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granulomatous mastitis User Group
About This Group:

This group is intended as a meeting place and forum for those who have been diagnosed with granulomatous mastitis ('GM') or idiopathic granulomatous mastitis ('IGM'). I think one of the greatest challenges with this disease is its rarity and the associated lack of understanding in the medical community. But we can share here - and hopefully make the healing process a little easier for each other.

Founded by JoJo45 on January 17, 2010
289 members
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kuulei04Jul 19, 2014
dlsa1Jul 17, 2014
2
By JoJo45 Blank
http://byebyeboobiesblog.wordpress.com/ Hi - thought i had posted this, but maybe not. just came across this am...
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eluriajenOct 31, 2014
Sush560Sep 13, 2014
Veronica36Jun 20, 2014
3
By JoJo45 Blank
Hi I have been fighting this disease since 2007. I am a bit of an unusual case for IGM as I have never had chil...
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4
By Smiles4TheSoul
This isn't really a question - more so, my story. First of all, I am new here and I am so happy that there is a pl...
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Tkw95Mar 16
1
By AllegromousesMom
I received my diagnosis in Spring 2011. Since then I have had ups and downs. Recently a big downer was a brand new ...
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Tkw95Mar 12
Sush560Mar 10
2
By Tkw95
I'm new here, I'm a 39 year old mother of 3 boys, and I was diagnosed with Idiopathic Granulomatous Mastitis last Jul...
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Sush560Mar 10
Sush560Feb 05
2
By AllegromousesMom Blank
So I have a doctor who knows this sickness well. There is a study on it in a hospital not far from me so I am gratef...
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Sush560Feb 05
1
By Kaziwazi Blank
Hi I wondered if there was anyone from uk in this group?
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By Sush560
Guys, I never come in here anymore since I got completely cured with my aunts homeopathy. Took 3-6 months. Very stric...
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87girlJan 15
1
By Jen730
Hello, I have been recently diagnosed with idiopathic granulomatous mastitis, however I have been suffering from th...
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KashesJan 07
KashesJan 07
DinaxxxxNov 26, 2015
3
By Kaziwazi Blank
Anyone know of anything can try to help heal wound? Tried clay which has really helped with drainage and pain but ne...
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By Kashes
The disease heals itself spontaneously with no meds. The doctor who diagnosed me said that the meds do not kill the ...
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By Kashes
I had GM for a little over a year, starting in November of 2010. Unfortunately, it came back this week, and in think...
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DinaxxxxNov 26, 2015
1
By Cor1234 Blank
It's been almost 2 years since I was diagnosed with gm. Thankfully I had an amazing doctor. Who decided to just ride ...
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DinaxxxxNov 26, 2015
1
By killyconchilli Blank
I have just been diagnosed with GM after a core biopsy. This is after seeing 3 breast specialists AND 3 rheumatologi...
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eluriajenAug 19, 2015
eluriajenAug 19, 2015
2
igm
By bee_see Blank
So I've been diagnosed with igm about 2 months ago. I'm 23&live in Oregon. I did a few biopsies , mammogram, MRI, wha...
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eluriajenAug 19, 2015
1
By Usaela Blank
Hello, I'm fairly new to all this being diagnosed with GM 3 weeks ago. Today my second abscess burst - what a reliev...
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By bee_see Blank
So I tried antibiotics, prednisone and now I'm trying methatrexate . I just wanted to ask the people who have tried t...
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DinaxxxxAug 06, 2015
1
By USMC_proud Blank
First, I cannot tell you how relieved I am to find information about this horrible disease. Here is only some of my h...
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DinaxxxxAug 06, 2015
1
By Veegee14 Blank
Anyone know doctors from NJ/NY USA who has treated IGM ? Desperately need some advice here. Suffering from IGM fr...
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DinaxxxxAug 06, 2015
DinaxxxxAug 06, 2015
2
By bray082009 Blank
I have sent this message to a few of you from this forum. I hope to hear back from somebody soon, but if not maybe so...
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luvmy4bbsJul 30, 2015
SallycinammonJul 13, 2015
2
By eluriajen Blank
Hello, I was researching a few months ago, looking for something to try for our disease. I have refused taking ora...
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bray082009Jul 22, 2015
DinaxxxxJun 30, 2015
plenaJun 26, 2015
USMC_proudMay 31, 2015
Sush560May 30, 2015
5
By JoJo45 Blank
Hi - it is me, JoJo45. I originally started this forum five years ago. I had three episodes of IGM in my left bre...
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