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granulomatous mastitis User Group
About This Group:

This group is intended as a meeting place and forum for those who have been diagnosed with granulomatous mastitis ('GM') or idiopathic granulomatous mastitis ('IGM'). I think one of the greatest challenges with this disease is its rarity and the associated lack of understanding in the medical community. But we can share here - and hopefully make the healing process a little easier for each other.

Founded by JoJo45 on January 17, 2010
229 members
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katcat88Apr 20
JoJo45Apr 19
kuulei04Apr 19
kuulei04Apr 19
kuulei04Apr 19
5
By JoJo45
Hi everyone: I founded this group in 2010 in much desperation as there was nothing even on the web about our disea...
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katcat8838 minutes
kuulei04Mar 09
3
By kuulei04
I have a few questions: 1. Have you healed from GM or do you currently still have a mass and/or abscesses? 2. ...
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katcat8841 minutes
Mac0411Mar 10
kuulei04Jan 29
3
By n8ve_ontario
Hi, I was diagnosed with GM 2 months ago, a month before that I got that painful Erythema Nodosum, which went away..N...
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katcat8843 minutes
1
By Clairebear11
I am a 41 year old mum of two living in Auckland, NZ and have had this disease since March 2013. I have been on anti...
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katcat8846 minutes
1
By Cor1234
I have always wanted implants one day. And since being diagnosed with this, I was wondering if that is possible. I wa...
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katcat8847 minutes
1
By ummtalha
I have granulomatous mastitis and I have 23 april operation , the Dr gave me 2 option . One is to make TRAM-Lappe...
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katcat8849 minutes
8
By 87CareBear
Hi I'm a new user who found this community when trying to figure out how to treat my idiopathic granulomatous mastiti...
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katcat8853 minutes
JoJo45Apr 18
PoeJuFeb 24
kuulei04Feb 22
7
By PoeJu
Hi everyone! Diagnosed with IGM 8 months ago. Right breast. I just had my second flare up aside from the first whi...
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katcat88Apr 13
Veronica36Apr 17, 2013
brendy1115Apr 12, 2013
Veronica36Apr 12, 2013
9
By VinniSyd Blank
Hello All, Little about me.. I’m 32 year old with one 4 year old girl. Yesterday I got diagnosed with this scary d...
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Sarnie52Mar 10
kuulei04Feb 22
2
By ruostentatious
Anyone ever had bartholin cysts/abscesses??? It's the gland on either side of the vagina opening. I have been getting...
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Iba823Jan 29
Iba823Jan 29
Veronica36Dec 11, 2013
ruostentatiousDec 10, 2013
10
By ruostentatious
I have 2 other "updates" on here, somewhere... Quick background: I discovered a lump in my right breast in 2008 (?...
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VandanayMar 07
Sush560Mar 06
kuulei04Mar 04
4
By Vandanay
Hi Everyone! I was a GM patient for 2 and a half year and from last year April I have tried homeopathic treatment ...
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kuulei04Mar 04
1
By lina33
Hi Everyone I'm so glad finding this group! My GM story started in Nov2013 on my right b. I live in Germany and I ...
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kuulei04Mar 03
2
By Cor1234
I'm a bit freaked out... I was just diagnosed with GM about 2 weeks ago. Every little change or symptom I have makes ...
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kuulei04Feb 24
1
By Cor1234
What is the best way to use this oil? I'm using it topically but only for a few days. I don't have an abscess and I h...
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By kuulei04
Just curious if anyone had found success with taking methotrexate? It seems like all the doctors want to use methotr...
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kuulei04Feb 22
kuulei04Feb 22
2
By ktbh8
Hi - I was just diagnosed 2 weeks ago with IGM via my pathology report. My doctor said that he has never treated this...
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9
By Sush560
Now when I read people's posts about using all this steroid and doing mastectomy, I think I am so very lucky to have ...
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Sush560Feb 08
Sush560Feb 07
Sush560Feb 07
4
By ruostentatious
Hey all, So I apparently have had an untreated Staph infection since November (untreated because my doctor culture...
5860291_tn?1379195535
By Sush560
Sorry, am copy pasting from my homeopathy post: A least try the diet. Try to eat in a way as if you are detoxifyi...
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