help and in pain... need answers, or any suggestions other than "its all in my head"... after 9 yrs of pain,

[arslkmeddy]

I am also 35 yrs old and had my laproscopic gallbladder surgery 9 yrs ago.  And have CONTINUOUS stomach spasms for the past 9 yrs.  I have been all over trying to get relief.. The only medicine that helps is hyoscamine for the spasms.  And right now i am on 2 0.375 mg of them daily, plus i have the fast acting hyoscamine for immediate relief, which i have to take sometimes do to still having spasms.  They can come at anytime... Especially  if i have any kind of narcotic med due to the Doctors think that would help the pain, but actually makes worse!!, Can have spasms with anything HIGH in acid, also, with fatty meats such as sausage, hotdogs, etc.  So, i am at a loss. AND READY TO SUE... due to no answers from any doctors... And now they are saying that it is all in my head so i need some answers...And i have also developed a NEW SYMPTOM where my stomach is so bloated that it hurts to breathe.  Like my stomach is crushing my diaphram.  I have been tested for Gastroparesis by swallowing exam and found it was extremely slow, but since i was taking the hyoscamine at same time, that can also slow food passage...I have had 2 ERCPs where my 1st one in 2006 my bile duct was completely shut with sludge that they did a spincterotomy, then this past May had another one as they thought the bile duct closed up again but found that both the pancreatic and bile duct were open and clear but put a pancreatic safety stent in and it caused such bad spasms that they had to take out the stent the next day as emergency due to my lipase was so high.  (237)  So, i need answers... My family doctor is sending me to a psych as they think i am making this up... And since my last ERCP I have lost 20 lbs and they think i have an eating disorder which is so not true as i eat approx 6 meals a day... And they also have put me on Motillum which is a drug that u can't get in US as it is not approved by FDA.. So, have to buy at a Comp Pharmacy.   VERY EXPENSIVE... So can anyone else help me... As i am still in pain... I am sitting here just crying, as it literally hurts to touch my lap scar in my stomach... I am also wondering if the surgical clips still in could be causing all of this pain, as i do feel a "popping" sensation once in a while and immediate pain right around my liver... Like something is stuck.. Also having AST levels high (47) everytime, but they don't seem to be concerned...I also have developed some new pain in my joints, especially my fingers,could this be related to any of the above. So i need help.. Any suggestions would be wonderful as i am just fed up and want to sue for pain and suffering...


This discussion is related to Abdominal Pain in the Front and Back Upper Left Area.

[sheremembers]

If you can, please see the "tell us something about yourself" portion of my profile that I just typed as part of joining medhelp.  It sounds to me (although I am NOT a doctor & my suggestions, etc., should never be used instead of consulting a physician) like you may have chronic pancreatitis.  If you read my writeup, you'll see that I didn't get help for many, many years as most doctors are loathe to diagnose something w/o clear cut evidence.  That said, in the litany of doctors I did see, 2 actually said (& did) things that made sense to me.  The first Dr., said the following after I had a sort of "exploratory" ERCP:  "although I see only minor changes in your pancreas...you must remember that EVERY disease process starts at the cellular level before it has progressed to the point that it can be seen to the naked eye or even using visual imaging studies" (like MRIs, CT scans, etc.)  I have repeated that line to a number of physicians and every one of them paused to think about it & they all agreed that this is very true.  Not that this will help you but it's something to consider & fun to watch their reaction when you come out w/something so profoundly true!!  That said, again read my profile writeup as well as describing to me exactly what your pain feels like, where it happens, etc., and if it seems like cp & you're interested, I'll give you the name/phone number & email (yes!  this doctor actually uses modern forms of communication w/his patients and will email you answers to questions, etc.) of my surgeon.  He also believes that often, diagnosis isn't able to be made until a biopsy is examined under the microscope and even then he told me that if the biopsied portion taken for the exam is a "healthy" portion, the diagnosis can be wrong in that there may be other areas of the pancreas that are diseased but did not get taken for a biopsy.  Please read my story and then write to me again ok?  Thanks!

[arslkmeddy]

Hello!  I have actually been to 4 different GI doctors..  And no one has any answers...I was hoping there would be a miracle and a GI doctor on this website would help or give some new suggestions! :)

[jennerfennerbenner]

Have you tried a different dr???  The joint pain could be from your immune system taking a beating.  Motillium generally works well.  And I say--the hell with a psych and find a differ dr.!!!!!