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granulomatous mastitis User Group
About This Group:

This group is intended as a meeting place and forum for those who have been diagnosed with granulomatous mastitis ('GM') or idiopathic granulomatous mastitis ('IGM'). I think one of the greatest challenges with this disease is its rarity and the associated lack of understanding in the medical community. But we can share here - and hopefully make the healing process a little easier for each other.

Founded by JoJo45 on January 17, 2010
264 members
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Sush5608 minutes
1
By JoJo45
Hi - it is me, JoJo45. I originally started this forum five years ago. I had three episodes of IGM in my left bre...
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kuulei04Jul 19, 2014
dlsa1Jul 17, 2014
2
By JoJo45 Blank
http://byebyeboobiesblog.wordpress.com/ Hi - thought i had posted this, but maybe not. just came across this am...
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eluriajenOct 31, 2014
Sush560Sep 13, 2014
Veronica36Jun 20, 2014
3
By JoJo45 Blank
Hi I have been fighting this disease since 2007. I am a bit of an unusual case for IGM as I have never had chil...
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By blessedts13
I have been diagnosed with GM since 5/4/15 due to several hard lumps that appeared one day. I was experiencing severa...
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JoJo45May 11
1
By ayiyi
I think one big difference for me is that I had an MRI done at the same time as my biopsy (when they suspected inflam...
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eluriajenMay 11
1
By Mummy2EliAndMillie
Hi, I have been suffering since Nov 2014, I have had bilateral lumps and at the time I got pregnant with my second ch...
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By eluriajen
Hello, I was researching a few months ago, looking for something to try for our disease. I have refused taking ora...
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By eluriajen
Hi Ladies, I have been working with a wound nurse to heal my most recent abscesses, and I wanted to share some of ...
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MArcitabApr 21
87girlApr 15
2
By MychelleHarich
Need some advise! Both breasts affected and currently my right breast is exploding with puss for 2 years. I broke ...
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87girlApr 18
rm171981Apr 18
87girlApr 16
87girlApr 16
87girlApr 16
7
By 87girl Blank
Hello everyone, I'm a 27 yo, I'm just diagnoised with this disease. at the beginning,in last March I felt pain on m...
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JoJo45Jun 14, 2014
nadianomasJun 11, 2014
Lopine808May 30, 2014
LilFlo211May 29, 2014
5
By Lopine808 Blank
Once an abscess has drained without surgery how long does it take to heal completely? Also I seem to have an indenta...
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1
By Sar024 Blank
I'm having some trouble deciding about my dr. I don't want to trade bad for worse but I don't understand the reasoni...
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CatLady61Feb 27
HelpmyBFFJul 15, 2013
MilyJOct 17, 2011
SherpaTatOct 17, 2011
6
By MilyJ Blank
My Dr.'s had told me that he doesn't know if GM would come back even after a Mastectomy. Is That true? Have you had M...
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By sandyns
Hi Ladies, I consulted with Dr. Roshini Rao in Dallas after I was diagnosed with IGM. I live in Houston, TX. F...
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ayiyiDec 17, 2014
kuulei04Oct 14, 2014
Sush560Sep 13, 2014
DinaxxxxJul 03, 2014
4
By Guzmom3 Blank
I was just diagnosed with IGM about a month ago and my first treatment was a high dose of steroids that I was on for ...
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ayiyiDec 17, 2014
DinaxxxxDec 17, 2014
2
By ayiyi
I am trying to find someone to chat with. After 3 weeks of thinking of have inflammatory breast cancer the biopsy has...
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DinaxxxxDec 17, 2014
1
By Annaamiri
In May 2014 I felt a lump in my right breast and have had ultrasound, mri and biopsy done and was referred to a gener...
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samazNov 28, 2014
87girlNov 13, 2014
2
By samaz Blank
Hi All, I was suffering with GM and did the surgery and recovering at the moment. However, for the moment having ste...
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FirousNov 28, 2014
Shells71Oct 18, 2014
Tara7777Jul 20, 2014
Pandora1962Apr 09, 2011
barbados95Apr 09, 2011
10
By barbados95 Blank
Hi everyone, I have just been to see my new consultant after being diagnosed with gm last week. As I expected, he h...
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Laurel_WessieOct 18, 2014
DinaxxxxOct 17, 2014
kuulei04Oct 14, 2014
Laurel_WessieOct 11, 2014
MoVirisOct 10, 2014
5
By Laurel_Wessie Blank
I am so glad to have found this forum! IGM is so rare that most of the medical community doesn't know what IGM is. ...
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DinaxxxxOct 17, 2014
Laurel_WessieOct 11, 2014
DD420Jul 28, 2014
ktbh8Jul 16, 2014
4
By Dinaxxxx Blank
Hello ladies, Thank you so much for taking the time to share your experiences. I am waiting on results of my seco...
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