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563698 tn?1216571680

New here, 3rd day off Oxycontin...still no sleep

Hello everyone, I am very happy to have found this forum.  See, I actually HAD to go cold turkey off oxy as my prescriptions are lasting for shorter as I take more and more...I have been on 80-160mg per day for several years, as well as tylenol #4 for severe pain.  My initial plan was to just suffer until I get my re-fill next week, but after reading so many stories here I am determined to stay off (I REALLY hope I can resist, this drug is evil).
I'm on day three, and did manage to sleep for an hour this afternoon but sadly irritable leg syndrome, twitching and kicking is making sleep impossible though I have to admit, it is less than yesterday.  It's also really fun when the diarrhea kicks in, as I live in a big old farmhouse with only one bathroom on the main floor so scared to even go to the bedroom on the opposite end or risk having an accident on the race down to the toilet.  
My main symptoms have been the leg restlessness, impossible insomnia, rapid heart-rate, really high blood pressure, dry/cracked lips, HIGH anxiety, sensitive to anything touching my skin, complete body weakness, all this leading to not being able to function properly...even bathing is an exhausting chore.
Last time I went through this I REALLY screwed myself up, and ended up in emergency.  I strongly caution anyone trying to substitute alcohol, in order to help through withdrawal is DON"T!!!!!!  It makes withdrawal MUCH MORE SEVERE (sorry for the caps, but I can't stress enough).  It won't help you pass-out, sleep, or curb the symptoms, it really just makes you more crazy as you still can't sleep, now you can't even think straight, and increases the blood pressure and heart-rate.  Then to add fuel to the nightmare, a hangover along with the symptoms.  
A few things that have helped a bit this time; Gravol (Dimenhydrate tablets), meant for motion sickness.  Not sure why, but eases up on the anxiety and after taking 3 tablets I managed to sleep a precious hour.  I stopped drinking anything with caffeine or other stimulates, and downing a lot of water and chamomile tea instead.  A hot bath also eased up some symptoms (but getting motivated to get into it is a bit tricky).  Reading has also kept me sane this time, as it distracts me from focusing on the things I am unable to do, and not stress so much about it.  Reading all the posts here...I guess misery does love company.  It's nice to know there are people going through this crazy time, and also hearing from people who are clean and never have to suffer like this again.  Because last time I ended up in emergency, they prescribed Altace (Ramipril) to get my blood pressure under control.  I had some left, and I began taking them again (5mg once a day).  These really help when you feel your heart is going to explode!
Hope anything I've written manages to help somebody, and thank you to all you other posters who've helped keep me sane and on the road to recovery.
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Avatar universal
wow..congratulations on making a decision to take control..thats awesome. You will be feeling better before you know it. I have to agree 100% about the alcohol thing. I tried to do that when I went c/t from methadone but all i did was throw up everytime I tried to drink..and then when I went c/t off the pills..I tried that again. It imo intensifys w/ds. Thankyou for posting. Hang in there. you can do this..the hard part will be to resist getting that rx filled. I suggest that if you have any refills that you might want to cancel them, and also it helps to let your dr. know that you have become addicted to the meds and were abusing them. If you have a good dr. he/she should be understanding. Take care..
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563698 tn?1216571680
Thanks for your encouraging words :)  I will be hanging around here for awhile I think...it motivates me, and I'm out in the country, so no narcotics anon groups or other resources.  I can't imagine going through this again, I really feel suicidal at times and I'm only at day 3 1/2 now.  I have a husband who doesn't understand, or seem to care so no help from him.
Have you managed to stay off Methadone?  How hard is living clean?  I've been on this **** so long, it's scary thinking how I'll manage day to day without oxy's help.  But, I know I have to...I was so desperate I would have robbed my elderly parents...was very troubling to think like that.  I don't think I can stop taking the tylenol 4's, I do have severe chronic pain after a job injury and 8 unsuccessful operations.  But, when I was just on T4's, and ran out early, I never went through anything like this.  I had no withdrawal at all.  
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Avatar universal
Hey hun..I understand what your feeling like. Yes I have been clean off methadone for almost 2 yrs now. whoooo hoooo..that was the most horrible thing I have ever been through. Unfortunately I started back up with the pain meds about 6 months after I got off methadone. It was legit pain but I was right back where i was before. I had extensive rotor cuff surgery and stayed on the evil **** until this past March 7 I went c/t off the pills. Thankgod..
As for living without them, it's not always easy. They were, for me. a big part of life for 6+ yrs..morning noon and night. so the mental fight is very difficult. I am sorry that your husband doesn't understand. I don't think that people that haven't had this battle can really understand. but even if they don't get it, they should at least be supportive. I don't understand alot of things either but i try to be supportive when I can.
I will tell you that living clean is not as hard as always wondering how many pills you have ,what your going to do when you run out, the feeling like ****..it is definitley a mind over matter thing once you are through the physical..Sometimes you will get hit with cravings like crazy, but those are the times that we need to post. And I found it very helpful to make a list of all the many reasons i wanted off them..Just think how bad these pills are for you when they can cause such physical sickness when you don't take them..Please stay on the forum for awhile.There are some wonderful people here and you will have so much support, especially if you don't have the option of going to a meeting where you are. I do believe that the support I have received here made all the difference in the world this time. I went it alone during the methadone w/ds..no thomas recipe ,nothing to help..You are going to make it through..keep your mind strong. that  is the key..((HUGS)) to you..be proud of yourself for what your doing.
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563698 tn?1216571680
Thank you, you sound like a very kind person and congratulations for having the strength to stay clean.  I will be staying on this forum, no question.  Just chatting like this with you is helping me a lot already even with the funky withdrawals happening.  Can't wait until I get some sleep...so exhausted.  Hard to get anything done, and I run a rescue in my home so responsible for over 30 cats/kittens, 6 dogs, have 6 chickens, 12 goats, a bull, and my beloved horse Cloe.  I've been so into my oxy, that I haven't even ridden her in over a month now.  It was one of the few things that really made me happy, forgot about my pain a bit, so I realize now I am/was sliding in too deep.
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Avatar universal
Holy COW!! LOL thats alot to take care of..How nice of you to do that..It must be a tremendous amount of work. I know the lack of energy can really get you down, as well as the lack of sleep. i had the worst time trying to sleep. I don't even think I did sleep the first couple of months.
Have you checked out the thomas recipe in the health pages? it has alot of good info and a vitamin/mineral list that has helped alot of people with w/d symptoms and energy. All these pills have depleted our bodies of so much. I also have in my journal an article that i had found during my methadone w/ds..It is written by a dr who was also an addict for 18 yrs. He has a similar list of things to take and it's a bit easier reading..lol  
I am so glad to have been able to help, talking it out really does help. What do you have to help sleep? I would try some otc things before you try rx sleep aids. But they may be necessary. I know that it's the furthest thing from your mind right now but do try just to take a short walk a few times a day. this will help in many ways,remember to drink as much water as you can. you are headed thru the worst of it. maybe a couple more days of this and then you will steadily start feeling better. congrats to you!!! stay focused..
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371980 tn?1276740809
Hi! glad you found us. Withdrawls so suck but in the end when you look back it is so worth it. If you go to my profile i actually wrote a journal entry called from the heart. its a little advice and support for all. Good luck to you and keep posting it really does help. Keeps your mind busy and elsewhere!
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442658 tn?1563386491
HI just a note to say it does get better.  im on day 13 after a heavy addiction to any kind of pain med since 2005.  Its such a horrible ordeal to go through and for me no sleep was killing me.  i felt like i was losing my mind....and no energy the next day of course which made me feel awful.   but the past couple nights sleep has finally come back if that helps.   do take 1 allergy pill about 4pm ( the kind that make you sleepy)  and i believe that has helped or maybe im just exhausted....anyway  i just wanted to let you know you are not alone and please stay with us here at the forum.  also reading just before bed kinda helped bring on sleep.  I wish you the best and you re welcome to write me anytime.  Take care and good luck to ya...maria
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563698 tn?1216571680
Thanks for the tips.  I just finished reading your journal sadnmichigan...that was a great article.  Will have to look into some of the vitamins and mineral supplements suggested....when I'm able to drive that is...still feel so crappy and don't want to risk killing someone. :(   I don't having anything rx for sleep, all I had was the gravol, and it did relax me slightly though.  I am walking around a fair bit, having to feed/water all the outdoor animals....and boy this heat is not helping either.  I'm just across the lake from you in Ontario, so we are sharing the same lovely, sticky weather.  I'm grateful that I have a young neighbor who volunteers her time, and comes and cleans out litter boxes and such.  I wasn't capable of much the last few days.  Promise I will stay focused, and funny, I'm really not nearly as depressed as I was earlier  ;)
Actually bandnmom, your article and another I read about 'it's not about you', both inspired me to post and try to stay off the oxy.  Very inspiring, you write beautifully!  I feel so much better just knowing I am not alone and that I can always find someone here who I can chat with who understands.  There was one more post I read that made so much sense as well....someone said 'one pill is too much, yet 1000 is never enough'.  So sad, yet so true.  I would never had thought of myself as a druggie....university educated, wonderful family and friends, own my own home, just wish my marriage wasn't such a disaster....in my 30's I end up an addict.  I guess though I do have an addictive personality...years ago was a heavy drinker, now I chain smoke.  
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563698 tn?1216571680
Thank you for your warm welcome and advice.  I'll see if I can get my neighbor to go into town for me and get some benadryl.  I hope I am so lucky that it helps...lack of sleep makes me feel insane!  Congrats to you for 13 days!  
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557230 tn?1269429829
Hi Xandria!  I'm so glad you are using this opportunity to get off them completely.  It's amzing how the addiction creeps up on you and takes hold.  When I finally woke up and realized how much I was taking, how I was getting them and what I was risking, I was ready to vomit.  I'm similar to you....not what (in the past) I had thought of as someone who abused drugs (awful sterotyping which I regret!) Yet here I am just as much of an addict as anyone else.  I'm on my 10th day, and it does get better.  I had a lot of trouble sleeping too.  I've used Nyquil about 30 minutes before bedtime and that really has done the trick for me.  I'll live with "needing" the Nyquil for a bit if it gives me that precious sleep.  Stay strong and hang in there!

BTW...I live on little farm too...just 2 horses, 3 dogs and a cat...but they keep me busy too!
Helpful - 0
563698 tn?1216571680
Thanks for the encouragement...I'll add nyquil to my neighbors list...I have so much I have to do, that the lack of sleep is probably the worst symptom for me.  Feel very weak with no energy.  The animals don't deserve to suffer just because I am struggling.  They are not getting 100% of my attention so I feel guilty as well as physically ill.  
What kind of horses do you have?  I love my girl, she's a 7 year old standardbred.  Can't wait to feel good enough to go out on a ride with her again.
I agree about feeling bad about stereotyping....it's amazing how no one is safe from the drug demons.
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Avatar universal
hey girl! I was thinking maybe you could try some energy drinks..Like boost or something. I don't know how your appetite is but I know mine has always been pretty weak anyway and when I went through all this I had to force feed myself. I suffered from anorexia all through my teen years so i have some left over problems from it, but try to get something in you. I hear you loud and clear about this dang heat and humidity. My a/c broke a month ago and I am not liken it..lol..
I know your feeling guilty about the animals..a good thing about them is they will still love you! Maybe you could get the sweet girl that helps you out to maybe spend a little extra time this week..tell her you have the flu. (thats what most of us say)
I wanted to tell you I LOVE to ride horses. My in-laws have 2 gigant clydesdales (belgium) oh are they beautiful.Also a quarter horse,palomino,and applalousa(spelling). Infact I had a "accident" on a horse while riding bareback and messed my shoulder up forever!  I am not an accomplished rider by any means and shouldn't have been allowed on a horse bareback..LOL. She was running down a hill and I started to slide,my natural instincts was to grab a fence post!! LOL..didn't stop the horse but I'll tell you what..It sure stopped me! That wasn't one of my brighter moments..
Helpful - 0
401095 tn?1351391770
Lots use melatonin or valerian root for sleep....if u feel anxious..i would avoid caffeine as well....altho greent tea is full of theanine and can be calming..exercise helps if u can mange just a few minutes a day and try and build up...good luck and hang on..the sleep comes back with time
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563698 tn?1216571680
LOL!  I bet that hurt like crazy, so I shouldn't chuckle, but I did!  I'm not so accomplished a rider either, and because of my knee surgeries I have to be really careful.  I certainly wouldn't try and tempt fate by going bareback at full speed....you are an animal!!!  I just like a nice, slow trail ride with her, nothing strenuous or brave like jumping or galloping around!
That's a great idea about the Boost...I haven't been able to keep anything in...goes out just as quick from both ends.  Probably isn't helping the weak, shaky feeling.  Last time I was withdrawing, I tried high caffeine drinks thinking they would give me a little pick-me-up...was almost as big a mistake as the drinking I mentioned earlier.  All the "Red Bull" and assorted caffeine drinks left me shakier, more anxious, faster heart rate and much more alert and aware of my physical symptoms.  
I'm lucky today...my air is getting fixed as I type :)  Mine wasn't working at all this year, but lucky it's still under warranty.  Hope the cool environment will help a bit too.
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563698 tn?1216571680
Thank you, you all are so wonderful....I truly am amazed at the compassion shown by so many people.  Willing to guide a stranger like me and others through this horrible experience and offer so much support.  I called my neighbor, so added those to the list.  Hoping they have that at our local pharmacy...I'm over an hour to the nearest city, so stuck using the town pharmacy that doesn't carry too many extras.
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563541 tn?1257877567
hi there! i am so glad to here that u r taken controll of this situation! and yes this is a very evil drug! i was addicted to doing this drug intraveinously (yeah i know its horrible) but thanks to  a wonderful family ive decided to kick the habbit also! unfortunly i had to go to the dr. to get on suboxone! i got my first full nite of sleep last nite! it was AWESOME!!!! i feel like a whole new person!  the restless leg syndrome seemed to have disappeared, sleep came, & actually im having NO w/d's so far! so if u can i would say to talk to ur dr. b/c this is a very ahdr drug to get off of! but.....im sure you can do it!!!!! it will get better!! jen
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563698 tn?1216571680
Thanks Jen!  I hope you manage this horrible addiction as well!  I was tempted a few times to inject - always heard it hits you faster that way, but never struck up the nerve.  I am/was a 'chewer'.  I didn't have the patience anymore to wait for the effect, so every morning would chew 3-4  20mg tablets.  Then chewed more throughout the day when I needed the boost.
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557230 tn?1269429829
I love standardbreds..so versatile and calm.  We have 2 thorobred geldings.  Both are older though...one is 23 and the other 21.  We actually adopted the 21 year old 2 years ago as a companion for the 23 year old.  We adopted it from a local mounted police.  They are sweet and I'm looking forward to getting back on them too!  They can't do full gallops anymore (at least not with my fat a**!) but a nice trail ride and canter will feel great.  Hang in there!
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Avatar universal
LOL..I am so glad you got a chuckle from my horse mishap..it was all worth it then..LOL..I think having your air fixed will help alot..I just got off the phone calling a repair man..I told him if he got here before it hit 80 (might have) then I would float him xtra cash.LOL...oh yeah I tried red bull for some energy..It turned me into a raving lunatic..lol  so hopefully something like boost will help. you need something in your body and that should give you a bit more energy..I know alot of people say hot baths, and don't get me wrong they do help alot..but I have been on one of these herbal/natural sites and I tried the cold shower..It takes a few minutes to get used to but I am sold..Your skin,hair etc..feels better.and the added benefits from the cold water is it gets blood flowing to all your organs..It takes about 4 minutes to adjust but once you do..it's worth it. I feel great when I do that and it does give me extra energy..Just a thought..lol.
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Avatar universal
Xandria - - I just got on line and read this entire thread.   I am preparing to go off Oxy so your words were of particular interest to me.   I so admire you that you decided to quit instead of just toughing it out until your next Rx.   I have a cheap and endless supply but have just decided that this is no way to live life.  At some point we all have to decide that we are going to take our lives back and that is where I am.   I also was so impressed with the same post you read - "It's not about us."    You are very encouraging when I realize that your dose is about the same as mine and you are only three days into this - - so, I know you will be coming out of the tunnel soon.   I am going to also tell my dr what I am doing and why.   If I don't I am afraid I will only find the next opportunity to get more Oxy from him.  Well, just wanted to say you are very good at putting your thoughts on paper - keep it up - it really helps others on here.  Best to you in your quest to get off the junk.   Ochooked
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563698 tn?1216571680
Thank you so much!!  You gave me goosebumps (or perhaps it's just another funky withdrawal symptom creeping in!)  I am thrilled you feel I may help others with my words...shaky as they are right now.  I will be routing for you, and please feel free to ask me anything, anytime.  I honestly wasn't planning on quiting, just stumbled onto this site after searching google for relief of withdrawal symptoms.  I really am going to try...hope I don't fail.  
Warmly,
Xandra
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563698 tn?1216571680
Bribery always a great motivating factor :)  'Raving Lunatic' is a perfect way to describe it!!!  After filling up on mega doses of caffeine I realized too late it was a bad idea.  That's when to counter-act the caffeine and withdrawal my next bright idea, to get hopelessly drunk came into play (and I haven't been a drinker for years).  Shortly after was my trip to emergency, dehydrated and through the roof blood pressure.  I was terrified.  I really thought I was going to die.  Did it stop me from refilling my next refill...sadly not.
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Avatar universal
yes bribery has it's place..he just called and said he was on his way..LOL..
I too had the bright idea to try to drink..WRONG..it seemed to amplify everything w/d related and then I was just sick and drunk..lol..live and learn..get those fluids in girl..you don't want to have another trip to the e.r.  and as hot is it is coupled with the "other" side effects, you could get dehydrated quickly..I am so happy you found this site..keep on trucking..lol..your almost through the worse..;) ♥~Lisa
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537664 tn?1372783057
Girl hang in there... I am 7mos pregnant and have been on pain meds for sheeesh 9 years after a car wreck(hit BY a drunk driver) and then a dx of Rheumatoid and FMA. Aleve! helps the pain... believe it or not (I didn't ) Our bodies want the Oxycodone, more than our minds and hearts do. The body is an evil trickster too. The crawly pain should stop within next 24-48hrs. Count em down! Melatonin is also awesome, and IF you are FOR real wanting to stop the OXY-pain-train tell the doctor you have talked to some folks who have SUFFERED with addiciton to oxy, You are SCARED of being there yourself and have decided TODAY IS YOUR DAY. There are other options for pain control,*** accupunture/pressure it does not hurt I swear, I've had needles in my face and head! ***Moxibustion-done with the accupuncture will stretch the time between treatments !*** Massage therapy (moves the toxins out of your muscles promotes lymph health and gives yummy endorphins! ~especially if you have a handsome male therapist~*** Physical therapy can do ultrasound cortisone into joints and muscles and if it is nerve pain a ***TENS (transcutaneous electrical nerve stimulator) can put white noise on the nerves blocking the pain signal from getting to the brain!!!! I have one made by Rehabilicare, they have a website! Neurontin is an anti-spasmodic (epilepsy) drug used to control the speed with which nerve impulses travel. I have used in past but personally got on too high of a prescribed dosage and had an adverse reaction 3600mg /day.
If you let your doctor know YOU ARE DONE. tell him you flushed that evil drug and did not realize what the sudden stopping could cause ask for his help. Just make it clear that help does not need to include any oxycodone derivative, hydrocodone derivative (unless you want to try trading in ty4's for Lortabs or Vicodin ES and get them WEEKLY. (this way if you are screwing up and taking too much it cannot get that serious) See if a friend can hand them out to you daily in AM and PM quantity. Some of us fight a really bad fight in the sense of We do not take this stuff to get high we have a painful condition that severely damages or ruins our quality of life. At 7 mos pregnant I was taking 10-15mg roxicodone every 6 hours as prescribed, I stopped Mon 7-7 at 3pm dosage. I am blessed I have not had w/d symptoms except maybe exhaustion, pain and a little depression. I currently have 2 pending knee joint replacements for late 2009/early 2010 and a resurfacing of left hip. I have lost the feeling :) (sick grin) in my right thigh except when I stand for more than 10mins and it starts burning from inside. I woke up this morning, took 100iu vitamin B, and 1 one ONE 5mg Vicodin and washed the dishes, cleaned the kitchen, walked the dogs, and made a 7 layer dip for lunch. I am planning what to do when I babysit my 10yr old godson this evening. This is more than I have done or wanted to do in months. I am so sick and tired of being sick and tired that I CALLED ALL OF MY DOCTORS AND FIRED THEM! (yest afternoon) It is SO empowering to take control of your life and not be controlled by a tiny white pill you can crush with your toe! I'm not gonna lie my back hurts, and you know what.......I DON'T CARE!!!
EMBRACE YOUR STRENGTH AND POWER
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