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macular hole recovery

Can anyone tell me how their recovery went?  Was the surgery painful?  Did you get your eyesight back?  Are you able to drive after recovery?  How difficult is the face-down recovery process?  Will I need help in daily care during recovery?
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Avatar universal
A related discussion, Anyone with any ideas was started.
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Avatar universal
A related discussion, Vitrectomy surgery was started.
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Avatar universal
A related discussion, macular hole repair post op was started.
Helpful - 1
Avatar universal
A related discussion, macular hole surgery was started.
Helpful - 1
Avatar universal
Sorry, I forgot the question about the starting date of this thread.  It was the 5/02 date, no archives.  Also, my husband uses NasaCort nasal spray for his vertigo, it is a prescription.

Cealcats
Helpful - 1
Avatar universal
Hi,

I rented my face down equipment from Vitrectomy Solutions.  They have a web site.  I rented a package which included the daytimer chair, the nightimer face down bed insert, a mirror to be able to see whomever you are talking to, which I did not use.  I would just sit up with my head down to talk to someone.  I bought a small tv and placed it below the chair(propped up).  I really watched the TV most of the time because it wasn't easy to read with one eye.  Although I did go to the library ahead of time and checked out some LARGE print books.  I was able to read some.  When reading, it was easier to sit up and have head down also.  Too difficult to read through the opening in the daytimer chair.  I am not a big TV person, but in this case, it was about all I could do.  HGTV and the Food network were my entertainment.

Also, I did the face down for 2 weeks even tho my Dr's. orders were for only one week.  I got used to sleeping with the face down device, putting my arms straight out to the sides on the matress.  I would sometimes put a pillow under my abdomen for comfort and less backaches.  I put one of my folded pillow cases over the headrest/forehead part of the sleeping device to cover the seam in it's fabric cover.  Before I did that, my forehead was very sore from resting on the seam.  With the daytimer chair, it was hard to see the TV with the fabric cover on the headrest.  So, I removed it and used kleenex tissues under my chin and forehead.  You will figure out what's best for you.

When I ordered the face down equip through Vitrectomy Solutions, I called them and left them my phone number.  I also registered on their web site.  They are not open on weekends, but you can leave a message.  I saw the Dr. on a Friday and found out the surgery was to be done the next Wednesday.  So, I was frantically trying to prepare for it.  VS contacted my 1st thing Monday morning and we set up the order.  The equipment is delivered NEXT Day or overnight.  The price includes the shipping.  I believe it was UPS.  It was delivered Tuesday around 4:00pm.  My husband and I assembled it all.  A little trickiness to the chair, but it comes with an instructional video.  Keep all the boxes.  There are return shipping labels in the box top already.  Call VS when you are finished using the equipment.  You are charged on a per week basis.  Then call UPS or they might do that.  Package up the equipment and put it on the front porch on the day they will be picking it up.  You will pay directly to VS.  They send you the receipt and Dr's orders for durable medical equipment.  You then submit it to your medical insurance provider to get a reimbursement.  That took a while.  The 1st response from them was OUT of NETWORK and all from the deductable.  I called them and explained how much I needed the equipment for recovery and that VS is who my Dr. recommended.  The filed a dispute and I received a $192. out of $250. reimbursement check.

As far as having the cataract surgery immediately, I am holding off as long as I can.  I have no signs of a cataract 3 months post op.  I'm hoping maybe it will be a miracle and I won't get one till I'm older, haaaa!  But, again that's your choice.  I have been reading the comments on this website about the different lenses and IOL's for Cataract surgery.  There seems to be a lot of unhappy patients out there, particularly with certain lens replacement types.  Not sure I'm ready to go through that at this time.

Hope this helps you.  Take care.

Cealcats
Helpful - 0
Avatar universal
Thanks so much for the comment.  Yes, I have read everything on here about macular hole.  I was wondering if there is an archive, or does it start with 5/02/06.  

You asked about my vertigo.  Well, I have it all the time, some.  The good news is the Dr. gave me something that really helps and I went back to him to get something, just in case, for nausea, yesterday.  I have tried the head down thing, and as long as I don't read (bummer) I can lie with my head down, forehead resting on pillow.  It is going to be hard, but I WILL do it.  My Dr. never suggested the oil, although I was aware of it.  I have done extensive research on the subject and know about cataracts too.  He did mention that surgery could be done at the same time to remove the lens, what do you think of that? I am wondering, why, if cataracts are inevitable, they don't do the surgey at the same time.

I am wondering about the equipment you rented.  Wasn't there huge postage on it, exactly how does that work (shipping, etc.)? I doubt I could use the chair, but the pillow thing looks like that would be nice.
Helpful - 0
Avatar universal
Good news from you.  You're doing great.

My gas did not reabsorb until 2 months after surgery.  Just give it time.

It's been 3 months since my surgery and I still have 20:60 from 20:100.  I think it will get better.  I am seeing the retinal specialist again a month after the last appointment.  He will give me a thorough exam for correction this time.  I really need an updated prescription in my glasses.  I wear contacts tho and that's more important.

I don't have any signs of a cataract yet either which is great.  I guess I don't want to invest too much in corrective lenses until I have to have the cataract surgery.  Who knows when that will be tho?  I will ask my doctor what's best.

Hang in there.
Cealcats
Helpful - 0
Avatar universal
Hi,
You've probably read some of my comments on this site already.  I am very pleased with the progress after my Vitrectomy to repair my Stage II macular hole.  It has been 3 months since surgery and my sight has improved from 20:100 to 20:60.  It will probably get better.  The Dr. thinks it should get to 20:40 with correction.  
My question for you is, how frequently does the Vertigo affect you?  My husband has been diagnosed with vertigo also, but he has only had 2 episodes in 5 years.  They are pretty bad when they occur.  He feels very dizzy and nauseated.
If you have the gas injected to seal the macular hole, you will need to do the head down position for 1 week.  If you feel you cannot tolerate that, you could op for the silicone oil vitrectomy.  It does not require head down.  But, you would need to have a second surgery to remove the oil.  Also, you'd need the cataract surgery sooner.  Maybe they would do the cataract surgery when they removed the oil?  I would talk to your retinal specialist and of course your regular doctor about the vertigo.
Let me know what surgery you plan on having.  Good luck. If you have any other questions just post a comment.
Cealcats
Helpful - 1
Avatar universal
I have been diagnosed with a macular hole.  The Dr. waited two months because it was small, and he thought it might heal.  I am scheduled for surgery Sept. 19.  I have vertigo, so the head down thing is worrying me.  Also, I was told you could have catarac surgery at the same time.  My vision is 20/200 right now in the bad eye.  Your comments are all encouraging.  Any advice??
Helpful - 0
Avatar universal
thought I would update on my macular
hole surgery (performed july 12th 06
had my three week post op last wed.
doctor had good news hole is sealed!
and vision is now 20/6o which is quite
an improvement from legally blind!
gas bubble still there hopefully will
be fully gone in a couple weeks?
hope to be driving soon?
no sign of cataract yet go back in oct.
for another check hope to read even
more lines on chart!
in my opinion the operation was a breeze
and of course the head down time quite
an ordeal (but used no equipment)
just determination ! now I can say it
all was well worth it!
thanks for all your responses and
advice and information! god bless you
all!
Helpful - 1
Avatar universal
Hi,
How was your appointment?
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Avatar universal

Thanks so much for your reply.  I scheduled an appointment today with the retinal specialist.  He is in my area on Thursday.  I felt much better about things after reading the comments on this page and I worked up enough courage for the consultation.  I must admit, I am terrified!!!  I never even tried contacts because I couldn't even think about putting anything in my eye.  I'm glad your surgery went so well.  I hope he thinks that I am a candidate and that the diabetes is not a complication.  I'll keep you posted.
Helpful - 0
Avatar universal
Hi,
Did you ever have the Vitrectomy to repair your Macular Hole?
Helpful - 1
Avatar universal
Hi,
I would definitely recommend getting the Vitrectomy to repair your macular hole.  You should see the Retinal Specialist again to have him explain everything in more detail.  Ask him what stage the Hole is.  Mine was only a Stage II, vision was 20:100.  It started as swelling behind the eye and I had a distortion in my central vision.  That's when I saw the Retinal Specialist.  Best case would be the swelling would go away and leave no permanent damage.  Chances were low that would happen.  He explained the stages of Macular hole at that time.  Ideally he would do surgery when it became a Stage II.  If he did it at a Stage I it could most likely make it into a Stage II anyhow.  I was diagnosed on March 28th and had the Vitrectomy on May 3rd.  As soon as became Stage II, I scheduled the surgery.  I opted for the gas, C3F8 Vitrectomy because he said the chances of success were higher.  Doing face down is not that bad if you rent the right equipment.  I rented the equipment through Vitrectomy Solutions.  They have a web site, but they are also who my Dr. recommended.  After surgery my doctor thought I could be corrected to 20:60 or 20:40.  Now he thinks 20:40 for sure, because I am at 20:60 now.  I see him again in 2 weeks.  If you opt for the Silicone oil Vitrectomy, you will have to have a 2nd surgery to remove the oil.  A cataract will form quicker with that proceedure too.  I am so glad that I had this surgery.  I would do it again if I had to.  Once you get a Macular Hole in one eye, the chances are 30% that you'll also develop an MH in the other eye.  I know that having diabetes probably makes things more complicated.  I wouldn't wait too long if I were you.  Make another appointment with the Retinal Specialist.  Have him coordinate efforts with your diabetes specialist.  Let me know what you've decided to do.
Helpful - 1
Avatar universal
Hi Belledonna and Cealcats,
I read with interest your comments on your macular hole surgery and post-op progress.  I am trying to decide whether to have vitrectomy.  I don't know how long I have had the macular hole.  I began noticing some vision problems in early spring but thought I just needed new glasses.  Then in April I was diagnosed with diabetes and figured that had affected my eyes.  The doctor told me to wait three months before seeing the optometrist so that we were sure the diabetes was under control and my eyes were no longer changing.  At the end of May, I happened to rub my left eye in church and noticed that the altar looked distorted out of my right eye.  I went to my optometrist who told me I had macular swelling and it would go away in a few months.  My co-worker encouraged me to have a second opinion and I saw a retinal specialist early July.  He diagnosed the macular hole and told me about the vitrectomy surgery.  However, he ended by saying, "Sometimes people our age (I'm only 59) just decide to live with it."  In the meantime I broke my glasses and scheduled an eye appointment with the eye care office where the retinal specialist visits weekly, switching from the optometrist who incorrectly diagnosed my problem.  The doctor there (a well respected eye surgeon in our area) checked my eyes.  My vision in the right eye is currently 20/200.  The retinal specialist didn't discuss stages so maybe mine is a Stage IV.  Anyway, the surgeon said my eyes look healthy.  There is no sign of diabetes in my eyes and he encouraged me to have a vitrectomy.  He felt that that surgery would not give me 20/20 vision but that an improvement could be had.  I have agonized over this decision all weekend, trying to figure out what to do.  I guess my two main areas of concern are that I could develop a macular hold in my "good" eye later on when my diabetes may worsen and I would not be a good candidate for surgery and the post-op face down recovery.  You two have helped me to know that the recovery is not as difficult as it sounds and that has eased my mind in that area.  I guess my next step is a follow up consultation with the retinal specialist to see if he feels my chances are good for some improvement with vitrectomy.  Just wondering what you guys think since you have both beeen through it.
Helpful - 0
Avatar universal
My vision was blurry for a long time.  My gas did not totally disipate until 2 months post op.  At 2 weeks it was like looking thru a 3/4 filled glass of water.  Had some peripheral vision and some vision at the top of the eye.  Still felt some pressure.  At 16 days after surgery the gas was 1/2 gone but was still blurry from a reflection of the gas.  18 days after, I had a ton of tiny black floaters. They eventually went away. At 5 weeks after surgery the gas was at 10%. I am still using the pred forte once daily as per the Dr's. orders.  DO NOT lay on your back at any time.  You need to keep the gas behind the eye to delay the formation of a cataract.  Also, I did not drive until 6 weeks after surgery.  I didn't feel my vision was good enough.  I did start riding my bike again after the 2 weeks head down.  You can get up and go to the kitchen table to eat.  I also sat up to read, with my head down though.  I got the Large print books from the library.  I have not driven on the highway yet.  I still have a little blurriness in the peripheral vision.  Also, of course the opaque/gas filled hole still distorts the central vision.  It will get better tho, but not totally.  I was 20:100 pre surgery, I am now 20:60 with correction.  My Dr. is hoping for 20:40, if not 20:20 with correction. Be patient and the healing will continue.
Helpful - 1
Avatar universal
update (gas bubble surgery) day 8
vision still blurry! seeing floaters
does this mean bubble is dissapating?
have cut eye drops in half , holding
head part time now ! but still not
suppossed to sleep on back yet!
last visit to doctor was monday
very pleased with progress go back in
3 weeks! wonder when vision will return?
Helpful - 1
Avatar universal
thanks for response cealcats!
you have been very helpful, made my wife
feel better, she's having quite a time
in the face down recovery!
we go to doctor this monday hope she
hears good news?
thanks again and glad to hear your vision has improved!
Helpful - 0
Avatar universal
I had the surgery on May 3rd.  My Dr. ordered face down positioning for 1 week only.  In his experience, if the hole doesn't seal in 1 week, it probably isn't going to seal.  I did the face down for 2 weeks on my own, as extra insurance.  I saw him the day after surgery, then 5 days later.  Hole was sealed, eye was swollen, could not see because of the gas bubble.  I could not really open my eye for the 1st week.  Then kept it shut for the 2nd week since I could not see with it anyhow.  It took a full 2 months for the gas bubble to finally disipate.  I am still seeing the Retinal Specialist on a regular basis.  At first every week, then 2 weeks apart, then 3 and now the next visit is in a month.  I have no signs of a Cataract forming yet, the hole is still sealed.  My near sightedness has gotten worse by -2.25 diopters.  My vision has improved from 20:100 to 20:60.  I am still in the healing process.  I still see a bullseye in the center of the vision, but it is opaqueish, kind of see through.  My vision is definitly not as distorted as it was pre surgery.  The C3F8 gas vitrectomy is more successful for sealing the Macular Hole than the Silicone Oil Vitrectomy.  Also, when having the Silicone method, the cataract forms much quicker.  Then there is also the 2nd surgery to remove the Silicone Oil.  So, there will be 3 surgeries in a short amount of time.  If she can tolerate the face down positioning post gas vitrectomy, it is the way to go.  Tell her to hang in there.  Good luck with everything.
Helpful - 2
Avatar universal
wife had macular hole surgery(gasbubble)
last week ! now  coming up on day four
in the face down position! Doctor orders
said a week! then a post op exam and
maybe a couple more days in the down
position! then back in about a month!
shes wondering when she will be able to
see her vision improve? and wondering
why face down time varies from 7 to 14
days or more? she is one of those 1 in
10 rare cases who has a macular hole in
both eyes! and now thinking about the
silicone treatment instead of the gas
bubble to avoid face down time when she
has the other eye done! wonders what the
success rate is for the silicone verses
the gas bubble?
Helpful - 0
Avatar universal
Hi,
My gas bubble is gone.  As of Monday morning.  It is 2 months today since surgery.  I still have the bullseye in the middle of my vision and always will.  It will hopefully get a little smaller.  I have a little distortion in my peripheral vision.  I think it's from the swelling still, where an instrument was inserted.  I see the Dr. on Friday the 7th of July.  Hopefully they'll do a thorough eye exam and I'll get a good prescription for the time being.
Have a good 4th of July.
Ceal
Helpful - 1
Avatar universal
The author of the book is an EXCEPTIONAL surgeon. Has to be. He takes the time ,for example , to show his patients how to put their won drops into their eyes , with out charging them a separate fee for doing this.My former RA doctor charged me an etra $25.00 to have his nurse (LPN) show me how to give myself an Enbrel shot.
This author believes in being thorough to the extent that he
personally calls his patients after their catarct surgeries to see how they are feeling prior to their coming back  in the following day for a check up. (That is almost unheard of!!)
I think the cost of the surgeries in the book are incorrect and in error on the side of the medical profession at large which is
overcharging for so many of its services.
Yes, the side effects of many artritis medications  is ringing in the ears.
Mine seems to be less noticible when I have background music .Lomg term use of
antibiotics can also cause hearing loss ).
Helpful - 0
Avatar universal
When I mentioned the noise in the ear problem to my Dr., he asked if I take a lot of Tylenol?  I said no.  That's when he said it was probably from an inner ear problem due to the head down positioning.  Just thought I would mention that to you.  I forgot that he had asked that question.
Have a good day.  I'm still waiting for the book. I'm sure I'll get it today.
Helpful - 0
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