I have had bladder infections since I was a young child. I had a hysterectomy at 24 due to serious endometriosis. In my 40s I was having bladder infections still, but also constant urination and leaking. In the past 5 years, I have lost total urine control at least 3 times. I mean the floor was totally flooded, not just a little discharge. This happened with no warning whatsoever and was horrible to say the least. That happened to me a couple of times when I was a child. The doctors told me during the recent times that it is because I had infections. I thought that was weird.
The urodyn tests have been run at least twice. I have been told I have neurogenic bladder and overactive bladder. I am on several medications and I am going through physical therapy for the pelvic floor. It isn't too hopeful.
Should I get more tests of some type? Are my kidneys possibly involved in any way? A suggestion has been made to do something to me and have me totally catheter, as is sometimes done with MS patients. I am MS possible.
I am miserable most of the time. I never know when I have a bladder infection until my back or legs hurt, I can't tell otherwise.