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Bladder & Vulva Pain
Hi there
I'm 27 yrs old and about 4 months ago I woke up one morning with what felt like a UTI. Standard routine, I went to the docs for some antibiotics, finished the course but still had pain. I went back to my local gp and she gave me stronger antibiotics and after completing that course I was still in excruciating pain. At that time I had frequent urination, stinging and burning while peeing and pressure on my bladder. I returned back to the doc who seemed a bit baffled as my urine tests were all coming back clear- no infection however showing white blood cells. I have been tested for every STD, bacterial and viral infection yet everything is clear. I was sent to a vulva specialist who told me that I have Vulvodynia and that I needed to take Amitriptyline orally as well as topically. I took the meds routinely however I still remained in excruciating pain. Every day varies but the pain still remains. I have severe urethra pain- sting, burning as if someone is sticking a fine wire up my urethra with crawling itching pain and massive amounts of pressure pushing on my bladder. I cry every time I need to wee the area is beyond hyper sensitive with zero respite from this pain. I have had a ct scan that showed nothing, ultrasound on my bladder/kidneys that showed nothing at all.
I saw a urologist a couple of weeks ago who is convinced he will find nothing wrong with the inside of my bladder and that he believes I have damaged a nerve in my pelvic floor area- possibly the pundendal nerve however I have no idea how I would've done that. I have also had irregular bleeding this month. I'm about to start a new lot of pain medication called Sertraline and I take Endone for when the pain gets so bad that I actually feel like giving up. I have been hospitalized twice for this pain and still no answers.
Has anyone experienced anything similar? Could this actually been nerve related?
I'm otherwise very active, I exercise 4 times a week, yoga, surfing and I run my own business which is pretty scary that I have to take time off for this debilitating pain.
Any advice would be such a huge help, I'm feeling beyond desperate.
I'm 27 yrs old and about 4 months ago I woke up one morning with what felt like a UTI. Standard routine, I went to the docs for some antibiotics, finished the course but still had pain. I went back to my local gp and she gave me stronger antibiotics and after completing that course I was still in excruciating pain. At that time I had frequent urination, stinging and burning while peeing and pressure on my bladder. I returned back to the doc who seemed a bit baffled as my urine tests were all coming back clear- no infection however showing white blood cells. I have been tested for every STD, bacterial and viral infection yet everything is clear. I was sent to a vulva specialist who told me that I have Vulvodynia and that I needed to take Amitriptyline orally as well as topically. I took the meds routinely however I still remained in excruciating pain. Every day varies but the pain still remains. I have severe urethra pain- sting, burning as if someone is sticking a fine wire up my urethra with crawling itching pain and massive amounts of pressure pushing on my bladder. I cry every time I need to wee the area is beyond hyper sensitive with zero respite from this pain. I have had a ct scan that showed nothing, ultrasound on my bladder/kidneys that showed nothing at all.
I saw a urologist a couple of weeks ago who is convinced he will find nothing wrong with the inside of my bladder and that he believes I have damaged a nerve in my pelvic floor area- possibly the pundendal nerve however I have no idea how I would've done that. I have also had irregular bleeding this month. I'm about to start a new lot of pain medication called Sertraline and I take Endone for when the pain gets so bad that I actually feel like giving up. I have been hospitalized twice for this pain and still no answers.
Has anyone experienced anything similar? Could this actually been nerve related?
I'm otherwise very active, I exercise 4 times a week, yoga, surfing and I run my own business which is pretty scary that I have to take time off for this debilitating pain.
Any advice would be such a huge help, I'm feeling beyond desperate.
Not all infections test positively. I see a Prof who specifically treats UTIs and if there are white blood cells there is infection. PM me if you want more details.
Just to let you know, this is a prolapse forum so you may wish to direct your question to a bladder forum as well
Just to let you know, this is a prolapse forum so you may wish to direct your question to a bladder forum as well
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