Couple of quick thoughts.
"The Physicians Desk Reference places the maximum recommended dose of Adderall for the treatment of ADHD at 40 mg per day. For narcolepsy, doses up to 60 mg per day may be used." I thought that you were taking a large dose. You really probably need to know if your doctor thought it was for narcolepsy or ADD. You might want to visit this adult site for ADD. Its got a ton of good info. The site is - http://jeffsaddmind.com/for-first-time-visitors
By the way, just saw an article on how vitamin D3 helps with MS. I think its worth reading. Its - http://www.medicalnewstoday.com/articles/218144.php
Hope some of this helps and that you can find a doctor who can put all of this together for you. Best Wishes.
LOL!! I have been struggling with doctors for 10 years!
They were always treating each symptom as it's own problem, no one put the bigger picture together including myself. I guess because I don't have contant horrible headaches I never thought it was a neurological issue.
I was prescribed 60 mg in the am but as the disease worsed over the past 6 months, I've cut that down to 30 mg and some days don't take it all. It makes the confusion worse, much worse. Almost to the point of feeling like I've had a stroke because I have trouble thinking, talking, and with coordination.
I didn't know if flat out stopping Adderall would make me feel sick? I'm already so sick it would be hard to tell what is disease and what is from going off a medication. The neurologist said it doesn't help my MS but on the other hand realized I needed it to have enough energy to get out of bed.
That was 18 days ago, today things are much worse and I don't get out of bed so I don't have any need for the Adderall. I think the pdoc who wrote it did think I had some ADD symptoms because back then focus and concentration were very difficult.
I never had enough time with him to go through my list of 53 symptoms so I see why no connection was ever made.
Plus I tend to not complain and push through things which ultimately was what got me to this point.
Unfortunately the neurologist I was sent to dropped the ball and is not getting more tests or even returning my calls. I see my family doc today to start the process all over.
That's a whole different story, don't get me started.
The Adderall did make me feel weird at first and there was a lot of adjusting the dose. My doc then let me decide to take the afternoon or dose or not depending on how I felt. I developed a tremor which became noticeable 3 months ago and has gotten much worse in the past 6 weeks. The Adderall does NOT help that.
I don't see the p doc anymore, out of money and cannot drive anymore. My family doc doesn't know if stopping Adderall will make me sick or not. I should say "sicker".
The Adderall only helped for 5 hours, then 3 hours, then got to the point some days it helped some days I took it and went back to sleep. The fatigue from MS is unlike any other, It can't be treated in some cases and now I see why.
OK I guess I'll just not take it anymore and see if I feel any worse than I do now. thanks!
Ummm, I can understand why you might not trust your doctor if he confused chronic fatigue and ADD with MS. Good news is that there are some new meds out there for MS that are really helpful. Also just knowing whats really going on with you should be a major help. What kind of a doctor were you seeing anyway?
My personal feeling would be to agree with your doctor. Adderall is basically out of your system at the end of the day. I guess you could switch to the left over 30mg pills for a few days. Normally, someone with ADD can just stop. What I am not sure about is that if you really didn't have ADD, then the adderall should have left you kind of wired (maybe it did) - in which case coming off of it I would think could be more difficult. That makes me think you should try tapering down. Actually, I think you need a professional opinion from someone who understands this.