Dear Diane:
I am sorry to hear of your multiple problems. I am not sure if there is anything that I can do over the internet. It seems that you have tried everything and most pain medications. As you have probably been told, surgery is always the last option for spinal cord induced pain. Obviously, this is because once surgery takes place, the procedures are usually irreversible and the damage is the same. We often hope that the surgery can make things better and in most cases, this is what happens. But, there are cases when the pain is only made worse, and the defects due to the surgery remain and are also a problem. There is little to suggest, but only to begin the process of trying to regain small victories of functionality. Your life must become one of small victories of gaining more time to do things, if only for 10 minutes more a day. The mindset of trying to live with the pain and most importantly through the pain must be taken. I realize that you already know these things and are doing them. But, I am just trying to help you realize that there are things down the road that we know nothing about, new discoveries in spinal cord pain, life high points, etc. You can't do these things alone, you need a good team of support, health professionals like PT, rehab, and some loving pets.
I am sorry, that my help is only in words. I do wish there were things to tell you to do that would make life normal again.
Sincerely,
CCF Neuro MD
Dear Diane,
I'm sorry to hear about all that you have gone through. I can relate to you because I have most of the same symptoms as you. I had a car accident in July 96. Since then I have had all of the problems you have with the exception of the turning head. Most of my doctors have given up on me. It's extremely frustrating. I just found out that the anterior cervical diskectomy I had in Nov 97 is incomplete and that the part of the disc the surgeon left in is now herniated. I'm supposed to go back to the neuro-surgeon on the 20th. what bothers me more than the pain is my memory loss. I feel brain dead. I can't remember the simpliest things anymore.
I have found a really good chat forum if you're interested. The people there all have spinal problems. There are no doctors to answer your questions, but people who have been there. It is
www.neuro.mancer.mgh.harvard.edu
then go to Spinal Disorders.
Hope this helps.
You can also e-mail me at ***@****
Take care and Good Luck,
Barb
thanks for your comments.
CCF Neuro MD
HELLOW I HAVE A MAJOR PROMBLEM. I HAVE PAIN IN MY SHOULDER RIGHT AND RIGHT ARM.HAND.HAD MRI DONE SHOW 2 PULDGING DISK C-5 AND C-6
I HAVE BEEN TO A LOT OF DOCTORS AND HAD A LOT OF TEST DONE. THE DOCTORS KEEP SAYING THEY CANT FIND ANYTHING ON ANY TEST THATS BEEN DONE. I DO HAVE CTS AND DISQURIVENS DIEASE.BUT THE DOCTORS WILL NOT SAY THAT IS WHAT IS CAUSING MY PAIN. BEEN TO PT FOR ABOUT 4 WEEKS. NOTHING IS WORKING. THE PAIN IS SO BAD AT TIMES I CRY. THE PAIN MEDICATION ONLY HELPS A LITTLE BIT. I ALSO HAVE PAIN IN MY NECK. IT HURTS TO DRIVE CLEAN HOUSE OR TO DO ANYTHING. I WAS A ACTIVE PERSON BEFORE THIS HAPPENED.CANT FIND A DOCTOR THAT WILL TOUCH ME BECAUSE OF ALL THE TEST I'VE HAD DONE AND NOTHING SHOWS UP. I'M AT THE END DONT KNOW WHAT TO DO. THIS IS WORKERS COMP INJURY.THIS HAS BEEN REALLY HARD ON ME BECAUSE ALL I WANT IS TO BE FIXED.DO YOU HAVE ANY SUGGESTION WHAT IT COULD BE.I HAVE NUMBNES IN MY THUMB INDEX AND MIDDLE FINGER PAIN THAT GOES UP MY RIGHT ARM AND SHOULDER NECK HURTS ALL THE TIME DULL THROBING PAIN AND DO HAVE SWELLING. NECK POPS ALL THE TIME AND SOMETIMES PAIN IN MY RIGHT LEG. MY SHOULDER ALSO CATCHES SOMETIMES LIKE WHEN I'M REACHING FOR SOMETHING. PLEASE RESPOND NEED ALL THE HELP I CAN GET THANK YOU PATRICIA CHAVEZ MY EMAIL I ***@****
Dear Patricia:
I am not sure what to tell you. Without examining you and seeing the films, I can't make a comment. With completely normal tests it is difficult to support a worksmanship comp case. Your only alternative is to get a second opinion from another neurologist or neurosurgeon.
Sincerely,
CCF Neuro MD
DO YOU THINK IT COULD BE THE CARPAIL TUNNEL SYNDROME THATIS COUSINGMY PAIN.EVERYTHING THING THAT HAPPENEND AT WORK STARTED WITH THEE THUMB POPING IN AND OUT OF PLACE THEN MOVED UP MY ARM AND INTO MY SHOULDER . I DID A LOT OF HEAVEY LIFTING AND COMPETIVE WORK WITH MY HANDS. CANT UDERSTAND WHY THEY CAN NOT TELL ME WHAT IS GOING ON.I READ THAT CTS CAN SHRINK THE MUCLES IN THE NECK AND SHOULDER. THEY NEVER DONE AN MRI OF MY ARM. THANK YOU FOR ANSWERING BACK I WAS HOPING FOR SOME KIND OF HELP JUST TO EASE MY OWN MIND
Hello! I only have a question to ask, as I am currently seeing what seems to be a very good doctor. If he doesn't know he wants to send me to a specialist to find out for sure, then he sends me a report on what he finds. The question I have pertains to one of his most recent reports, it says that I have a "hardened disk" in my neck along with a bulging disk and several deteriorated disks. I have SEVERE PAIN in my neck and back because of this, could you explain a "hardened disk" for me? Thank you, Sam
Hi Patricia--I just read about your problem. I too worked in factory and did heavy lifting and repetitive motion work. I had pain in my shoulder working its way down my arm. I was treated for tennis elbow with no relief and finally had an MRI done that showed herniated discs at c4-5, c5-6 and c6-7.These were caused by the repetitive motion but I had a hard time proving it although I won my case in the end. I also had trigger finger previously and have carpal tunnel also. I had surgery to correct the trigger finger(which it sounds like you have in your thumbs) The pain in your thumb and index fingers sound like they are stemming from the carpal tunnel. The pain in your neck and shoulder, radiating down your arm to your fingers sounds like it is coming from the bulging discs for sure. Those were the exact same symptoms that I had! It is difficult to get anywhere with a comp. case but it can be done and the doctors don't like to deal with them until they are settled but if you are persistant you can get treatment. I know exactly what you mean about the persistant pain because I have been there.I wish I could say that there is an easy way out of this but there isn't. You just have to be persistant. You probably have a long road ahead of you, as I did but keep going until you get some satisfaction. I hope you can find a good doctor to help you .Take care---Debbie
I WAS TOLD I HAVE A BONE SPUR ON MY 7TH CERVICLE DISC AND WILL HAYE TO HAVE SURGERY BECAUSE IT IS PRESSING ON A NERVE I HAVE PAIN IN MY RIGHT ARM ALL THE TIME MY QUESTION WILL THE PAIN BE GONE AFTER SURGERY?
I am 33 years old and have been having a stiff neck since May, 99. It is getting progressively worse where I have had some numbness and pain down my left arm. This worries me because I have suffered with some arrythmias because of a congenital problem around the apex of my heart. My cardiologist assures me this is not causing the problems. I have been on anti-inflamatories, muscle relaxers, pain pill, anti-anxiety medications and a medrol dosepak (medrol did seem to get rid of the pain & numbness down the arm for six weeks). However, it has returned and the stiffness and pain in my neck is getting worse. I had an MRI which basically came back normal except for a narrowing of C6-7 (which I do feel almost a shocking sensation when I pick things up in that area). The pain is not in that area though. It is in my shoulders mostly and when it is real bad, it is down my left arm. My orthopedist feels he cannot do anything for me and maybe I should get a second opinion. He believes it to be stress related except when I complain of the pain and numbness down the left arm. I have had tension in my neck before and this doesn't feel the same. It almost feels like my neck and the muscles in my neck are going to lock up on me. He recommends getting a second opinion, but doesn't know what they will be able to do for me either. Should I see another orthopedist or a neurologist.
Hi Tonya-the pain and numbness in your arm could very likely be coming from the problem with C 6-7. I would recommend finding a very good Orthopaedic Spine specialist and get his opinion and go from there. There are a lot of things that can be done to help you-I know -I have been there. Good luck! Debbie
Since I can't post a comment myself, I will try this.
I am a 47 year old male 46 months out from C5,6,7 fusion with a titanium plate. Have suffered constant, intense, sometime debil-
itating pain since.
Because this was a Work. Comp. injury, there have been many delays in treatment. Since the May 1996 surgery, I have had 4 MRI's, 2 bone scans, epidurals, weeks of PT and nothing has helped.
I was sent to a new Neurosurgeon(who operated on my lower back in 1999) who took one look at the films and told me that the fusion at C6,7 had not taken, and that surgery is the only way to fix this but the odds are 50-50 at best that it would work.
I had decided to go ahead with the surgery. However, W.Comp. sent me back to the Dr. who did the surgery in the first place.
He hasn't seen me in nearly 3 years, telling me that he could do nothing else for me and that we fixed 2 of 3 problems and 2 of 3 isn't bad. Needless to say I did not want to deal with him but I was forced to.
He told me that you can't tell from an MRI if a fusion didn't take(a radiologist I know disputes this) and that we need a bone scan. It showed increased uptake in right facet joint at C1,2; mild increased uptake at C6,7 and increased uptake at the left acromioclavicular joint.
I had a nerve test done before the bone scan and it showed problems at C6,7 also.
This Dr. told me that I could get the C6,7 fusion redone and it may help, and he also told me that because of the previous fusion, the ares above and below could be injured because of the strain at C5,6,7.
Work. Comp. will not authorize further treatment because they feel that the problem at C1,2 is the reason for the pain and the Dr. told them that he doesn't feel surgery is needed, even though he told me otherwise.
Can the problems at C1,2 and the acromioclavicular joint come from the stress of the fusion at C5,6,7? Four years of red tape,
dealing with insurance and Work. Comp. and the pain is about all I can deal with. Thanks
Danny Duncan
Addition to previous comment, perhaps MD can respond.
Just read report on latest MRI, 45 months pos-op.
Findings are: Significant artifact produced by fusion at C5-7,
straightening of the normal curvature of the c-spine with posterior spondylolisthesis of C4 on C5 w/ absent disk signal from C4-5 to C6-7.
Is an alteration of normal curvature of the C-spine normal, can this be causing my constant pain and can degenerative spurring on the posterior aspect of C5-6 and C6-7 have been caused by my previous fusion at C5,6,7.
Also, in laymans terms, what is spinal stenosis and spondylolisthesis?
Thank you,
Danny Duncan
***@****
My sister,75,has been diagnosed as having 5 crushed vertebra and osteoporosis. A cememning operation is being suggested. Her pain is severe. What is cementing and does it have a good chance of helping?
Dear Walter Boone:
When a patient is not a candidate for surgery, sometime a procedure to use a specific type of glue can help patients with spinal cord problems. The glue will help stabilize the column and help to stop progression of the problem. The extent of your sister's problem would suggest that although the glue might help, there may not be a full recovery. The physician taking care of your sister should be able to tell you more.
CCF Neuro MD
I AM A 41 YEAR OLD WOMAN WHO HAS A MAJOR HERNAITED DISC AT C5 C6, PRESSING ON MY SPINE, I HAVE HAD IT FOR 2 YEARS, I HAVE DONE THE FOLLOWING, 2 NERVE BLOCKS, SHOTS IN THE NECK, REHAB, PHYSICAL THERAPY, CHIROPRACTOR. NOW DR IS GONNA TRY A FACET NERVE BLOCK, THEY HAVE RECOMMENDED I DO A FUSION BUT I AM TOO SCARED, IS THERE ANYTHING ELSE I CAN TRY? aND HOW SAFE IS IT TO OPERATE?
THANK YOU,
DONNA
Dear Danny Duncan:
Sorry to hear of all your problems and the additional headache dealing with worker comp. Spinal stenosis is where the spinal column where the nerves are running is narrowed. When this is severe, it causes compromise of nerve functioning down stream of the stenotic area. Spondylothesis is where the vertebrae slide out of alignment due to various etiologies, the sliding can be either posterior (most common) or anterior. The sliding can cause the normal curvature of the neck, thoracic, lumbar region to be abnormal (depending on where the vertebrae is out of alignment). Anything is possible in medicine, and certainly problems in lower vertebrae can cause problems upstream. Whether yours did or didnot I can't tell. Likely the curvature is not causing problems with pain, but the boney changes might be, again, without seeing the films I can't tell.
Sorry, I am not helping you much.
CCF Neuro MD
Dear Doctors,
I'm hoping you can help educate me to make a major decison. First of all I have major neck problems, I'll try to keep this short. I recently had a current MRI done on 3-22-2000 and the findings wern't very good. At the level of C3-4 I have bilateral severe narrowing of the intervertebral foramina, right more than the left due to the combination of the uncovertebral and facet hypertrophy. No focal herniation is seen. There is nerve root compression especially on the right side. There is mild centeral stenosis.
C4-5 There appears to be a chronic central focal herniation. There is some osteophyte formation but there appears to be clear protrusion of the disc beyond the bony margins especiallly on the sagittal views. There markes flattening of the cord with severe central stenosis. There is severe narrowing of the intervertebral foramina bilaterally with bilateral nereve root compresion.
C5-6 Note is made of a right paracentral focal herniation. Again, there is severe cord compresion and central stenosis seen with severe uncovertebral and facet hypertrophy especially on the left side.
C6-7 Note is made of a central osteophyte causing flattening of the cord. There is intervertebral narrowing on the left side with compression of the nerve root.
My dilema is this. I have seen two neurosurgeons in the past 3 weeks, both gave me pretty much the same answer, surgery. I'm not real sure what the name of the surgery is but it involves a fusion for c3-4 and c4-5, with the plates and the screws. Also taking the bone from my hip. The second Doctor recommended that I have a myelogram done first to see what else is going on behind the disc. He said something about harding or calsufication? He also said I really wouldn't need any type of rehab afterwards. The other Doctor said I would have a lot of theorpy to attend. I'm confused about that. I also want to know why they are not addressing all my disc problems and only the two worse ones. Should I contact the first Doctor and ask to have a mylogram done first or not.
Thank you for your time and knowledge, I'll appreciate any advice you can offer me.
Sincerley Michelle
I also have severe neck, shoulder, arm pains. I have had xrays, CT, MRI, etc, etc. I have couple small bone spurs and some narrowing at C3-4, C4-5 and C5-6 but docs say not enough to cause the pain I'm in. Now I have gone to a Neurologist and he has determined this is "Parsonnage-Turner Syndrome". From what I could understand from him it is some kind of muscular virus that can be treated with predinizone. I can't find anything on it on the net. He said this was a farily new diagnosis. Can you tell me anything about this new? syndrome? I just started taking the pred but no results yet. I am female, 55 yrs old, active and am having blood work done for everything from Polymyalgia to MS. HELP!
I also have severe neck, shoulder, arm pains. I have had xrays, CT, MRI, etc, etc. I have couple small bone spurs and some narrowing at C3-4, C4-5 and C5-6 but docs say not enough to cause the pain I'm in. Now I have gone to a Neurologist and he has determined this is "Parsonnage-Turner Syndrome". From what I could understand from him it is some kind of muscular virus that can be treated with predinizone. I can't find anything on it on the net. He said this was a farily new diagnosis. Can you tell me anything about this new? syndrome? I just started taking the pred but no results yet. I am female, 55 yrs old, active and am having blood work done for everything from Polymyalgia to MS. HELP!
My neck is very stiff and I can't turn it very far in either direction. I have had an MRI but no answers to my problem. I had to stop golfing my neck is to sore. I have a problem driving now because I just can not turn my head at the corners. Where do I go to get some help? ***@****
Get a big gun.Shoot yourself in the ******* head,Pain is gone.
I so feel for you, I have not had the probs you have had. I "sprained" my neck 20 years ago, along with really bad physical therapy then, I suffer everyday. Chronic pain and alot of times an inability to physically get up out of bed. I have had recent physical therapy. The therapists figured traction was a cure all, so I was willing to try anything. Traction resulted in a bright flash in my eyes, head, violent nauseau and vomitting, and weakness in my left side very severe. The MRI has shown a bulging disc at C4-5 and nerve compression at C6-8. The docs "aren't that excited about it" so I continue to be in terrible pain. I have been on relafen, celebrex and now going to lodine. I was also prescribed Paxil for some unknown reason, which I quit taking right after the news article on a tv magazine show. I have had no relief and am so looking for a cure. Or at least to wake up one day, just one is all I ask, to be pain free after 20 years, I wish it could happen. I so wish that you can get better, if so let me know, I will try anything.
hey
I need 7 names of CERVICLE BONE so pls can u find it.....
thanx see u later
waiting for yur reply