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granulomatous mastitis User Group
About This Group:

This group is intended as a meeting place and forum for those who have been diagnosed with granulomatous mastitis ('GM') or idiopathic granulomatous mastitis ('IGM'). I think one of the greatest challenges with this disease is its rarity and the associated lack of understanding in the medical community. But we can share here - and hopefully make the healing process a little easier for each other.

Founded by JoJo45 on January 17, 2010
274 members
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DinaxxxxJun 30
plenaJun 26
Sush560May 30
5
By JoJo45
Hi - it is me, JoJo45. I originally started this forum five years ago. I had three episodes of IGM in my left bre...
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kuulei04Jul 19, 2014
dlsa1Jul 17, 2014
2
By JoJo45 Blank
http://byebyeboobiesblog.wordpress.com/ Hi - thought i had posted this, but maybe not. just came across this am...
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eluriajenOct 31, 2014
Sush560Sep 13, 2014
Veronica36Jun 20, 2014
3
By JoJo45 Blank
Hi I have been fighting this disease since 2007. I am a bit of an unusual case for IGM as I have never had chil...
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2
By eluriajen
Hello, I was researching a few months ago, looking for something to try for our disease. I have refused taking ora...
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By bray082009
I have sent this message to a few of you from this forum. I hope to hear back from somebody soon, but if not maybe so...
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eluriajenJul 06
1
By blessedts13
Hi I have been doing homeopathic healing and Thankful to have successfully changed my lifestyle,diet and supplements....
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By Sallycinammon
Hi, I have just been diagnosed with IGM and would like to link in with others who have the condition to share experie...
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By plena
with granulomatous mastitis diagnosis in 2009 , I could heal me in 2010. I'm from Brazil and I have a blog where I te...
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plenaJun 24
ayiyiDec 17, 2014
kuulei04Oct 14, 2014
Sush560Sep 13, 2014
DinaxxxxJul 03, 2014
5
By Guzmom3 Blank
I was just diagnosed with IGM about a month ago and my first treatment was a high dose of steroids that I was on for ...
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By Con98
an abscess on my head popped this morning and I don't know what to do. I just clean the excess blood and pus with cot...
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SandeeWigJun 17
JoJo45May 11
2
By ayiyi Blank
I think one big difference for me is that I had an MRI done at the same time as my biopsy (when they suspected inflam...
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SandeeWigJun 17
1
By Shortfuse26911
Hi all, out of the blue I developed a lump that was painful at 9 o'clock near my nipple. Made a super fast family doc...
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SandeeWigJun 17
1
By Sush560 Blank
Just to update you all, I have recovered more or less completely. Surgeon says there's no more lump. He has asked to ...
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By USMC_proud
First, I cannot tell you how relieved I am to find information about this horrible disease. Here is only some of my h...
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By blessedts13
I have been diagnosed with GM since 5/4/15 due to several hard lumps that appeared one day. I was experiencing severa...
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eluriajenMay 11
1
By Mummy2EliAndMillie
Hi, I have been suffering since Nov 2014, I have had bilateral lumps and at the time I got pregnant with my second ch...
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By eluriajen
Hi Ladies, I have been working with a wound nurse to heal my most recent abscesses, and I wanted to share some of ...
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MArcitabApr 21
87girlApr 15
2
By MychelleHarich
Need some advise! Both breasts affected and currently my right breast is exploding with puss for 2 years. I broke ...
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87girlApr 18
rm171981Apr 18
87girlApr 16
87girlApr 16
87girlApr 16
7
By 87girl Blank
Hello everyone, I'm a 27 yo, I'm just diagnoised with this disease. at the beginning,in last March I felt pain on m...
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JoJo45Jun 14, 2014
nadianomasJun 11, 2014
Lopine808May 30, 2014
LilFlo211May 29, 2014
5
By Lopine808 Blank
Once an abscess has drained without surgery how long does it take to heal completely? Also I seem to have an indenta...
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1
By Sar024 Blank
I'm having some trouble deciding about my dr. I don't want to trade bad for worse but I don't understand the reasoni...
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CatLady61Feb 27
HelpmyBFFJul 15, 2013
MilyJOct 17, 2011
SherpaTatOct 17, 2011
6
By MilyJ Blank
My Dr.'s had told me that he doesn't know if GM would come back even after a Mastectomy. Is That true? Have you had M...
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