Vitamin D Deficiency ?

[pains47]

Can a Vitamin D deficiency cause this much pain? Went to the doc for muscle pain & weakness with increasing shooting pains to the point of affecting everyday functioning.
Blood test came back low in Vitamin D. Result was 11, (should be 26 to 55). Other results OK. Cervical Spine & lower back MRI
OK. Treatment is 50,000 units of D per week for 4 weeks and thereafter once a month. Been on it for 4 months. Feel at times like I was in accident.Have researched on the net, and still find it difficult to believe that this can cause this much suffering. Anyone familiar with anything like this?

[JackieCalifornia]

Well, have you considered Lyme disease?  Your symptoms sound similar, though Lyme affects everyone who has it differently.

There is a Lyme Disease Community here on medhelp; you might go visit and see if you find any help.

There seem to be a lot of people with Vit D deficiency, but I haven't yet heard anyone say their doctor treats it as a symptom of an underlying condition instead of a thing in itself.  

For instance, if you were limping when you walked, wouldn't a good doctor want to find out WHY you were limping and fix it, instead of just giving you a leg brace and telling you you'll be fine now?

How can there be such an epidemic of Vit D deficiency?  Is it that drs didn't used to test us for it and so didn't know we were deficient?  Any ideas out there?

[Jing08]

After two years of searching for what ails me, I was diagnosed with Vitamin d deficiency.  I am hoping, after reading letters in this forum, that Vitamin D supplements will put an end to this.

I experience:  constant lower back pain, hip pain, tingling in feet, legs and hands, a heavy feeling in my upper arms, stiff neck with pain, a burning/tired feeling across my shoulders and particular difficulty rising from a chair or bed and trouble ascending stairs.  All of this is at its worst in the morning.

Would you describe how you feel?  Thank you.

[briarosa]

My last level of vitamin d was 6. My doc said it`sw the lowest # he`s seen on any of his patients. I am also B-12 deficient. I have Crohn`s Disease and now newly diagnosed ankylosing spondylitis. Which one caused the D defiency??? I also love the people who comment we don`t get enough sun. Sorry but that is not the only cause of D defiency, it`s plain ignorance to say we don`t get enough sun. I get plenty. Then why am I B-12 defienct too??? and my potassium get s low??? not enough sun, huh, lol . No it`s underlying diseases that also can cause the problems. I have so many things wrong with me and so many symptoms it`s ridiculous, lol.

[SarahJ146]

Also - may I ask how did you know to get tested?  Were you in a crazy amount of pain and did you just have a baby?  Looking back I think I was slightly Vit. D deficient before I got pregnant, just cause I was so tired all the time but I am shocked at how much pain this can cause.  It blows my mind because it affects everything you do.  Did you have a tremendous amount of pain?  It took 3 doctors to figure out what I had and to even think of testing my Vit. D. levels

[SarahJ146]

Thank you.  Actually - my endo. is going to test me for that I think during my next bloodwork.  I don't know why she didn't do it yet, maybe she's waiting to see what my Vit. D number turns up to be in a few weeks.  She did mention it though and said that it's very rare.  I have been taking over the counter supplements daily - 2300 IU's a day but since I stopped the 50,000 IU's per week about 6 weeks ago, I have contuned to feel worse and the 2300 helped a little, but is not sustaining.  I know my Vit. D levels have dropped cause I can feel it.  I just recently (yesterday) started taking 3300 IU's daily to see if that helps and/or makes any difference.  Cause obviously the 2300 isn't cutting it.  I know that you can take too much Vit. D but that it has to be a crazy amount daily over a long period of time - right?  Thank you for responding.  I woke up today feeling better, less stiffness but weird pain only in my right foot - it's so annoying.  I will check for the gluten-free stuff.  

[Lenore38]

Maybe you have Celiac's Disease.  I was diagnosed with Celiac's in late August of last year and have recently been tested and put on Vitamin D 50,000 UIs for 12 weeks; I then have to take 1500- 2000 a day afterwards.  The problem being; once I take the over the counter supplement; I have to make sure that it is also gluten free - alot of your vitamins and pills are NOT.  Have your GPo or Endo check you for Celiacs.  They can do a blood test and then confirm with a biopsy.  It is controlled with a STRICT diet.  But you would have to change beauty products, toothpaste, shampoos, the way you eat - etc.