I'm sorry. I have never heard of it. What exactly is this disease?
I don't know where you live exactly, nor am I familiar with your particular disease (though I'm impressed someone was able to diagnose it!), but plasmapheresis isn't a rare thing; it's used for plenty of other disorders, so even though your disease itself is rare, it shouldn't be that hard to find a medical centre willing or able to do it.
Check out other disorders that rely on plasmapheresis via the internet and contact others to see how they manage to get this done close to home. And, while you may dismiss this suggestion entirely, if I had a rare autoimmune condition and my survival depended on a particular treatment, I can tell you that I'd think seriously about moving as close to that treatment as humanly possible (people on transplant lists have to do this all the time). Just some thoughts.
Jr.