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granulomatous mastitis User Group
About This Group:

This group is intended as a meeting place and forum for those who have been diagnosed with granulomatous mastitis ('GM') or idiopathic granulomatous mastitis ('IGM'). I think one of the greatest challenges with this disease is its rarity and the associated lack of understanding in the medical community. But we can share here - and hopefully make the healing process a little easier for each other.

Founded by JoJo45 on January 17, 2010
258 members
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kuulei04Jul 19
dlsa1Jul 17
2
By JoJo45 Blank
http://byebyeboobiesblog.wordpress.com/ Hi - thought i had posted this, but maybe not. just came across this am...
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eluriajenOct 31
Sush560Sep 13
3
By JoJo45 Blank
Hi I have been fighting this disease since 2007. I am a bit of an unusual case for IGM as I have never had chil...
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By ayiyi
I think one big difference for me is that I had an MRI done at the same time as my biopsy (when they suspected inflam...
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ayiyi9 minutes
kuulei04Oct 14
Sush560Sep 13
DinaxxxxJul 03
4
By Guzmom3
I was just diagnosed with IGM about a month ago and my first treatment was a high dose of steroids that I was on for ...
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ayiyi12 minutes
Dinaxxxx10 hours
2
By ayiyi
I am trying to find someone to chat with. After 3 weeks of thinking of have inflammatory breast cancer the biopsy has...
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Dinaxxxx10 hours
1
By Annaamiri
In May 2014 I felt a lump in my right breast and have had ultrasound, mri and biopsy done and was referred to a gener...
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samazNov 28
87girlNov 13
2
By samaz
Hi All, I was suffering with GM and did the surgery and recovering at the moment. However, for the moment having ste...
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FirousNov 28
Shells71Oct 18
Tara7777Jul 20
Pandora1962Apr 09, 2011
barbados95Apr 09, 2011
10
By barbados95 Blank
Hi everyone, I have just been to see my new consultant after being diagnosed with gm last week. As I expected, he h...
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87girlNov 13
1
By 87girl
Hello everyone, I'm a 27 yo, I'm just diagnoised with this disease. at the beginning,in last March I felt pain on m...
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5
By Laurel_Wessie
I am so glad to have found this forum! IGM is so rare that most of the medical community doesn't know what IGM is. ...
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DinaxxxxOct 17
DD420Jul 28
ktbh8Jul 16
4
By Dinaxxxx
Hello ladies, Thank you so much for taking the time to share your experiences. I am waiting on results of my seco...
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kuulei04Oct 14
kuulei04Sep 09, 2013
Veronica36Sep 05, 2013
5
By kuulei04 Blank
So shortly after getting GM I started to lose hair but in the past month I noticed I lose soooooooooooo much more hai...
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By MoViris
Have any of my IGM sisters here ever successfully breastfed after diagnosis? I breastfed my first two babies, and I ...
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MoVirisOct 10
hailey108Jun 20
kuulei04Jun 18
4
By hailey108
Hello everyone! Its been 3 years since I recovered. I initially was diagnosed during my second pregnancy at 5 months....
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10
By nora321 Blank
Hi I am new member and suffering with this disease for last 7 mnths. I am happy to find this forum as someone is ther...
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By upsetnadconfused Blank
I can't believe that I found this forum. Like everyone else (it seems), my doctors know nothing about this condition ...
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By katklei76
I wanted to write about my experiences with granulomatous mastitis here because this forum helped me so much when I f...
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DinaxxxxOct 02
1
By B22mama
I am a newbie to this group. Was just recently diagnosed with IGM after 4 months of a variety of doctors not knowing...
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By ktbh8
Has anyone actaully been diagnosed with an underlying cause or autoimmune disease? I had a bunch of tests done by a R...
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DinaxxxxSep 25
1
By manywaters
Hello :) I found this forum so helpful when I was researching and trying to figure out what the heck was going on in...
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By Sush560
Just to update you all, I have recovered more or less completely. Surgeon says there's no more lump. He has asked to ...
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