Just wondering if anyone went off all of the drugs (steriods) and has not had any symptoms of the gm. I have been off of everything since December and trying to learn my limits. I am getting better and better, however, if I overdue something I feel things and have to rest. I didn't do the chemo. Lots of juicing (brocoli, spinich etc.)and garlic, vit.d, omegas.
Ps. Things get better, but I have learned what triggers me and how to live and watch for certain things. I just wondered if anyone felt completely the same as before and it was just a matter of time or is this my new normal...for now.
I, too, am doing much better now...but not quite the same as before. I have wondered the same thing...will I ever feel "normal" or completely healthy again? I don't have breast symptoms most of the time now...but the other symptoms are abundant. They are sometimes better and sometimes worse, but never completely gone.
Now I am drug free, symptom free. I just wear clay against my breast every night. I jog. I feel great, rarely ill. I am two pounds heavier than before I started Prednisone. The thing with me that is different compared lots of women with this disease is that all my trouble was local to the breast. I never had joint trouble, weakness or any other inflamation in the body. I contined to jog through the disease (but I had to hold my bandaged breast against my chest the whole time). I should be hitting menopause soon - I am 55. The estrogen decrease may allow for weaning off the clay (I hope). Although it is so easy and cheap that I would accept it if someone were to tell me that I had to wear clay on my breast every night for the rest of my life. (At one point I was told that might have to take methotrexate for the rest of my life.)
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