I just started on 15mg of topomax (topamax) April 22nd. I am supposed to increase to 30mg as of the 29th of this month but after reading these posts I just want to stop this medication. I was prescribed this for exersion headaches. The Neurologist mentioned possible side effects such as tingling hands and feet and kidney stones but NEVER mentioned the consequences of coming off this medication... Quite frankly scaring the crap out of me reading all this stuff. Now I don't even know if I should stop it now.... I currumbaa!
I just started 2 weeks ago taking 25mg at night the 1st week and now 25mg twice a day. I was prescribed topomax (topamax) for migraines and weight loss. I totally felt the same way you did! I was super scared to take it after reading all of the possibly side effects. I felt the same way when the dr. Prescribed me Wellbutrin for seasonal effective disorder after reading all the possibly bad side effects for that too. But, I broke down and finally took the Wellbutrin and it worked wonders! So, I talked myself into trying the topomax (topamax) hoping for the same results. Fingers crossed!
So far all I've had is the tingling in the hands and feet. I've lost 3lbs and soda and beer taste flat. Which kinda ***** cause I like a cold beer on a hot summer day. I'll keep you posted on my progress. If you stay on it, will you keep me posted too?
I am kinda of nervous too from taking this medication after reading all these post.. I just started my first 25mg today for weight lost . A little nervous and paranoid..Dr started me on 25mg suppose to increase to 2 at bedtime ..but I'm super nervous bout the side effects as confusion memory loss. How long does these side effects suppose to last?
My daughter has just started taking Topamax for her Headaches not for weight loss she has Seizures but she is having soreness in her rib area and wondering if anyone else has had this issue it is not listed just wondering if possiable ..
This is week 4 for me. Only side effects I'm having are the pins and needles feeling in my hands and feet. I read in one of the other post to eat bananas and it helps. I started that a week ago, and it actually did. So if u get that side effect try eating a banana. I'm still at 50 mg only down 8 ponds. So my Dr. Upped me to 75mg for 1 week, then 100mg after that. I haven't been paranoid, or confused nor have I had any memory problems. But, I've heard some of those symptoms might happen at a higher dosage. I'll keep u posted on my progress now that I'm upping my dosage.
I have taken Wellbutrin for13 years my 8 years with no problem. I went to a pharmacy they sold me my generic Wellbutrin manufactured by teva I was sick depression worse couldn't get off the couch. New something was different I found out that they changed manufactures I went back and had them find me some of what I had been taken till I could get to the bottom of what was going on! I have just had a similar problem with Wellbutrin manufactured by venture.ended up in hospital same as above severely debressed couldn't snap out of it till they started me on new manufactiure
I was on Topamax for nine years for migraines. My dosage was 100 mg twice a day. Initially it reduced my migraines from 10-15 per month to 3-5 per month. I lost about 15 lbs initially. Over the years my weight fluctuated but I was able to stay around 150lbs. Side effects was memory lost and tingling in feet/fingers. I went off Topamax about three weeks ago because I was losing my hair and unbearable ITCHING! Now the itching has subsided but in three weeks, I've gained 10lbs. I should mention that I am 57 years old and it's hard for me to lose weight. The weight gain will not stop. If I look at food I gain weight. Headaches seem to be coming back also.
This gives me some hope. I herniated a disc april 2013 after picking up my toddler to put her in a tub, after a year of horrible a nerve pain I finally had a lumbar laminectomy. I felt great. However, not even a month after the surgery I slipped, hard and fell flat on my butt and reinjured my back.
However, I didn't reherniate my disc, I only had a disc bulge. And because I am only 29, the surgeon would not do another surgery telling me I was too young for a fusion, which was the only surgical treatment that could fix the bulge. After getting a 2nd and 3rd opinion, I was told the same thing.
I have gained 30 pounds since then. I have done a round of prednisone, tried gralise (a form of gabapentin), nortriptyline, Lyrica, celebrex, meloxicam, diclofinac, etc. Everything made me gain weight, and nothing helped.
Finally I said, lets try topamax. I was on topamax years ago when I was getting headaches, and I got off topamax after a while because my headaches went away and after I went off the topamax the headaches did not come back. So I have only been on it for a few days now, and knowing that it has helped you with your back pain gives me hope that it will help me with mine!
I've been taking 50 mg of generic topamax for about 4 months as a mood stabilizer and also to hopefully shed off weight. I lost 15 lbs. which is a good thing since I was weighing 200 lbs from being on other meds. For about two weeks now, I've been on 100 mg it seems like I'm eating, eating eating! I also weighed myself and and I gained two pound in the last week.
I was told to give my body time to adjust to the 100 mg, but I'm gaining weight back and I'm wondering if this has happened to others when taking a higher dose of topamax? I thought for sure going up to 100 mg would help me lose some more since I seemed to have stopped losing weight after losing the 15 lbs on the 50 mg.
thanks in advance for any advice.
Actually, I monitored my migraines vs barometric pressure for a year and I have found a HUGE link (I live in MA). I've had chronic migraine since I was 10 (I'm now over 40) and I've done a bazillion different things. I started noting pressure changes on a whim years ago when I got a weather station as a gift for Christmas. When there's a quick change in pressure or the pressure goes below 990mb I feel like my brain is trying to crawl out of my head. 994, I'm okay, 992 I'm starting to feel uncomfortable. It's a different threshold for everyone. I can always tell when it's started raining during the night, or a vicious thunderstorm is on the way.
My Pain Management Doctor put me onTopamax several years ago for occipital migraines. It was horrible! I ended up with nuropathy in my left arm and the brain fog was so bad I couldn't spell simple words! Then I became completely paranoid! I thought I was going crazy! My migraines did go away and I lost 30 pounds but the side effects were so extream! Please do your homework before taking this medication! My Doctor has it on my allergic list along with morphine and opiates. I wish everyone pain free days and nights!
I too did the same thing. Was on Topamax for years for migraines. It helped but I too thought it wasn't good to be on a drug for so long. I went off and the headaches returned and the weight also has been creeping back. I have heard the second time on it doesn't result in weight loss. Have you had success? Also, did you have hair loss?
Hi MarLen55 I'm on the topoiramate 50mg: two week before I stared I was no the 5-bite diet, so I had a head start. I'm going to stay on the 5-bite and not take the pill everyday I started in may of this year at 197lb,with the 5-bite, and the doctor gave me the topiramate 50mg on the 26th of june , and now july 2014 and I I'm 168lb .
You are truly refreshing! Your honesty, sense of humor and obvious knowledge of this drug was a joy to read. Kudo's for giving Giirrll88 credit for taking the time to educate us all. Good luck with your weight loss and also for I commend you for being a care giver. As a lung cancer survivor, I know that there is not enough credit given to the care givers..I believe sometimes it is hardest on them!
Thank you for being so understanding and kind. I do try to give all the info I can but sometimes my delivery is harsh due to my frustration.
I really appreciate that you took the time to thank me - it's not something that I expected. Many folks want to fight with me over snarky things I've said. They miss the fact that I've basically translated all the physician's prescribing information into normal human language.
I'm not anti-Topamax. I'm not even completely against using Topamax for weight loss. My issues come because most doctors don't explain the pros and cons. When doctors don't tell folks about the possible bad side effects then the patients have no idea what to look out for and that irritates me to no end. Honestly, I feel that it is my duty to give out the information that I have. If I can provide information that helps even one person then I've served my purpose. When I read a post saying that someone tried bananas for the tingling and it worked - well, it just makes me stupidly happy. :)
So again, thank you so much for understanding what I'm trying to do here. You've just make my day!
I have been fighting Migraines for the last 6 years mostly caused from stress from work. When I was dx with Migraines I was taking a sub-lingual pill called Maxalt (this does work) you have to take one tablet and place it under your tongue as you feel a migraine coming on. It will help lessen the pain with the migraine or sometimes will stop it. I had great luck with that medicine. But I wish the manufacture would just change the taste of the pill, its fast dissolve and strong peppermint taste. Sometimes it can cause you to become nausea, I have medicine for that Zofran works great.
I just starting Topamax for my tension headaches. I noticed in the last month that the tension headaches are just as bad as my Migraines. I am currently taking 50 mg.
My question is are you taking any other Migraine medicine with your prescription of Topamax too? If you haven't tried Maxalt, I would try asking your family doctor for a few samples or 30 days to see if the medicine works.
I have been on Topamax for YEARS. After about a year, I was increased to 100 mg. It was at that point that I experienced weight loss. I was trying to lose weight anyway and it became easier and I didn't put it together at first that it was my increased dose. That was about 8 years ago. Fast forward. I gained weight due to LACK OF ENERGY. I am tired all of the time. I moved; changed insurances. I was off my meds for several months. Headaches returned. Finally got insurance. Got meds. Getting back on Topamax did not help my weight loss. I am currently at 300 mg a day (split at 150 2x day).
The only other side effect I have "for sure" is the tingling and I experience that at each time my dose was increased. Otherwise, now it is only when I stand in one place too long, my feet will tingle. But no more luck on the weight loss. I am losing weight now, but it is no thanks to this meds. However, I found this post because I was researching still looking for why I'm tired all the time. Wondering now if it is this medicine ... being on it for so long.
I would like to hear more from you about the 5 bite diet! I had the gastric bypass 14 years ago and put on Topomax (topamax) 8 years ago for migraines. I lost 35 lbs and then quit taking the topomax (topamax) cause of cost at the time and gained the weight back. Now I am back on them and the weight is not coming back off. I need to get the weight back off HELP!! Can you e-mail me any information that will help me
I have been on Topamax for awhile, none of it was to help with migraines. Mine was prescribed for seizures. The first dose I was on was 100mg twice a day and and I lost 70 pounds. Then I got put on lamcatal which didn't work for me and gained it all back. I am back on Topamax the doctor put me 200mg twice a day but just recently changed it to 100mg in the morning and 200mg at night, since I was taking a total of 400mg before. With the 200mg twice a day I ended up aggressive behavior toward my loved ones which isn't me. Just got dose changed two days ago so haven't noticed any changes yet.
My doctor just put me on Topamax a week ago. He added it on to the Lamictol I take for my Seizures. 50 mg 2x day. I have had the worst bloating, I feel like (and look like) i swallowed a watermellon. I have gained 6lb even though I have totally lost my appetite and have barely eaten anything! have the bad diarrhea and feel dizzy and have shortness of breath! So does anyone know if this only temporary?
I know what u mean,,,I dealt with migraines all my life n I went to a dr n she gave me topamax n it worked great...I took it at night n woke up headache free....but juss like most ppl I didn't know u cud lose weight from it,,I have only been on it for maybe 3 month n lost 30lbs n like some ppl on here I have to force myself to eat but ALSO thirsty for TONS N TONS OF WATER...I use to drink tea but now it is water all the time,,but now I have to go back cause they said I lose weight to fast n they r worried,,but hope everything works for u,,cause they do work on my headaches n it feels good for once to wake up with no headaches,,ooh it's better if u take them at night time cause it works better n ur not as tired during the day when u take them during the day,,hope tht helps u....
I came here to find information about Topamax before I decided if I want to take it for weight loss. In the past I had been successful at losing weight on weight watchers. Over the last five years I have gain 50lbs and nothing I do diet wise has help. I lose about 4-5 Ibs the nothing more. I become so frustrated and embarrassed about my weight. I used to have migraines when I was in my 20's, but I was never prescribed anything for them. I just suffered through them. Taking Tylenol or any such OTC medication even touch the pain, which I'm the rest of you know. I heard about Topamax from a family member that was suffering with migraines. He was losing weight also. So I ask my doctor about trying it for my weight loss. I can't taking any of the approved weight loss medication because I take immunosuppressant drugs that would not absorb correctly if I took the weight loss meds. So I am hoping for success with Topamax.
Hi! I noticed your post was from February and I would love to know if you have lost any weight in the past 6 months. I was on Topamax for 10 years when I tapered off due to myself being afraid of just taking the drug for so long. I am about to start back taking Topamax and although the weight loss alternative is not my reason for taking the medication, it certainly is a plus. I would love to know your experience the second time around.
I have been on Topamax two different times and NEVER experienced ANY weight loss from it. I don't know if I'm just one of the unlucky ones that doesn't get to experience that side effect (I seem to get mostly all of the bad side effects from my medicines though) My Dr just prescribed it again. I'm hoping the 3rd time's a charm and I see some weight loss this time, I've gained 30 lbs in the past 6 months or so and can't get even a pound of it off so far by counting calories and eating healthier.
My slim daughter was prescribed Topamax for migraines and said she lost 10lbs over the course of several months. She had to stop taking it though because she could think straight on it. The "Dopamax" effect. Her migraines came back so a few months later she tried it again and said the 2nd time around she had NO weight loss from it. Eventually she discontinued it again due to the "stupids"…….
I just started Topamax 100 MG for weight loss from taking and gaining weight from lithium. I haven't experienced any side effects that you all are mentioning. I have lost about a three pounds but was wondering how fast does the weight really come off. I am getting mixed feedback based on everyones posts.
I was given 50mg for weight loss. I have only been taking it for a few weeks and the only side effect I have noticed is carbonated beverages taste flat and have no flavor. Other than nothing, not even weight loss. This was a my "test" dose to see how I did. So my I feel the dr will most likely raise it to 100 mg.
Please keep me informed on your progress maybe we can help each other thru this process.
I am a RN and let's just start by saying you would probably never take Tylenol or any pain reliever if you read the label. All medication has the potential for side effects. Medication, if you choose to go that route, is there to relieve your symptoms, and sometimes cure disease. There are many good drugs out there. And Kudos to you for doing your homework. If you suffer from migraine, I hear Topamax is a great product for relief. It does not come without side-effects, but keep in mind, most medications have them. Know your body, talk to your doctor, and follow ALL of his/her directions to the letter. Topamax is prescribed off label for Binge Eating Disorder. This helps control the number of times per day a binge eater "binges" and also helps with weight loss. Keep in mind, not all binge eaters are over weight or obese however. BED is a psychiatric disorder, much like bulimia and anorexia, except there is no purging or laxative use. If you think you may have an eating disorder, please, please, please see your provider or someone who specializes in eating disorders. So no judgement on the use of medication for weight loss. Sometimes people need help to get the weight off and relieve their hips and other joints. The dosage of Topamax for weight loss is much lower (25 mg x2 per day I do believe), and should only be used for a short period of time. Pills are not a magic bullet for weight loss. Some of us have brain chemistry issues contributing to our weight, and may need pharmacological help, but we also need healthy nutrition, exercise, and maybe even counseling. We have to fix our mind and understand why we over eat. We can't control our genes per se, but we can control our environment. My point is, don't be afraid of medication for whatever it is you are afflicted by. We don't have to suffer. Whether it's depression, migraines, obesity, restless legs, etc. But do your homework. Know your body. Pay attention. Listen to your doctor. Understand their may be repercussions (what percentage of patient in studies actually lost hair, did it come back when discontinuing the medication, and are you willing to lose hair if it happens to you to achieve your goal...no more migraines, lose weight, etc.?). Topamax has been on the market a long time. It's a safe product. You have to do your home work and follow directions.
I've been on lortab for my back as well as ambien and Xanax. My new Dr. wants my to try Topamax as he feels have depression. I'm extremely unhappy having moved to the deep south. I gained 45 pounds while living here and barely leaving the house. So he's changed me to the Ambien CR and added Topamax and is wanting me of the lortab. I am off them but boy what an awful feeling, diarrhea, weakness, etc. When I looked up on the comp. it said Topamax for seizures and migraines. Well, I've never had either of those. He also said I wasn't to worry about coming off the lortab as Panicking me thought I would have the seizures then.
He is adamant that I use the Topamax as a mood stabilizer just 25 2x a day. And says that I should start losing the weight I gained while being constipated on the lortabs for so long.
So I guess I'm asking your expert advice on the Topamax. Should I not be terrified to start them at this low dose. And just let the lortabs go as Dr's don't really like to see me on them. I don't mind I just want to start feeling better. I do have these herniated discs that he said when I lose the weight my back will feel better. I think I use the lortab as a crutch to dull my entire experience of living down here. Probably the wrong idea. The Dr. seems positive that the Topamax would help with the depression. He doesn't want me on Wellbutrin or any of the stimulants as by nature I am extremely hyper and I would go nuts on any of these. It's really so weird any time I get out of this area I lose weight, feel happy. And bla bla. People say "Oh you'll bring your troubles with you" Well I've lived all over the country and Canada and only here do I suffer with the culture shock. Am trying to move again, but my Mother livers her and is 84, so it is posing a challenge.
Oh God, I'm really sorry about all of this rambling. Again. I just wanted to hear what you say about the Topamax being helpful for elevating my mood. As he just seems so sure it will help. He's a surgeon not a primary, so I've been trying to be confident with this. Okay, I'll stop here. If you can make any sense of my post your opinion would be most appreciated, Thank you for your help.
I have been on topiramate since the age of 14 for epilepsy.
I suffer with nearly all of the major side effects described and I'm considering coming off, but I'm TERRIFIED of gaining weight.
Before I was on topiramate I was on carbamezaphine and I was a lot larger than I am today.
I already suffered with the onset of an eating disorder and there is some debate as to whether my eating disorder triggered my epilepsy.
The topiramate definitely made my eating disorder worse, and in turn both my mental and physical health have declined.
I would never think of going on this drug unless there were no other alternatives.
Yes it has controlled my epilepsy, but actually everything else is much worse.
There are other ways to lose weight.
Side effects I have:
- Appetite loss
- Weight loss (including hospitalisation on a number of occasions for anorexia nervosa)
- Concentration and memory deterioration
- Inability to focus on one activity
- Blurred vision
- mood swings
Hi I noticed u mentioned u were a retied pt & thought & may be able to recommend whether im dosing myself wrong or not. I had a rx on file for Topamax from a year ago when i had insurance, i lost my insurance & now have my insurance again. so I filled it. its 50mg. have been taking it for 7 days now. It just dawned on me that you start out taking a lower dose & increase over the weeks. should I stop the 50's split them to 25's & do that for a week? then go to 50 a day? then back to 100 a day where I am now?
or call my current dr, this was a dr from a year ago w my previous insurance. was hoping u may have som input.
I took Topomax (topamax) a few years ago for migraines due to overuse of Tylenol taken after an accident.
Definitely split the pills and start at 25mg for a week then 50mg for a week then up to 100mg. More importantly, it is a very addictive drug so, when you decide to go off the medication taper down by 25mg every 2 weeks otherwise it can lead to severe depression/suicide.
I don't recall if I lost any weight. The migraines definitely stopped. My one side effect was that I didn't sweat...so if you do any strenuous exercise or are in a hot climate drink lots of cool water so you don't over heat. When I was totally weaned of Tylenol I waited a couple months and then started weaning myself off Topamax. I stopped taking it because, like others mentioned, it made me feel dopey, unable to think clearly, I'd lose my words, lose my train of thought.
I still get an occasional migraine but nothing like before. I found this discussion looking for a weight loss aide. I've gained a lot of weight over the past 4 years and can't seem to get motivated to lose it. I snack endlessly out of boredom. I'm going to ask my doctor about topamax as an appetite suppressant and see if he has any ideas for an energy booster.
How are you doing now ? are you still loosing your hair??? That is my big concern,I too was told to lower my dosage because of extreme hair loss,and other side possible side effects but headaches are already coming back and I am afraid the weight will too but the last thing I want is to be BALD!
I was prescribed this about 10 days ago, started on 25 mg for migraines and have been on 50 mgs this week, I don't like taking meds in general so I got online and read lots of bad stuff and all about bad side effects. The internet is terrible and just scares us when it comes to things like this! I haven't noticed any side effects yet except a very slight drop in appetite about 4 days into taking it. Nothing tastes funny, I haven't felt sleepiness yet even though my doctor told me that would be the only side effect other than some weight loss. Also, everyone's body reacts differently to different things. Just pay attention to your body and if something is off just call your doctor, they will help you come off of the medicine safely if you don't like it. =)
I have started taking it for a month now and found a huge difference. Im on 1000 mg of gabapentin twice a day, tramadol, percocet, imitrex injections, phenergran, migrainal, maxalt, magnesium, valium 10 mg three ties a day, xanax, botox, and this is all for cluster headaches. People have commented on my weight change which has went from 111 to 106 within 4 weeks. which Im within my BMI for being 27 and 5' 3". my husband said yes i have a much unrefined vocabulary and my mood swings are difficult but with all of the other sedatives every day I'm not worried about seizures or anything crazy. I think its a fine drug for cluster headaches since they are still finding cures since they aren't very common. For migraines I'm sure there are other drugs they've found so if you are having issues tell your doctor and find another option. Luckily my husband is military so I have so many drugs but they pay for it all or I would work to pay to make a cluster period tolerable so i don't jump out a window or put my head into a wall! best of luck to you all!
First off, kudos to everyone for taking an active role in your health and well-being by doing your homework and asking questions. You've no idea how many people blindly follow doctor instructions and suffer silently without ever knowing there are active communities like this to help them figure out why and how they might feel better.
I'd like to point out I am not a nurse or health care worker, just a longtime patient with a wealth of experience with Topamax - I've been on it for several years with mixed success. I'm very well-managed bipolar and I've lost weight on this medication initially, regained some and lost again when my dose was increased. I've never suffered any major side effects aside from carbonated drinks tasting flat - which was fine, I've now cut caffeine and aspartame completely out of my diet which is a good thing! More weight loss!!
I can't speak to claims of hand and feet tingling, hair loss or other alarming side effects that others have alluded to - I've never had an issue with any of these things at any time. Always read the literature that comes with the medication or talk to your pharmacist about potential side effects and interactions to educate yourself first! If anything is alarming to YOU, talk to YOUR doctor and discuss your concerns - most likely, there are other reasons he/she prescribed this particular medication for you over another and will address your concerns.
Online forums and communities are great and are a fantastic way to find support and reference, but shouldn't replace a conversation with your doctor. Your doctor should know everything that's going on with you and should hear all of your concerns and issues - all of them. And if you think they won't take the time or they won't listen? Make them. They work for you. You pay their bills. They are your advocate.
Be bold, be brave, be brief my friends - make it count.
And just for the record (I forgot to include this information in my previous post), I lost a total of 37 pounds over a year's time with the help of Topamax. Very little dieting was involved other than the exclusion of soda and I started walking twice a week (albeit sporadically, to be honest about it...) for maybe 20-30 minutes at a time. So, not much in the way of exercise either.
I was prescribed topamax a month ago for migraine prevention and also to loose some weight from gabapentin and seroquel which I'm currently on. I'm on 100 mg. I haven't lost any weight even though I started eating healthier and exercising more. I stopped drinking pop too. I talked to my doctor and he doesn't know why. My appetite has decreased. it's very frustrating because I'm trying to loose weight the healthy way.
Hi, I tio have suffered migraines for years and have been taking amitriptyline for years with moderate effectiveness. I recently spoke with a neurologist who suggested Topamax. I have a great primary care Doc who said sure! Let's try it. I tapered off the amitriptyline while titrating up on Topamax. I had had a headache for over 30 days straight, also dealing with menopause, and since being on the Topamax (50 mg twice a day) it is GONE!! I only started the 100mg a few days ago and it seems to be working great! The only side effects I've noticed so far are, feeling sleepy with morning dose and mild constipation which I've been able to deal with with gentle laxative every couple days. In a bright note, I'm down 8 lbs since starting 3 weeks ago and don't obsess about food anymore! I admit it, I love my food and my weight has been a lifelong struggle. I find I don't think about eating much and when I do eat, I'm eating about half what I used to cause I'm just not that interested! Hope that continues! Hope this was helpful!
There is a reason Topamax is called Dopamax by doctors. It took me 3 years to find out why I had suddenly lost my short term memory and couldn't concentrate. It was like I was in a fog all the time. The biggest thing is not being able to remember words. People got used to me trying to describe things with my hands and with other words, like "toaster oven". You know this big, and it cooks things. I hated it. However, the good news. I was taking 200mg twice a day. When I think back, I'm betting the mental problems started after my dosage was raised the last time. And no, I don't take Topamax anymore.
I've been taking Topomax (topamax) for a few years off and on. In the beginning, it was
50 mgs. and experienced absolutely no weight loss. In fact, I gained about 10
pounds, but I think that was from the seroquel that I'd been taking.
Now I'm taking 100 mgs. and still haven't seen a pound of loss. However, all the rest of the comments that have lost weight, say they take their meds at night. I take mine during the day, and always have.
Maybe there's something to that.
I'm going to try it, and see if I notice a difference!
Well I was prescribed topmax back in 2011 for a number of thing...migraines being one thing but I had an eating disorder but now Im being prescribed topamax because I have anxiety and personality issues. I am somewhat overweight but I never thought of using it for that until i read all this. But its driving me nutz that I have slept in 4 days. I think I have gotten like 45 mins each night since Thursday night. My meds we doubled and topamax was added with my deprakote. Any suggestions on what I need to do to sleep on this stuff?
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