Aa
Treatment with Methotrexate Alone - Have you Seen This Article?
http://www.jrheum.org/content/36/7/1559.full
I thought this was interesting - treating with methotrexate alone, no steroids....
I know it has side effects which can be quite serious, but so can prednisone, and prednisone did not work well for me, or from what I read, for many others.
I thought this was interesting - treating with methotrexate alone, no steroids....
I know it has side effects which can be quite serious, but so can prednisone, and prednisone did not work well for me, or from what I read, for many others.
That is very sad to hear. I had a dream yesterday that I woke up with both breast infected.
Is there any study about getting GM in both breast? Is it "normal" to get in both? WLD also had GM in both breast so it seems there are more cases and probably more cases than we know. I sometimes think about how many GMs there is out here. There are probably many other who is not in this forum.
Hope that there is a quick recovery for you and that it will heal soon.
... I take the methotrexate once pr week now, on sundays. I feel very sick til thursdays.. and soon its sunday again. I hope that this will have an ending soon. For all of us.
Is there any study about getting GM in both breast? Is it "normal" to get in both? WLD also had GM in both breast so it seems there are more cases and probably more cases than we know. I sometimes think about how many GMs there is out here. There are probably many other who is not in this forum.
Hope that there is a quick recovery for you and that it will heal soon.
... I take the methotrexate once pr week now, on sundays. I feel very sick til thursdays.. and soon its sunday again. I hope that this will have an ending soon. For all of us.
Hey Lill:
Glad to hear you are hopefully on the right track....your breast sounds so painful...really hope that stops soon...you deserve a break my friend.
I am having some not great changes and quite worried -- in both my IGM breast and other breast now. Trying not to stress too much, but really hard.
I hope to have some answers from testing next week.
JoJo
Glad to hear you are hopefully on the right track....your breast sounds so painful...really hope that stops soon...you deserve a break my friend.
I am having some not great changes and quite worried -- in both my IGM breast and other breast now. Trying not to stress too much, but really hard.
I hope to have some answers from testing next week.
JoJo
Hello ! :-)
How are you all doing?
About the prednisone, I took it just for two weeks.. I guess that was not the thing for me. I felt terrible and my head started to mess with me. I was so afraid of gaining weigth after a long history with eating disorders and the docs understood me. Thats my choise.
On second week with metho now, the breast is still very open and huge.. but it will take a while (if) before it starts to work. Im bin having influenza symptoms the last days but I feel OK. Im a bit upset why I didnt start on metho earlyer but I guess thats the way it is now, and the docs in my country Norway does not know mutch about GM. But I have to trust them and thinking that I am in good hands.
Hope that everybody is doing a bit better than last time I wrote.
Lill.
How are you all doing?
About the prednisone, I took it just for two weeks.. I guess that was not the thing for me. I felt terrible and my head started to mess with me. I was so afraid of gaining weigth after a long history with eating disorders and the docs understood me. Thats my choise.
On second week with metho now, the breast is still very open and huge.. but it will take a while (if) before it starts to work. Im bin having influenza symptoms the last days but I feel OK. Im a bit upset why I didnt start on metho earlyer but I guess thats the way it is now, and the docs in my country Norway does not know mutch about GM. But I have to trust them and thinking that I am in good hands.
Hope that everybody is doing a bit better than last time I wrote.
Lill.
In answer to JoJo's question, I had quite a few episodes of bacterial mastitis when breast feeding but nothing then till the GM a couple years later and nothing since.
Glad that I haven't experienced the "creepy" feeling that JoJo and Amy have coming off prednisone- its always a bit weird when you realise that your body or what you have put in it is messing with your mind too! - don't like it one bit and you guys really have my sympathy.
For me it was the first week on prednisone that had me climbing the walls, rather than the tailing off. I wasn't on it for very long, something like six weeks in all (for asthma/chest infection rather than GM) , so perhaps it's the cummulative effect of using it longer term that makes coming off so hard.
I always used to like to think that it was up to me to decide what and how I did things, but the more that I find out how hormones and drugs affect my reacations and wellbeing, the more I realise that's just an illusion. I suppose that's the biggest thing that most of us who are used to being generally well have to come to terms with when faced with any significant health problem - we have come to expect that everything can be fixed somehow. Not that I'm yearning for the bad old days when getting to 40 was considered an achievement or anything!
Sorry for the ramble - definitely not as eloquent as JoJos!
Glad that I haven't experienced the "creepy" feeling that JoJo and Amy have coming off prednisone- its always a bit weird when you realise that your body or what you have put in it is messing with your mind too! - don't like it one bit and you guys really have my sympathy.
For me it was the first week on prednisone that had me climbing the walls, rather than the tailing off. I wasn't on it for very long, something like six weeks in all (for asthma/chest infection rather than GM) , so perhaps it's the cummulative effect of using it longer term that makes coming off so hard.
I always used to like to think that it was up to me to decide what and how I did things, but the more that I find out how hormones and drugs affect my reacations and wellbeing, the more I realise that's just an illusion. I suppose that's the biggest thing that most of us who are used to being generally well have to come to terms with when faced with any significant health problem - we have come to expect that everything can be fixed somehow. Not that I'm yearning for the bad old days when getting to 40 was considered an achievement or anything!
Sorry for the ramble - definitely not as eloquent as JoJos!
Hi - I think that Amy is saying she had developed bacterial mastitis in the breasts, and then somehow this evolved in to GM, perhaps from her body trying to fight the regular infections...I would be interested to know if others have bacterial mastitis before they have GM - whether the immune reaction to the bacteria is in fact what causes the GM, which most of us have had cultured for everything known to man (literally), and it is not bacterial...etc.,
I have read that up to 90% + of women have breast cysts on autopsy...severe fibrocystic breast disease is another thing and I do agree with Amy that very likely this puzzle will end up being about hormonal/prolactin/autoimmue interactions, which is why most women experience post breast-feeding.
I really hope one day soon someone cares enough to put their scientific mind to this and we can all laugh about the good old days when GM was treated with steroids and chemotherapy and women can stop suffering and trying to save their own breasts.
I had the same creepy feeling Amy when tapering from Prednisone - really weird...can only imagine what the chemicals in your brain and body are doing, but it does straighten out...for me took quite a few months, but managed.
JoJo
I have read that up to 90% + of women have breast cysts on autopsy...severe fibrocystic breast disease is another thing and I do agree with Amy that very likely this puzzle will end up being about hormonal/prolactin/autoimmue interactions, which is why most women experience post breast-feeding.
I really hope one day soon someone cares enough to put their scientific mind to this and we can all laugh about the good old days when GM was treated with steroids and chemotherapy and women can stop suffering and trying to save their own breasts.
I had the same creepy feeling Amy when tapering from Prednisone - really weird...can only imagine what the chemicals in your brain and body are doing, but it does straighten out...for me took quite a few months, but managed.
JoJo
It had been my plan before swimming to put waterproof bandaids over my nipples. I had purchased the bandaids, I was all set, and then I didn't follow through. I recently went back in the water with the bandaids. The new infection in the second breast is not getting worse, but it is not completely gone either. Pain, hotness, and redness are gone, but there are hard little nodules around the top of the nipple that were not there before the infection.
Lill: the methotrexate made me feel pretty sick on the one day of the week I had to take it. But on the rest of the days of the week I was pretty much OK.
I have been putting progesterone cream on both breasts in hopes that it may counteract any too-high estrogen situation in there. It seems to have a positive effect. Also, alternatively, I smear iosol iodine on both breasts, over the problem areas. I read that it has an anti-estrogen effect also. It also seems to have a positive effect. I was looking at websites, not about GM, but about breast cysts in general. Fibrocystic breast disease, or whatever it's called. They discuss the relationship of estrogen to breast cysts. I was wondering whether following the prescriptions they give for avoiding breast cysts could have any effect on the GM? My caffeine intake is not very high, but I am not keen on cutting it down any further.
I swab out the inverted nipples (one I already had, and one was caused by GM) with colloidal silver a couple of times a day. (Interesting: I had horrible pimples on my chest from the prednisone which completely cleared up when I switched from standard pimple cream to application of watered-down colloidal silver).
Miriam advised me to take herbal supplements to help with the withdrawal of the prednisone. Yes, I do take stuff: pantethene and this other thing called adrenal support. I can't tell if they are helping. Thanks for the story about what happened when you reduced the prednisone. I feel fine in the early part of the day and then I begin to feel really creepy in the afternoon. Hard to describe the feeling of unwellness.
Lill: the methotrexate made me feel pretty sick on the one day of the week I had to take it. But on the rest of the days of the week I was pretty much OK.
I have been putting progesterone cream on both breasts in hopes that it may counteract any too-high estrogen situation in there. It seems to have a positive effect. Also, alternatively, I smear iosol iodine on both breasts, over the problem areas. I read that it has an anti-estrogen effect also. It also seems to have a positive effect. I was looking at websites, not about GM, but about breast cysts in general. Fibrocystic breast disease, or whatever it's called. They discuss the relationship of estrogen to breast cysts. I was wondering whether following the prescriptions they give for avoiding breast cysts could have any effect on the GM? My caffeine intake is not very high, but I am not keen on cutting it down any further.
I swab out the inverted nipples (one I already had, and one was caused by GM) with colloidal silver a couple of times a day. (Interesting: I had horrible pimples on my chest from the prednisone which completely cleared up when I switched from standard pimple cream to application of watered-down colloidal silver).
Miriam advised me to take herbal supplements to help with the withdrawal of the prednisone. Yes, I do take stuff: pantethene and this other thing called adrenal support. I can't tell if they are helping. Thanks for the story about what happened when you reduced the prednisone. I feel fine in the early part of the day and then I begin to feel really creepy in the afternoon. Hard to describe the feeling of unwellness.
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