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granulomatous mastitis User Group
About This Group:

This group is intended as a meeting place and forum for those who have been diagnosed with granulomatous mastitis ('GM') or idiopathic granulomatous mastitis ('IGM'). I think one of the greatest challenges with this disease is its rarity and the associated lack of understanding in the medical community. But we can share here - and hopefully make the healing process a little easier for each other.

Founded by JoJo45 on January 17, 2010
264 members
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Laurel_WessieOct 15, 2014
kuulei04Oct 14, 2014
Laurel_WessieOct 12, 2014
kuulei04Sep 09, 2013
Veronica36Sep 05, 2013
5
By kuulei04 Blank
So shortly after getting GM I started to lose hair but in the past month I noticed I lose soooooooooooo much more hai...
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By MoViris Blank
Have any of my IGM sisters here ever successfully breastfed after diagnosis? I breastfed my first two babies, and I ...
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MoVirisOct 10, 2014
navamalta76Jun 27, 2014
hailey108Jun 20, 2014
kuulei04Jun 18, 2014
4
By hailey108 Blank
Hello everyone! Its been 3 years since I recovered. I initially was diagnosed during my second pregnancy at 5 months....
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Laurel_WessieOct 10, 2014
beribbonedOct 07, 2014
B22mamaSep 15, 2014
beribbonedAug 22, 2014
navamalta76Jun 27, 2014
10
By nora321 Blank
Hi I am new member and suffering with this disease for last 7 mnths. I am happy to find this forum as someone is ther...
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beribbonedOct 07, 2014
upsetnadconfusedAug 27, 2014
upsetnadconfusedAug 27, 2014
beribbonedAug 23, 2014
JoJo45Jun 14, 2014
7
By upsetnadconfused Blank
I can't believe that I found this forum. Like everyone else (it seems), my doctors know nothing about this condition ...
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By katklei76 Blank
I wanted to write about my experiences with granulomatous mastitis here because this forum helped me so much when I f...
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DinaxxxxOct 02, 2014
1
By B22mama Blank
I am a newbie to this group. Was just recently diagnosed with IGM after 4 months of a variety of doctors not knowing...
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By ktbh8 Blank
Has anyone actaully been diagnosed with an underlying cause or autoimmune disease? I had a bunch of tests done by a R...
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DinaxxxxSep 25, 2014
1
By manywaters Blank
Hello :) I found this forum so helpful when I was researching and trying to figure out what the heck was going on in...
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By Sush560 Blank
Just to update you all, I have recovered more or less completely. Surgeon says there's no more lump. He has asked to ...
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By momnyc Blank
Hello I have been living with this since April 13,2014.Woke up that day feeling like I had the flu and my left breas...
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beribbonedAug 23, 2014
DinaxxxxJul 03, 2014
2
By brendy1115 Blank
Hello Everyone, I was so glad to find this forum when I did back when I was first going through this ordeal with ...
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By dlsa1 Blank
I had my BS lance a puffy red patch on my breast that looked like it would explode soon and my breast felt and feels ...
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By Jieping Blank
Hello everyone, I am new to this group. Here is a little about me. I am 32 years old with a 3-year-old boy & a10-week...
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By dlsa1 Blank
Has anyone found that their IGM flares up even when their T2D is well controlled?
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By dlsa1 Blank
I have had IGM for a little over five months now and I hate it. I feel depressed and tired and I want my left breast ...
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By ktbh8 Blank
I just went to a rhuematologist last week, who ordered tons of blood work, basically to test for everything they cove...
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ktbh8Jul 16, 2014
kuulei04Feb 22, 2014
kuulei04Feb 22, 2014
3
By ktbh8 Blank
Hi - I was just diagnosed 2 weeks ago with IGM via my pathology report. My doctor said that he has never treated this...
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DinaxxxxJul 03, 2014
1
By c_mo Blank
Hello everyone! I was recently diagnosed with GM in the last two weeks (found lump, had mammogram & ultrasound, biops...
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