them to look into it, and she has a huge mass of blood vessels on her liver.Nothing dangerous, but that's why she was hurting so bad. And they didn't want to test her because she didn't have any other symptoms like nose bleediing. I don't either. But you could have them look into it. She just was hurting and didn't feel good anymore. It's basically a hemmoraging disease, brain, lung, liver, esophagus, stomach, intestine, and nose. Only most people don't die from it!! Don't worry.
My sister has had pain in liver for a couple of years. We finally learned our whole family has Osler Weber Rendu. She has it in her liver. You should check into it. She had been to many dr's and hospitals. Its a rare genetic disorder that dr's dont know a lot about, you have to tell them. Its basically a blood vessel disorder. It's okay though, nothing too weird. Just check it out on the internet.
I have had been tested and retested on everything. the pain is right over my liver. the hospitals say my liver is functioning normal and it is just enlarged. the pain is becoming more severe and they cant find the cause. it hurts whether i eat food or not. when i get these attacks i feel dizzy, nautious, sweaty, hands tremble, back pain, and i feel like i want to throw up. i still strongly feel that it has to do something with the liver. any suggestions anyone?
Hi Christy,
I was just wondering if you ever had your horomones checked. I am guessing you have at one point because of the period thing, but hormones can cause alot of other things as well.
I would ask to have them tested again.
Ask your Dr. to let you try Nulev. It is a smooth muscle relaxant that is used for many different digestive pains. Some people have their gallbladder removed, but still have pain.