Sensory processing eval

[benjimom]

I had my son eval. today for SPD and she does think he has sensory processing disorder.  She also feels like he has anxiety and separation anxiety as well. I think he's anxious as well.  She feels he has modulation issues and also issues with auditory processing.   She does not feel he has ADHD.  So many people have said my son is probably ADHD, esp the school personnel.  So now she is going to write a report and then we can soon sign up for therapy sessions.  I asked her how she got into this and she said she felt like she has had sensor issues in the past herself.  

[specialmom]

Hi.  Well, finally a diagnosis.  Let me say that a diagnosis of high functioning autism gives you lots of direction to go in.  They have wonderful things in place for aspergers children.  I mean, really wonderful things.  I'm sure you'll see an occuapational therapist (at least, I would try to insist on it).  They work on the "living life" part of coping and behavioral things.  They help with peer interaction, emotional management (in terms of self soothing), day to day things that involve any motor skills and keeping the nervous system well regulated.  Speech therapy is so helpful as well.  Let us know how the eeg turns out.

I just want to say that I remember full well and occasionally still have a hint of the feelings I had when my son was first diagnosed.  All the months leading up to it were scary, frustrating, and full of anxiety.  Finding out the diagnosis gave me a sense of peace but still some sadness and anxiety as I didn't know exactly what it would mean for my child's life.  I went through a period of depression over it, to be honest.  I still coped alright but had many a sleepless night over it.  Then it hit me---------  I just adored my child . . . developmental delay or not.  And then I just moved past it and began the journey of helping him have a great life.  So . . . I'm sure you are glad to know what is going on but sad at the same time.  Do some nice things for yourself and find some supportive people to talk to.  Eventually, you might want to join a support group in your area.  I have found that so many families are dealing with something like this.  It is good to not feel alone.  We are always here for you for that too.  I wish you and your daughter the very best!

[ashebs]

we are home now and ebonie has been diagnosed as having aspergers syndrome or mild high functioning autism. more tests to do it put her in the right spot.
she is also having an eeg on friday 25th to make sure shes not having epileptic seizures, she will also be seeing a speech pathologist.

[ashebs]

no its macrocytosis its normally associated with anemia, b12 deficiency, liver disease and alcoholism and rare with leukemia. but she has none of these.
so shes still undergoing tests to find out what it is next step is bone marrow check... ouch.
she needs to go see a hematologist for that test tho and the closest one 174km or 2 1/2 hrs drive on a good traffic day from where we live.
thank you its getting closer and im getting anxious... no one wants there child to be different but i want to know so i can help her....

[benjimom]

I hope her red blood cells are okay, does she have sickle cell?

Best of luck.

[ashebs]

its a neurological pediatrician. shes also got to get blood work done again to check on her red blood cells because there abnormally large.

[specialmom]

Hi.  I just wanted to say that you don't need to refer to this visit as a "doctor's appt" at all.  Is it a neurologist?  If not, it is a developmental doctor and they do things that won't feel like a doctor's appointment.  This is so funny-----------  we've been going to our occupational therapy for two years now with my son.  Just LAST week when the OT says something about occupational therapy he says "This is occupational therapy?"  "I thought we were just playing."  So----------  I'd tell her that you guys are going to talk to some nice people and not make it a "doctor's appt.". Just my thoughts on it.