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granulomatous mastitis Group

This group is intended as a meeting place and forum for those who have been diagnosed with granulomatous mastitis ('GM') or idiopathic granulomatous mastitis ('IGM'). I think one of the greatest challenges with this disease is its rarity and the associated lack of understanding in the medical community. But we can share here - and hopefully make the healing process a little easier for each other.

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Avatar universal
Hi I have been doing homeopathic healing and Thankful to have successfully changed my lifestyle,diet and supplements. I almost healed and only a small lump remains...my breast almost back to normal. I want to know if any of the group hav...
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Avatar universal
Hi, I have just been diagnosed with IGM and would like to link in with others who have the condition to share experiences, get and give support, discuss treatment options etc. Very briefly my problems started in Feb 15, when I develop...
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Avatar universal
with granulomatous mastitis diagnosis in 2009 , I could heal me in 2010. I'm from Brazil and I have a blog where I tell what I did. Do not give up , be cured , yes. www.mastitegranulomatosa.blogspot.com.br
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Avatar universal
I was just diagnosed with IGM about a month ago and my first treatment was a high dose of steroids that I was on for a week. While that treatment didn't work other than it relieved my muscle aches and pains, I would like to know if anyon...
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Avatar universal
an abscess on my head popped this morning and I don't know what to do. I just clean the excess blood and pus with cotton and sometimes squeeze them out, cleaning it is a bit difficult because of my thick hair, and I'm really afraid that ...
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Avatar universal
I think one big difference for me is that I had an MRI done at the same time as my biopsy (when they suspected inflammatory breast cancer). The biopsy took nearly 20 samples, all were clean. But MRI showed "highly suspicious for IBC". Th...
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Avatar universal
Hi all, out of the blue I developed a lump that was painful at 9 o'clock near my nipple. Made a super fast family doctor appointment. A exam was done and it was super painful. A mammogram was ordered, then a needle core biopsy. The patho...
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5860291 tn?1379195535
Just to update you all, I have recovered more or less completely. Surgeon says there's no more lump. He has asked to thank my aunt who cured me with homeopathy, and is writing up a paper on me:) I'm back to normal life. Was a long term s...
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Avatar universal
I have been diagnosed with GM since 5/4/15 due to several hard lumps that appeared one day. I was experiencing several symptoms from procedure that I had for contraception and I believe that my body reacted to the foreign object in my sy...
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Avatar universal
Hi, I have been suffering since Nov 2014, I have had bilateral lumps and at the time I got pregnant with my second child (June 2014) seemed to be clear of lumps. I have not had surgery but have had them drained through a needle on multip...
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1515564 tn?1431386900
Hi Ladies, I have been working with a wound nurse to heal my most recent abscesses, and I wanted to share some of the things that I have learned. Some of these are things that I have not heard anyone on this site mention, and for that...
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Avatar universal
Need some advise! Both breasts affected and currently my right breast is exploding with puss for 2 years. I broke my back two years, let's just say! I'm in the 50% of patients that didn't have a great outcome. I am so frustrated a...
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Avatar universal
Hello everyone, I'm a 27 yo, I'm just diagnoised with this disease. at the beginning,in last March I felt pain on my right breast, then I found a lump, went to a breast specialist, they said its an abscess and started taking biopsies, ...
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Avatar universal
Once an abscess has drained without surgery how long does it take to heal completely? Also I seem to have an indentation where the fluid used to be. How long/if ever will it take to fill in and smooth out? Any input would be greatly a...
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Avatar universal
I'm having some trouble deciding about my dr. I don't want to trade bad for worse but I don't understand the reasoning of some of her comments. My background.. 3 months ago I had an overnight lump show up. Quite painful. I went to a ...
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1844398 tn?1318890000
My Dr.'s had told me that he doesn't know if GM would come back even after a Mastectomy. Is That true? Have you had Mastectomy because of GM?
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Avatar universal
Hi Ladies, I consulted with Dr. Roshini Rao in Dallas after I was diagnosed with IGM. I live in Houston, TX. For those of you who are interested in Dr. Roshni Rao's work. Here is an email I received today: I am including the link...
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Avatar universal
I am trying to find someone to chat with. After 3 weeks of thinking of have inflammatory breast cancer the biopsy has come back negative. MRI was suspicious for ibc, but said that gm shows up the same on an MRI My new development, is ...
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Avatar universal
In May 2014 I felt a lump in my right breast and have had ultrasound, mri and biopsy done and was referred to a general surgeon who did an incision and drained the abscess. This was the most painful experience I have ever had since it ne...
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Avatar universal
Hi All, I was suffering with GM and did the surgery and recovering at the moment. However, for the moment having steroids tablet. Now I can see the red dots on the body and face. I would like to consult the another doctor in Dubai / ...
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