Hi Mora74, I'm sorry that you are having to deal with this disease. I wish I could help you and give you advice, but I am new to this all. My first symptom started 3 months ago.
If you have time I would suggest to read all the previous posts on this forum. It takes time but you may be able to get some answers that way. I haven't read every single post yet, but if you do read, alot of women share their experience and you can get good information from that.
I wish you the best and hope you find answers and find relief too.
I have also had this illness for just three months. I have had one round of oral prednisolone and one prednisolone injection. They reduced the swelling a bit, but did not eliminate the problem. I refused to take methotrexate because I cannot accept the possible side effects. I am also refusing more prednisolone because of side effects and because it does not work completely. My doctor is trying me on doxycycline just in case this is caused by a corynebacterium. I am seriously considering mastectomy.
My doctor said your breast will never heal and that its best just to fight the infection.
I mean thats what she told me.. I'm glad we did nothing but some meds and visits to remove some needles to drain the infection.