Aa
CONFUSED
HELLO I AM NEW HERE. REALLY FRUSTRATED. I WONDERED IF ANYONE OUT THERE SUFFERES WITH REITERS SYNDROME. I HAVE SEVERE DIAHORREA, ACHING JOINTS, CONJUNCTIVITUS IN BOTH EYES, OCCASIONAL PROBLEMS WITH URINATION [PAIN]. MY DOCTOR SEEMS TO POO POO EVERYTIME I ASK, I AM HLA-B27 POSITIVE AS WELL. HOPE SOMEONE CAN SHED LIGHT ON MY PROBLEM. HUGS XX
From web md
The first human leukocyte antigen (HLA) haplotype association with inflammatory disease was discovered in 1972, correlating HLA-B27 with ankylosing spondylitis. This remains one of the strongest known associations of disease with HLA-B27. Since then, more than 100 disease associations have been made, including many ocular diseases and systemic diseases with specific ocular manifestations. These diseases also include reactive arthritis (previously referred to as Reiter syndrome), inflammatory bowel disease, and psoriatic arthritis.
You may benefit from seeing a rheumatologit as they are the specialist in rheumatic diseases.
The first human leukocyte antigen (HLA) haplotype association with inflammatory disease was discovered in 1972, correlating HLA-B27 with ankylosing spondylitis. This remains one of the strongest known associations of disease with HLA-B27. Since then, more than 100 disease associations have been made, including many ocular diseases and systemic diseases with specific ocular manifestations. These diseases also include reactive arthritis (previously referred to as Reiter syndrome), inflammatory bowel disease, and psoriatic arthritis.
You may benefit from seeing a rheumatologit as they are the specialist in rheumatic diseases.
Hi Woodsey. I can relate, having been diagnosed with Reiters in December, and have never gotten over it. The pain is massive and I've been seeing a pain management specialist. She had me on opiates and fentanyl, but I've stopped the fentanyl now as I'm in hospital and can have morphine injections, I could not tolerate the thought of withdrawal so when I came in I took my fentanyl patch right off and told them to put me on morphine so I don't go into withdrawal, so far it's been brilliant.
Last night they started me on a drug called Lyrica, which I see is approved by the FDA to treat Fybromyalgia. Apparently it works on the nervous system part of the brain and not on the pain system, so I'm hoping heart and soul that it will work on me.
As for advice, I'd just treat the symptoms as they pop up, like eye gel for the conjunctivitis. I know about the weeing thing, I often struggle with that, but just sit and wait patiently and it starts eventually, not a very pleasant thing especially when you need to go badly and nothing happens, it brings on a bit of a panic, but once things get flowing, the relief is brilliant.
I'm sorry I can't offer you any really hopeful or helpful advice, but Reiters is a dodgy disease, it's not even called that anymore, it is now called Reactive Arthritis. How did you get it? I had systemic salmonella poisoning and that is how I ended up with it. I'm in hospital now because they think it may be active again and are doing loads of cultures to try find where its hiding. Hopefully they are negative cause the thought of the bacteria just lurking and waiting to strike really gives me the creeps.
Look up Reactive Arthritis, I'm sure you will find lots of info which should be of help to you. Good luck and I hope you get well soon.
Last night they started me on a drug called Lyrica, which I see is approved by the FDA to treat Fybromyalgia. Apparently it works on the nervous system part of the brain and not on the pain system, so I'm hoping heart and soul that it will work on me.
As for advice, I'd just treat the symptoms as they pop up, like eye gel for the conjunctivitis. I know about the weeing thing, I often struggle with that, but just sit and wait patiently and it starts eventually, not a very pleasant thing especially when you need to go badly and nothing happens, it brings on a bit of a panic, but once things get flowing, the relief is brilliant.
I'm sorry I can't offer you any really hopeful or helpful advice, but Reiters is a dodgy disease, it's not even called that anymore, it is now called Reactive Arthritis. How did you get it? I had systemic salmonella poisoning and that is how I ended up with it. I'm in hospital now because they think it may be active again and are doing loads of cultures to try find where its hiding. Hopefully they are negative cause the thought of the bacteria just lurking and waiting to strike really gives me the creeps.
Look up Reactive Arthritis, I'm sure you will find lots of info which should be of help to you. Good luck and I hope you get well soon.
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