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1765952 tn?1314719881

my 3 year old boy is always ill, any ideas....

Hi my 3  year old lad (one of twins) started to suffer from epilepsy aged 16 months. He has since in the last 8 months been poorly with continuous infections and undiagnosed symtoms.
They are , spiking temps, low SATS 84 -96  Diarrhoea (LASTS between 3 days - 6 weeks) sweeling of legs and poor mobility occassionaly. fatigue , floppy.
he has been admitted into hospital 9 times in the last 3 months and I dont seem to be getting anywhere. I feel as though the staff at the hospital are no longer bothered as this seems the norm for him now, although i know better as his twin is never really ill.
They have diagnosed him with HMS hyper mobility which would make sense due to his legs but I am worried about why he keeps getting so poorly. It scares me as i cant help but think there is something serous going on somewhere but I dont know what it could be or what i can insist on asking for.

On his last admmission to hospital they told me they had found a  heart murmor. the the next day another doctor told me she couldnt hear it, later another said they could??? Part of me wonders if this could cause his sudden fatigued and poor SATS levels, bad circulation (His hand and feet always go freezing cold)

I know i have asked about Chrones and an ESR blood test was done , this came back at 56.
his heamaglobin was 10.5 and i am still waiting on IGE RAST etc,,,, but i have had to push so much to get these bloods done.

Can anyone help me ???? when he was 16 months old he went into a sudden epileptic attack and stopped breathing, i had to perform cpr until paramedics came, Im so worried about my boy,,, but no one seems to listen.
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2112610 tn?1334323365
My brother suffers from epilepsy yet rarely has seizures. He is prescribed with tablets of which he has to take every morning and every night to ensure he doesn't have seizures and the symptoms that the little boy is experiencing. You desperately need to get hold of a doctor and give the little boy a brain scan to ensure that there is nothing wrong internally, seeing as epilepsy is triggered from the brain. I highly doubt the heart murmor would affect this as several people have heart murmors and it does not affect their everyday life.
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1765952 tn?1314719881
anyone??
Helpful - 0
1765952 tn?1314719881
anyone??
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