I am having benzo withdrawal symtoms again??

[juliewave]

I need help.  I think I am going crazy.  I went through a long horrible withdrawal from klonopin about 6 years ago.  To make a long story short I am experiencing similiar symtoms now from an increase in tegretol which I take for a seizure disorder. I  now have swithed to dylantin but the crazy symptoms won't go away. I felt a comfort 6 yars ago when I had a benzo support group in town.  That group has disbanded and now I feel so crazy and alone with some bizarre symptoms.  I know some of my symtoms were shared by others and I am hoping  to find a member who will answer this letter and tell me I am not crazy.  The ground moves, I feel tilted or off balance,  my extremities feel extremely heavy, and I am experiencing perceptual problems.  With Klonopin I had a lot of shaking and a funny walk which I don't have this time. Still the similarities are numerous. I know benzos are used in the last case ditch effort to control seizures so maybe there is a connection here. I found people in my 12 step group to be the most helpful and kind. It eventually after a long long time got better before. I am posting on this web sight because there might be a chance of someone relating.  I've seen neurologist and had a recent MRI I have also had my ears checked.

[Chi_Chi_Lover]

http://www.thetrap.org.uk/forum/index.php

This website has great people that can help you and lots of good info for Benzo and Benzo like drugs.

[juliewave]

I have epilepsy and have taken seizure meds all of my life. I was on tegretol for epilepsy while I was coming off klonopin. I had a big seizure at work and when they increased the tegretol the scary stuff happened all over again. Tegretol is also used by some doctors for other reasons including pain.  A member of my group took it while coming off zanax.  I would never touch another benzo in my life.  I am very stressed out because I have to go through the symtoms again and it takes me a very long time to feel normal. I will look for what you just wrote about your boyfriend. Thank you both for answering back.

[Chi708]

Is that an anti aniety like Xanax i wonder. I was just reading about xanax wd and you nailed all the symtoms to a T. I wonder are you on that drug that starts with a T that is supposed to wean you off the benzo.... This is some scary stuff and i am glad i experienced what i did with my boyfriend because i swear i will never touch another darn pill again. Benzo anti anxiety can be killers.... Why are you on anti seizure meds..... Scroll down the forum and read what i just wrote about my boyfriend... i wonder if you 2 are experiencing the same things.

[road2recovery]

After what i went through getting off of it, i beleive what u just said...For me opiates was nothing compared to how i felt going c/t off of klonopins....Very different symtoms, but very hard to explain, i know u understand what i mean...
Well i hope someone can help u
good luck
r2r

[juliewave]

Thank you for your support.  Members in my 12 step group told me that klonopin was considered to dangerous as an anti anxiety pill so it was marketed as a seizure control drug.  My doctor told me no good neurologist would ever prescibe klonopin except in an emergency where a patient was having one seizure after another.

[road2recovery]

I don't know anything about those 2 meds...Maybe someone else does...Lets hope so..
I also went through that same thing u went through 6 yrs ago...And it was klonopin for me too....It was pure h e l l...
I hope u get some answers
r2r
there are alot of nurses here, i am sure they will help
Good luck
r2r