Has anyone had an MRI done?

[ayiyi]

I think one big difference for me is that I had an MRI done at the same time as my biopsy (when they suspected inflammatory breast cancer). The biopsy took nearly 20 samples, all were clean. But MRI showed "highly suspicious for IBC". They were biased (told what they were looking for), but did offer an addendum once they saw the biopsy results and said that GM shows up the same as IBC and that GM could be the true diagnosis.

I am having a repeat biopsy tomorrow (terrified! my breast is already so sore and cut up, especially with the leaking abscess) and I am shocked so many of you only had the 1 biopsy done. I know the repeat in my case is due to 2 things: no doctors here (Ontario, Canada) seem to even know what GM is and 2) the MRI report. Doctors also keep saying my symtoms were "too sudden" (woke up with pain for 4 days and then the hardness/inflammation began), but according to this forum that's normal.

Sorry if this post is all over the place! It's been a REALLY stressful month for me and I only recently started to realize I might not be dying of IBC.

Anyway, just wondering if anyone else had an MRI that said the same thing?  

[SandeeWig]

Hi! Curious what you have found out since. I had a double biopsy (two lumps found originally) - both came back negative for BC; but before those results came back, I had an MRI, which should nothing but inflammation (which is what the mammogram and biopsy indicated). The pathologist in my hometown did NOT see the granulomatous cells; it wasn't until I went to a specialist in a larger city were the cells seen and I was properly diagnosed. I understand the stressful month...We were going thru this at the same time, apparently...Found lumps Dec 24, 2014; diagnosed end of February. January totally and completely sucked.

Go see a specialist. Get a referral to someone who knows about this. BC doesn't typically come on that fast (i know IBC does, but it has certain characteristics that GM doesn't. I was convinced I had IBC too, but I don't), and most cancers do not hurt like GM does.

My biopsy sites became the first extraction points for the puss GM exudes. Just fyi. Since then one site has been created and opened all on its own, and i have another one on the way...How are you?? :)

[JoJo45]

Hi - I am JoJo45.  I am in Toronto.  Doctors at Sunnybrook and Women's College Breast Centre (where I was treated) do know about IGM.  Try there if you are still suffering.  All the best.