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granulomatous mastitis User Group
About This Group:

This group is intended as a meeting place and forum for those who have been diagnosed with granulomatous mastitis ('GM') or idiopathic granulomatous mastitis ('IGM'). I think one of the greatest challenges with this disease is its rarity and the associated lack of understanding in the medical community. But we can share here - and hopefully make the healing process a little easier for each other.

Founded by JoJo45 on January 17, 2010
254 members
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kuulei04Jul 19
dlsa1Jul 17
2
By JoJo45
http://byebyeboobiesblog.wordpress.com/ Hi - thought i had posted this, but maybe not. just came across this am...
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eluriajen10 hours
Sush560Sep 13
3
By JoJo45
Hi I have been fighting this disease since 2007. I am a bit of an unusual case for IGM as I have never had chil...
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Shells71Oct 18
Tara7777Jul 20
Pandora1962Apr 09, 2011
barbados95Apr 09, 2011
JoJo45Apr 09, 2011
9
By barbados95 Blank
Hi everyone, I have just been to see my new consultant after being diagnosed with gm last week. As I expected, he h...
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5
By Laurel_Wessie
I am so glad to have found this forum! IGM is so rare that most of the medical community doesn't know what IGM is. ...
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DinaxxxxOct 17
DD420Jul 28
ktbh8Jul 16
4
By Dinaxxxx
Hello ladies, Thank you so much for taking the time to share your experiences. I am waiting on results of my seco...
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kuulei04Oct 14
kuulei04Sep 09, 2013
Veronica36Sep 05, 2013
5
By kuulei04 Blank
So shortly after getting GM I started to lose hair but in the past month I noticed I lose soooooooooooo much more hai...
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kuulei04Oct 14
Sush560Sep 13
DinaxxxxJul 03
3
By Guzmom3
I was just diagnosed with IGM about a month ago and my first treatment was a high dose of steroids that I was on for ...
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By samaz
Hi All, I was suffering with GM and did the surgery and recovering at the moment. However, for the moment having ste...
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By MoViris
Have any of my IGM sisters here ever successfully breastfed after diagnosis? I breastfed my first two babies, and I ...
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MoVirisOct 10
hailey108Jun 20
kuulei04Jun 18
4
By hailey108
Hello everyone! Its been 3 years since I recovered. I initially was diagnosed during my second pregnancy at 5 months....
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10
By nora321
Hi I am new member and suffering with this disease for last 7 mnths. I am happy to find this forum as someone is ther...
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By upsetnadconfused
I can't believe that I found this forum. Like everyone else (it seems), my doctors know nothing about this condition ...
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By katklei76
I wanted to write about my experiences with granulomatous mastitis here because this forum helped me so much when I f...
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DinaxxxxOct 02
1
By B22mama
I am a newbie to this group. Was just recently diagnosed with IGM after 4 months of a variety of doctors not knowing...
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By ktbh8
Has anyone actaully been diagnosed with an underlying cause or autoimmune disease? I had a bunch of tests done by a R...
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DinaxxxxSep 25
1
By manywaters
Hello :) I found this forum so helpful when I was researching and trying to figure out what the heck was going on in...
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By Sush560
Just to update you all, I have recovered more or less completely. Surgeon says there's no more lump. He has asked to ...
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By momnyc
Hello I have been living with this since April 13,2014.Woke up that day feeling like I had the flu and my left breas...
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DinaxxxxJul 03
2
By brendy1115
Hello Everyone, I was so glad to find this forum when I did back when I was first going through this ordeal with ...
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By Sar024
I'm having some trouble deciding about my dr. I don't want to trade bad for worse but I don't understand the reasoni...
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By dlsa1
I had my BS lance a puffy red patch on my breast that looked like it would explode soon and my breast felt and feels ...
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