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granulomatous mastitis User Group
About This Group:

This group is intended as a meeting place and forum for those who have been diagnosed with granulomatous mastitis ('GM') or idiopathic granulomatous mastitis ('IGM'). I think one of the greatest challenges with this disease is its rarity and the associated lack of understanding in the medical community. But we can share here - and hopefully make the healing process a little easier for each other.

Founded by JoJo45 on January 17, 2010
242 members
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By JoJo45
Hi everyone, this is jojo I founded this site, had to go away for awhile, but trying to come back I have co...
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2
By pagpri
I just got diagnosed with GM last week after 7 months of treat of antibiotics and 3 biopsies in total. All this while...
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JoJo45Jun 14
Lopine808May 30
LilFlo211May 29
4
By Lopine808
Once an abscess has drained without surgery how long does it take to heal completely? Also I seem to have an indenta...
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JoJo45Jun 14
1
By dlsa1
Has anyone had a mastectomy to resolve IGM? I am considering this option and my doctor suggested a simple mastectomy...
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Kekoa10Jun 09
kuulei04Jun 04
kuulei04Jun 04
3
By Kekoa10
Just wondering what type (brand?) of turmeric is most effective? After doing some research it seems some are better ...
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LilFlo211May 29
kuulei04May 26
LilFlo211May 25
kuulei04May 24
4
By LilFlo211
Hi ladies, I'm glad I found this group and other ladies that can relate to this rare condition. I am a new mom with ...
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Sush560May 28
Sush560May 19
Sush560May 19
katcat88Apr 20
9
By JoJo45
Hi everyone: I founded this group in 2010 in much desperation as there was nothing even on the web about our disea...
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By Lumpymcgree
So glad to find this place! What a crazy awful disease this is! This is my second reoccurrence . I had it last yr but...
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Lopine808May 23
2
By Lopine808
So very happy to find this group. Was diagnosed GM after 10 weeks of unsuccessful treatment. I've been on 6 course...
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Sush560May 19
ruostentatiousOct 20, 2013
kuulei04Oct 12, 2013
19
By OnemoreVancouver Blank
How incredible to find this forum. I think I'm learning more from the discussions than from the myriad of specialist...
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1
By aubie93
I have read recently that prednisone can hinder wound healing, my question is then, why do they prescribe it when the...
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kuulei04Apr 30
2
By Veronica36
Hi all! I have had GM since July 2012..I wonder if takes more than 2 years to go away..it is much better now, but n...
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Amy669Apr 29
katcat88Apr 20
9
By 87CareBear
Hi I'm a new user who found this community when trying to figure out how to treat my idiopathic granulomatous mastiti...
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katcat88Apr 20
Mac0411Mar 10
kuulei04Jan 29
3
By n8ve_ontario
Hi, I was diagnosed with GM 2 months ago, a month before that I got that painful Erythema Nodosum, which went away..N...
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katcat88Apr 20
1
By Clairebear11 Blank
I am a 41 year old mum of two living in Auckland, NZ and have had this disease since March 2013. I have been on anti...
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katcat88Apr 20
1
By Cor1234
I have always wanted implants one day. And since being diagnosed with this, I was wondering if that is possible. I wa...
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katcat88Apr 20
1
By ummtalha
I have granulomatous mastitis and I have 23 april operation , the Dr gave me 2 option . One is to make TRAM-Lappe...
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katcat88Apr 20
JoJo45Apr 18
PoeJuFeb 24
kuulei04Feb 22
7
By PoeJu
Hi everyone! Diagnosed with IGM 8 months ago. Right breast. I just had my second flare up aside from the first whi...
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katcat88Apr 13
Veronica36Apr 17, 2013
brendy1115Apr 12, 2013
Veronica36Apr 12, 2013
9
By VinniSyd Blank
Hello All, Little about me.. I’m 32 year old with one 4 year old girl. Yesterday I got diagnosed with this scary d...
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Sarnie52Mar 10
kuulei04Feb 22
2
By ruostentatious
Anyone ever had bartholin cysts/abscesses??? It's the gland on either side of the vagina opening. I have been getting...
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