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granulomatous mastitis User Group
About This Group:

This group is intended as a meeting place and forum for those who have been diagnosed with granulomatous mastitis ('GM') or idiopathic granulomatous mastitis ('IGM'). I think one of the greatest challenges with this disease is its rarity and the associated lack of understanding in the medical community. But we can share here - and hopefully make the healing process a little easier for each other.

Founded by JoJo45 on January 17, 2010
258 members
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kuulei04Jul 19, 2014
dlsa1Jul 17, 2014
2
By JoJo45 Blank
http://byebyeboobiesblog.wordpress.com/ Hi - thought i had posted this, but maybe not. just came across this am...
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eluriajenOct 31, 2014
Sush560Sep 13, 2014
Veronica36Jun 20, 2014
3
By JoJo45 Blank
Hi I have been fighting this disease since 2007. I am a bit of an unusual case for IGM as I have never had chil...
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CatLady61Feb 27
HelpmyBFFJul 15, 2013
MilyJOct 17, 2011
SherpaTatOct 17, 2011
MilyJOct 17, 2011
5
By MilyJ Blank
My Dr.'s had told me that he doesn't know if GM would come back even after a Mastectomy. Is That true? Have you had M...
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By sandyns
Hi Ladies, I consulted with Dr. Roshini Rao in Dallas after I was diagnosed with IGM. I live in Houston, TX. F...
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By ayiyi
I think one big difference for me is that I had an MRI done at the same time as my biopsy (when they suspected inflam...
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ayiyiDec 17, 2014
kuulei04Oct 14, 2014
Sush560Sep 13, 2014
DinaxxxxJul 03, 2014
4
By Guzmom3 Blank
I was just diagnosed with IGM about a month ago and my first treatment was a high dose of steroids that I was on for ...
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ayiyiDec 17, 2014
DinaxxxxDec 17, 2014
2
By ayiyi
I am trying to find someone to chat with. After 3 weeks of thinking of have inflammatory breast cancer the biopsy has...
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DinaxxxxDec 17, 2014
1
By Annaamiri
In May 2014 I felt a lump in my right breast and have had ultrasound, mri and biopsy done and was referred to a gener...
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samazNov 28, 2014
87girlNov 13, 2014
2
By samaz
Hi All, I was suffering with GM and did the surgery and recovering at the moment. However, for the moment having ste...
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FirousNov 28, 2014
Shells71Oct 18, 2014
Tara7777Jul 20, 2014
Pandora1962Apr 09, 2011
barbados95Apr 09, 2011
10
By barbados95 Blank
Hi everyone, I have just been to see my new consultant after being diagnosed with gm last week. As I expected, he h...
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87girlNov 13, 2014
1
By 87girl
Hello everyone, I'm a 27 yo, I'm just diagnoised with this disease. at the beginning,in last March I felt pain on m...
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Laurel_WessieOct 18, 2014
DinaxxxxOct 17, 2014
kuulei04Oct 14, 2014
Laurel_WessieOct 11, 2014
MoVirisOct 10, 2014
5
By Laurel_Wessie
I am so glad to have found this forum! IGM is so rare that most of the medical community doesn't know what IGM is. ...
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DinaxxxxOct 17, 2014
Laurel_WessieOct 11, 2014
DD420Jul 28, 2014
ktbh8Jul 16, 2014
4
By Dinaxxxx Blank
Hello ladies, Thank you so much for taking the time to share your experiences. I am waiting on results of my seco...
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Laurel_WessieOct 15, 2014
kuulei04Oct 14, 2014
Laurel_WessieOct 12, 2014
kuulei04Sep 09, 2013
Veronica36Sep 05, 2013
5
By kuulei04 Blank
So shortly after getting GM I started to lose hair but in the past month I noticed I lose soooooooooooo much more hai...
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By MoViris
Have any of my IGM sisters here ever successfully breastfed after diagnosis? I breastfed my first two babies, and I ...
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MoVirisOct 10, 2014
navamalta76Jun 27, 2014
hailey108Jun 20, 2014
kuulei04Jun 18, 2014
4
By hailey108 Blank
Hello everyone! Its been 3 years since I recovered. I initially was diagnosed during my second pregnancy at 5 months....
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Laurel_WessieOct 10, 2014
beribbonedOct 07, 2014
B22mamaSep 15, 2014
beribbonedAug 22, 2014
navamalta76Jun 27, 2014
10
By nora321 Blank
Hi I am new member and suffering with this disease for last 7 mnths. I am happy to find this forum as someone is ther...
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beribbonedOct 07, 2014
upsetnadconfusedAug 27, 2014
upsetnadconfusedAug 27, 2014
beribbonedAug 23, 2014
JoJo45Jun 14, 2014
7
By upsetnadconfused Blank
I can't believe that I found this forum. Like everyone else (it seems), my doctors know nothing about this condition ...
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By katklei76
I wanted to write about my experiences with granulomatous mastitis here because this forum helped me so much when I f...
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DinaxxxxOct 02, 2014
1
By B22mama
I am a newbie to this group. Was just recently diagnosed with IGM after 4 months of a variety of doctors not knowing...
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By ktbh8
Has anyone actaully been diagnosed with an underlying cause or autoimmune disease? I had a bunch of tests done by a R...
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