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granulomatous mastitis User Group
When is the right time for mastectomy?
About This Group:

This group is intended as a meeting place and forum for those who have been diagnosed with granulomatous mastitis ('GM') or idiopathic granulomatous mastitis ('IGM'). I think one of the greatest challenges with this disease is its rarity and the associated lack of understanding in the medical community. But we can share here - and hopefully make the healing process a little easier for each other.

Founded by JoJo45 on January 17, 2010
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When is the right time for mastectomy?

Hi, I am 38 and I have two boys 10 and 8;  I breastfeeding them for around a year to each one. My Dr found the GM one year ago and I had had abcesses each three months I donot why but is each three month and in the same side of my right breast. I had been in a treatment with prednisone and Methotrexate for one year but the abscess goes away and comes back, so I guess that the medicine is not working in my body, at less not for the GM, b/c is killing me with the side effects. I would like to start think on the mastectomy but i am really confused. yesterday I was on the Dr and actually I have a drain until tomorrow when the Dr will change it.
I have decided do not take more the predinison neither the Methotrexate and wait to see what is going to happen me, but I am afraid that the abcesses could come back more frecuently.
Based in your experience somebody can help me??
4 Comments
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Hi Mora74, I'm sorry that you are having to deal with this disease.  I wish I could help you and give you advice, but I am new to this all.  My first symptom started 3 months ago.

If you have time I would suggest to read all the previous posts on this forum.  It takes time but you may be able to get some answers that way.  I haven't read every single post yet, but if you do read, alot of women share their experience and you can get good information from that.

I wish you the best and hope you find answers and find relief too.
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I have also had this illness for just three months. I have had one round of oral prednisolone and one prednisolone injection. They reduced the swelling a bit, but did not eliminate the problem. I refused to take methotrexate because I cannot accept the possible side effects. I am also refusing more prednisolone because of side effects and because it does not work completely. My doctor is trying me on doxycycline just in case this is caused by a corynebacterium. I am seriously considering mastectomy.
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My doctor said your breast will never heal and that its best just to fight the infection.
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I mean thats what she told me.. I'm glad we did nothing but some meds and visits to remove some needles to drain the infection.

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