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Avatar universal

Penile pain, burning and itching genitals

I am a 28 year old male. The symptoms I am about to describe began suddenly around August 2005. At first they were chronic; lasting all the time for about 2 weeks, after which I would be symptom free for a month or so. Gradually over time, the period in which I sufferred the symptoms lengthened and the period for which I was symptom free shortnened, to the point where I would say for the last 9 months I have sufferred these symptoms 24 hours a day, 7 days a week.

My groin area constantly feels "clammy" and sticky, much like you might feel after a long run. My genitals are constantly itchy in various places on my penis, testicles and pubic area. When I sit down, I experience a burning / prickling feeling in my groin, buttocks and thighs. The feeling is constant but is not generally felt when standing up or lying down. Minimal alleviation from the burning feeling is gained if I sit on a donut shaped cushion, but it does not help much. I also experience sharp stabbing pains in my penis from time to time, which was in fact the very first symptom I felt when this all started happening.

More recently now I do not seem to have the same pressure when urinating and I can't seem to squeeze everything out like I used to. No matter how much I shake afterwards, a little more urine always seems to drip into my pants afterwards.

I saw a urologist very early on in the picture; he performed a cystoscopy and prostatic massage which did not show any abnormal results, however it was likely that when he performed this it was in between times where I was sufferring symptoms. I also took a couple of courses of Ciprofloxacin which did not help at all. I have also been checked, re-checked and cleared on any STDs. I should also mention that there are no visual symptoms; sores or rash etc.

I have seen a neurologist who has tested me to the limits of his field of expertise, including MRI, nerve conduction studies, a lumbar puncture and various blood tests. He was unable to find a neurological reason for my symptoms.

I am now going to seek a second opinion from a urologist given the progression of my symptoms over time. In the mean time, if anyone can relate to these symptoms and offer some kind of advice or guidance that would be much appreciated. I am sufferring from this 24 hours a day 7 days a week and it is destroying my quality of life. The most frustrating thing is that as yet no one has been able to give me a definitive diagnosis of what this is.

Please help
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Avatar universal
I have some similar symptoms... Burning, pins-and-needles, and some occasional sharp pains. Like you I have been through every medical test known to humankind... Finally the doctors said "I don't know... It could be chemical, genetic, or a past infection... You are making it worse by worrying about it." In the end my neurologist prescribed Cymbalta for the sensations. I have only been on it for a few days, but it seems to help.
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MEDICAL PROFESSIONAL
Hi,

It seems that you have been under several intensive tests already and all these have been negative. Do you have any known allergies before? Have you been assessed along this line? Although you haven’t mentioned of a rash or any lesions in the area, an allergic reaction to some unknown trigger may be a differential. Also, this may sound like a sensory problem. An EMG however was done and it was negative (is this correct).I understand this may be frustrating in your case and I agree that a second opinion may help.

Was there any history of trauma or injury to th area?

Any prior surgery or instrumentation?

Engaging in alternative forms of therapy such as acupuncture and physical therapy may also  help alleviate your symptoms.


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Avatar universal
Hi Vanessa,

Could you comment more on your thoughts about allergies in this situation?

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Avatar universal
MEDICAL PROFESSIONAL
Hi,

Allergic dermatitis and contact dermatitis are differentials in your case.Itchiness and weeping excoriations may be associated with dermatitis. Some triggers like soaps,lotions,creams, clothing that are in constant contact with the area may trigger certain reactions.Allergic reactions may present with a burning or tingling sensation.Have you been assessed along this line?

Also, you have mentioned of difficulty initiating urination ( is this correct?).You may discuss with your physician chronic prostatitis and prostatodynia.These conditions may present with absence of bacterial load in the urine but may persistently present with discomfort in the form of burning or pain in the groin area.

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Avatar universal
I am a different poster from the OP, but similar symptoms: chronic unexplained burning/tingling/pain in thighs, buttocks, and genitals.

Is it possible that there was a one-time allergic response that caused this neuropathic pain? I had contact dermatitis before this started at the bottom/back of my thighs.
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...help... :)
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Avatar universal
I can certainly relate to your frustration as well as your symptoms. Mine began nearly 3 months ago. Pain sometimes burning pain in my thighs, genitals. Itching as well and that clammy feeling. For me though this all began exactly a week after having sex. I have been to my family doctor and 2 urologists. Have been tested and retested for STD's. None present. Was curious as to whether you had seen any folliculitis(infected hairs) anywhere below the waist. These can somtimes be painful. I do suffer from this. Every winter it seems to creep up. Just a thought. I am headed to a neurologist myself soon. As I am now feeling pain in the middle of buttcheek. Sciatic maybe. Tingling down my leg to my feet.
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Avatar universal
I have had a similar situation too only mine started about a month after a sexual encounter. I have been to two urologists so far and nothing has changed. Most of them seem to refer people to neurologists when they fail to diagnose these problems. And i have just been refered to one last week, however, i am not going there as I don't think my problems have got anything to do with nerves. It's either an allergic reaction or underlying infection that cannot be easily detected.
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Avatar universal
I have (for the past six years) suffered with a combination of all of the symptoms described by "confused 1234", "pandew" "scared _half_to_death" and many others on the net i.e. burning/itching/clamminess/pain in groin area (inside top of thighs, scrotum & penis). Intermittent intense itching and pain in the penis and testicles were also early symptoms, but occur less frequently these days.  Also less frequent of late is a feverish feeling, often accompanied by a dull ache in my lower abdomen.  

Sitting on hard chairs aggravates the symptoms, especially the burning, clammy sensation in the upper thighs and scrotum (sometimes it feels like a blow torch is burning my scrotum, although skin remains normal in appearance).  Possible related symptom is a slight but constant numbness in my right thigh above my knee and an occasional dull pain in the inside of my right thigh.  No discharges, sores or rashes ever presented (other than for an occasional pimple).  All the various symptoms seem to occur cyclically, with brief symptom free periods when I feel very euphoric.  

As these problems developed a few day after a sexual encounter, I was initially treated with a range of STD treatments (antibiotic, parasitic and fungal) even though all tests were negative.   My prostrate is normal and annual full blood tests show no abnormalities.  

My doctor has given up and says it’s all I my mind - even prescribing  tranquilizers – but all to no avail.  

I have resigned myself to having to live with this debilitating situation – but given the large number of people that present with very similar (if not identical) symptoms, I can only conclude that it is a very real illness - perhaps neurological.  

Lastly, knowing that I don’t suffer alone, is somewhat therapeutic and would welcome further discussion on the subject.

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Avatar universal
Thanks to all who have posted for your comments. As Viroman has said, it is a little help to know that others are suffering similar symptoms.

I have given up on seeking medical help on this for a while and so have resigned to live with the symptoms in the hope that one day they will resolve themselves.

I find I get some relief from the pain of sitting down by sitting on a donut shaped cushion so there is no pressure on my perenium.

I have also considered that there may be some infection of the pudendal nerve. If any of you wish to consider this check out www.pudendal.info

All the best
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Avatar universal
MEDICAL PROFESSIONAL
Hi,

This burning and tingling pain in the groin ,thighs and buttocks area appear to be nerve related.

A primary differential at this point will be pudendal nerve neuralgia. Other differentials will be genitofemoral and ilioinguinal neuralgia.

Do you have any previous abdominal surgeries?

Do you engage in exercises like cycling exercises?

Pudendal neuralgia is usually associated with frequent cycling exercises. The pain may be aggravated by sitting down. The pudendal nerve supplies the genital and perineal areas and in your case these forms of neuralgia are all to be considered.

I suggest that you seek consult with a rehabilitation  medicine specialist for further evaluation. Aside from a urinalysis and urine culture as well as a prostatic secretion culture, you may benefit from physical therapy.

I do not think there is an association between the dermatitis and the burning pain at this point. Unless the previous rash was a herpes zoster or viral infection , then we may be able to find a connection between the two.
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Avatar universal
I agree that my symptoms are nerve related. I had VERY extensive blood work and imaging studies. However, my neurologist has been unable to find a cause through blood tests and MRI.

I actually do a fair bit of stationary biking in the gym. However, given my current condition I do not go to the gym often anymore. Interestingly enough, I have not been able to fully recall the timeline over which my symptoms developed. It may have started with the rash. However, I also recall some minor burning in my abdomen, on top of my thighs, and some odd penile sensations (including some difficulty with erection/climax) prior to the rash. Concurrently I was working out pretty hard on the bike. After the rash things heated up pretty quickly, no pun intended :)

I have thought about the rash:

(a) It was on both thighs which I understand would be very odd for Zoster.
(b) I saw a dermotologist within 2 days. She did not suspect Herpes Simplex or Zoster. I have asked her about this several times during follow ups.
(c) I have tested negative for HSV2 five times over the last six months (4 Herpes Select and 1 Pockit/Biokit). However, I tested positive twice for HSV1 via Herpes Select. The STD forum specialists believe it to be unrelated. However, I am suspicious of HSV1. Thoughts?
(d) It is possible that the rash was fungal, bacterial, or viral. However, it was treated successfully with a steriod creme within 1 week.
(e) I may have experienced something similar in graduate school 10 years ago. During the same time frame, I had a wicked case of prostatitis that lasted for months and resisted an awesome array of antibiotics.

I am convinced that the neuralgia is sensitive to stress. Cymbalta relieved the symptoms quickly but also caused side-effects :( I will consult with a urologist and a different neurologist. Your suggestion above regarding cycling is a new angle to explore. Thank you!
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Avatar universal
I've been suffering from the same exact symptoms for the past 4-5 days now. It’s not fun at all.

Two months ago I had my first cold sore, HSV-1, on my lower lip. This made me worry about getting HSV-1 on my genitals, which is possible. 2 Weeks ago I had an ingrown hair on my Penis and that resembled a Herpes blister in the first stages so I had it checked out. You can tell that it’s an ingrown hair follicle because most of the solid material is located under the skin unlike herpes. This ingrown hair caused some pain but not much that was noticeable and now as that is almost healed I have this burning/itching/clammy/painful feeling 24/7.

I had it checked out as soon as I noticed it wasn’t going away and my doc said to use soft soap (Dove) and let it heal on its own. She didn’t relate the ingrown hair to the pain and said if I was going to have sex to use a condom.

I guess that’s all the input I have on this. This is an annoying feeling, but it’s nice to know that I’m not the only one.

Oh and cycling dude, I’d keep it up, I bike and run everyday it’s nice out. You body heals faster when you eat healthy and exercise. I wouldn’t work out to exhaustion though.

Good luck guys and I’ll update if this goes away.

-coffeeguy
23
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Avatar universal
I am 36 and seem to have this same issue for the last two years. I was first tested for STD's they came back negative but I still have this burning itching feeling on my buttocks, testicles and shaft. The weird thing  is I have this sticky secretion on one side of my shaft and they gave my cream for it but it never seemed to go away long with a 1/2 long gash that healed but is very tender along with where all the secretion is also. When I have sex it makes it worse and hurts light hell. I am going back to the doc's again but no one’s knows what the deal could be. If anyone gets any ideas please post. Thanks for all your help here.
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Avatar universal
Wow, I didn't realize there were others out there going through the same type of thing.  I've been experiencing the same types of symptoms for a few months now, and feel like I'm losing my head!  I've had two negative type specific HSV tests, both of them more than 8 months out from my last sex, I've been to two docs who've told me not to worry about herpes and that's about it.  The tingling and crawling feeling with me is intermittent throughout the day and in my scrotum, perineum, and definitely my inner thighs, and I have occasional pinching feelings in my rear upper thighs and butt.  Everything seems to get a little better when I stand up or move, and all of it seems to show up for a week or two and then go away for a month or so.  I guess I should make an appointment with a urologist to check my prostate, never thought that could be the culprit, since I'm 34.  If anyone has had any luck with a specific diagnosis, please post!
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... should also mention the occasional pain in the head of my penis, and the fact that the more I think about it, the more I remember having a hard time getting rid of all of my urine before zipping up.
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Hi, i have noticed similiar symptoms for 5 months now. Penile pain, rectal itching and post void dribbling.  I agree the most frusturating part is not being able to find a clear diagnosis.  It does appear to be getting worse, any thoughts?  Has anyone else tried the antibiotic Ciproflaxon? My urologist wants me to try that for Prostatitus.  Im currently trying a Paragone cleanse, has anyone used this product?

Thanks,

Job
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Avatar universal
I have been going through similar symptoms (not exactly) over the past few weeks.

I just had blood work done about a month ago. Came up completely fine and clear of anything. Last time I had sex was two years ago (pathetically enough). I masturbate regularly, and never rough. Always had protected sex.

On the left side of my penis, basically right where the shaft meets the scrotum, it tingles/feels prickly.. but not always. Just if I am sitting and shift my position. It's mainly because the flaccid shaft is sticking a little to the scrotum... clammy-ish feeling.

I, too, have no visual indicator of anything wrong. No sores, no irritation or redness. Looks completely normal. This began about a week after I shaved my genital area (I do this regularly, about once a month).

I plan on seeing a urologist, but I honestly don't think anyone will be able to tell me what's wrong, especially since you guys are all going through the same thing.

I think my stress about it is making it stick around (I know they say to not worry about it, but if I went 33 years without any abnormal feeling in my penis or testicles, and then all of a sudden I get this weird feeling in it, how can I keep myself from worrying about it? This is my manhood we're talking about here!).

If anyone has any further insight, please let me know. I bookmarked this page and will watch for any responses.

Thanks for reading,
Healthydude76

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Oh, and I have no problems urinating... no pain, no frequent trips to the bathroom.

Also, when I masturbate, it doesn't seem to bother me that much or hurt (especially if keep my grip around the tip, which is what I usually do).
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Avatar universal
Hey,

I'm experiencing all of the same symptoms and after weeks of antibiotics it's down to chronic prostatitis and 'maybe nerve issues' - so they're hitting me with pain management drugs (lyrica) but no solutions.  

Has anyone had any success in sussing out the issues?

Going a little insane myself and the anxiety of the unknown is tough to deal with.

Any info would be great appreciated.

Thanks.
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Here I am doing a google seach and I found this thread. These are the exact symptoms I have been experiencing. THe feelign of icy/hot, menthol, skin rub burning sensation in my thighs, buttocks and lower back and sometimes calves. This all started after recieving unprotected oral sex from a person who I found out later was HSV 1 & 2 positive. I have had this feeling for almost four months. I have taken three std test everything including HSV 1 & 2 negative and I even took a Western Blot herpes test. I just took another one at 15 weeks post eposure. I am absolutely convinced that this has something to do with this feeling. I to have been unable to drain all my urine. I can feel drops still in there. I did se a urologist and they said the prostate was slightly enlarged... Nto sure what that means.  


Has anyone thought that this just may even be related to HSV 1 genitally. It is so annoying and dehabilating. It is driving me crazy. I just want a straight answer. Has anyone tried any BPH medicines, Herpe antivirals, etc... it appears anitbiotics are not curing or helping this. Alos anyoen look at homeopathic remedies?
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Avatar universal
Okay, I have the same symptoms which have been driving me nuts. Literally! It all started about a week or more after protected intercourse/oral.

Started with burning in groin/thigh area. A feeling as if something was....inside my groin...

Then it escaled to electric shocks like nerve pains in my Legs/Lower Back/Buttocks/Feet and sometimes even penis.

Been to doctors lots of times and they don't know what it is and say it's not related to Herpes.

They told me it's all in my mind and treated me for anxiety and prescribed Lorivan. I suggested blood tests for HIV and all STD's and they all came back negative.

It's like nobody believes my pains and I've spent LOTs of money going to these doctors.

My next option is to go see a Neurologist because I believe all these pains are nerve related.

And it's been going on for almost 6-7 weeks and only seems to be getting worse.

If anyone can offer some relief please please please help us out. Before I sleep at night I pray that when I wake the next morning these pains are gone.

Help.
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Avatar universal
I have the exact same symptoms mostly on my left side. Penis burning feeling (left side mostly), left leg burning feeling, left arm, sometimes left side of chest and left side of face. This started last October 2009. No way would I have thought that I would still have still. Sometime it goes away, or at least I feel better for a day. The weekend are usually the best (much less sitting, more activity). I'ts not there in the morning when I wake up but by the time I get in my car and drive it's back. The only visual thing I notice is a slightly raised rash/welt looking area just above my left cheek bone. I notice a lot of old postings on this subject and never quite know what has happened to these people. Does this eventually go away so they don't post anymore?
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Avatar universal
I am suffering with similar conditions like many others here for more than 3 moths. I had similar problems 2-3 times in past, but after 2 weeks the pain went away. The current case is more difficult I guess, because dull ache is settled down in right side of my penis for more than 3 months. I tried antibiotics, hot baths, antidepressants, but nothing works good enough. There are bad days when I really suffer and there are good days when things seem to get better. My guess is that it is something like oversensitisation of pelvic nerves and muscles, pelvic myoneuropathy. Treatment is difficult,  my urologist suggested long lasting local anestethics shot in the pelvic region, I will keep you informed later.
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