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granulomatous mastitis User Group
Drug Free, symptom free??
About This Group:

This group is intended as a meeting place and forum for those who have been diagnosed with granulomatous mastitis ('GM') or idiopathic granulomatous mastitis ('IGM'). I think one of the greatest challenges with this disease is its rarity and the associated lack of understanding in the medical community. But we can share here - and hopefully make the healing process a little easier for each other.

Founded by JoJo45 on January 17, 2010
258 members
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Drug Free, symptom free??

Just wondering if anyone went off all of the drugs (steriods) and has not had any symptoms of the gm.  I have been off of everything since December and trying to learn my limits.  I am getting better and better, however, if I overdue something I feel things and have to rest.  I didn't do the chemo. Lots of juicing (brocoli, spinich etc.)and garlic, vit.d, omegas.  
Ps. Things get better, but I have learned what triggers me and how to live and watch for certain things. I just wondered if anyone felt completely the same as before and it was just a matter of time or is this my new normal...for now.




2 Comments
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1515564_tn?1309322463
I, too, am doing much better now...but not quite the same as before. I have wondered the same thing...will I ever feel "normal" or completely healthy again? I don't have breast symptoms most of the time now...but the other symptoms are abundant. They are sometimes better and sometimes worse, but never completely gone.
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Now I am drug free, symptom free.  I just wear clay against my breast every night. I jog.  I feel great, rarely ill.  I am two pounds heavier than before I started Prednisone.  The thing with me that is different compared lots of women with this disease is that all my trouble was local to the breast.  I never had joint trouble, weakness or any other inflamation (inflammation) in the body.  I contined to jog through the disease (but I had to hold my bandaged breast against my chest the whole time).  I should be hitting menopause soon - I am 55.  The estrogen decrease may allow for weaning off the clay (I hope).  Although it is so easy and cheap that I would accept it if someone were to tell me that I had to wear clay on my breast every night for the rest of  my life.  (At one point I was told that might have to take methotrexate for the rest of my life.)
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