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granulomatous mastitis Group

This group is intended as a meeting place and forum for those who have been diagnosed with granulomatous mastitis ('GM') or idiopathic granulomatous mastitis ('IGM'). I think one of the greatest challenges with this disease is its rarity and the associated lack of understanding in the medical community. But we can share here - and hopefully make the healing process a little easier for each other.

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Avatar_universal
I was just diagnosed with IGM about a month ago and my first treatment was a high dose of steroids that I was on for a week. While that treatment didn't work other than it relieved my muscle aches and pains, I would like to know if anyon...
Guzmom3 | Last answer
Avatar_universal
an abscess on my head popped this morning and I don't know what to do. I just clean the excess blood and pus with cotton and sometimes squeeze them out, cleaning it is a bit difficult because of my thick hair, and I'm really afraid that ...
Con98 | Posted
Avatar_universal
I think one big difference for me is that I had an MRI done at the same time as my biopsy (when they suspected inflammatory breast cancer). The biopsy took nearly 20 samples, all were clean. But MRI showed "highly suspicious for IBC". Th...
ayiyi | Last answer
Avatar_universal
Hi all, out of the blue I developed a lump that was painful at 9 o'clock near my nipple. Made a super fast family doctor appointment. A exam was done and it was super painful. A mammogram was ordered, then a needle core biopsy. The patho...
Shortfuse26911 | Last answer
5860291_tn?1379195535
Just to update you all, I have recovered more or less completely. Surgeon says there's no more lump. He has asked to thank my aunt who cured me with homeopathy, and is writing up a paper on me:) I'm back to normal life. Was a long term s...
Sush560 | Last answer
Avatar_universal
I have been diagnosed with GM since 5/4/15 due to several hard lumps that appeared one day. I was experiencing several symptoms from procedure that I had for contraception and I believe that my body reacted to the foreign object in my sy...
blessedts13 | Posted
Avatar_universal
Hi, I have been suffering since Nov 2014, I have had bilateral lumps and at the time I got pregnant with my second child (June 2014) seemed to be clear of lumps. I have not had surgery but have had them drained through a needle on multip...
Mummy2EliAndMillie | Last answer
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Hi Ladies, I have been working with a wound nurse to heal my most recent abscesses, and I wanted to share some of the things that I have learned. Some of these are things that I have not heard anyone on this site mention, and for that...
eluriajen | Posted
Avatar_universal
Need some advise! Both breasts affected and currently my right breast is exploding with puss for 2 years. I broke my back two years, let's just say! I'm in the 50% of patients that didn't have a great outcome. I am so frustrated a...
MychelleHarich | Last answer
Avatar_universal
Hello everyone, I'm a 27 yo, I'm just diagnoised with this disease. at the beginning,in last March I felt pain on my right breast, then I found a lump, went to a breast specialist, they said its an abscess and started taking biopsies, ...
87girl | Last answer
Avatar_universal
Once an abscess has drained without surgery how long does it take to heal completely? Also I seem to have an indentation where the fluid used to be. How long/if ever will it take to fill in and smooth out? Any input would be greatly a...
Lopine808 | Last answer
Avatar_universal
I'm having some trouble deciding about my dr. I don't want to trade bad for worse but I don't understand the reasoning of some of her comments. My background.. 3 months ago I had an overnight lump show up. Quite painful. I went to a ...
Sar024 | Last answer
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My Dr.'s had told me that he doesn't know if GM would come back even after a Mastectomy. Is That true? Have you had Mastectomy because of GM?
MilyJ | Last answer
Avatar_universal
Hi Ladies, I consulted with Dr. Roshini Rao in Dallas after I was diagnosed with IGM. I live in Houston, TX. For those of you who are interested in Dr. Roshni Rao's work. Here is an email I received today: I am including the link...
sandyns | Posted
Avatar_universal
I am trying to find someone to chat with. After 3 weeks of thinking of have inflammatory breast cancer the biopsy has come back negative. MRI was suspicious for ibc, but said that gm shows up the same on an MRI My new development, is ...
ayiyi | Last answer
Avatar_universal
In May 2014 I felt a lump in my right breast and have had ultrasound, mri and biopsy done and was referred to a general surgeon who did an incision and drained the abscess. This was the most painful experience I have ever had since it ne...
Annaamiri | Last answer
Avatar_universal
Hi All, I was suffering with GM and did the surgery and recovering at the moment. However, for the moment having steroids tablet. Now I can see the red dots on the body and face. I would like to consult the another doctor in Dubai / ...
samaz | Last answer
Avatar_universal
Hi everyone, I have just been to see my new consultant after being diagnosed with gm last week. As I expected, he had started me on high dose of predisolne. He has said that he prefers to give 3 week burts of the predisolne for less s...
barbados95 | Last answer
10804823_tn?1412927133
I am so glad to have found this forum! IGM is so rare that most of the medical community doesn't know what IGM is. I am 57. I was also diagnosed with IGM almost a year ago this Nov. It has been a very hard year. I developed it first i...
Laurel_Wessie | Last answer
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