WHERE 2BEGIN? Any Ideas? Please help?

[aidem365]

Please help.I'm 30 y/o BF. Since childhood, I've had many infections colds/flu/sinus infections/bronchitis, etc. I'd be weak for weeks,only to be ill again.Drs d/k why. High school I had mono.In college I was dx w/CFS (Chronic Fatigue Syndrome).So,I've lived w/episodes of severe fatigue, w/ppl have to help me walk, bathe, eat, etc.)
Fortunately, the immune illnesses, migraines, fatigue,etc reduced when I incorporated holistic health&add very low gluten&sugar diet, a few years back.

HOWEVER, for past 3 years on/off my HANDS get Puffy,COLD&CHANGE COLORS, which was checked by my.Drs&Neurologist=found Nothing again!  (It is truly not uncommon to have tests, then they have me comeback for retest for 1reason or another, to finally get end result of "nothing found" ot "non-significant findings.")
*** Recently I am STRUGGLING HARDER w/ FATIGUE & MOVEMENT. I am more CLUMSY & FORGETFUL& FOGGY. I notice my MOODS SHIFT, SLIGHTLY-MODERATELY ( irrelevant of stress nor PMS). SUDDEN WEAKNESS IN LEGS. For past 3 months I experience NEW TREMORS &FREQUENT WEAKNESS IN ARM. Ocasional swelling and NUMBING of LIP. WORSENING VISION. I am really not quite sure why all of this is happening.

FYI I have Already Tried:
Astragulus,Pau d'arco,Burdock root&vitamins(PRN), = greatly helped my immune system &keeping me from being ill with cold/flu &allergies for over a year, compared to every few weeks on various prescriptions. (My last flu/infection, landed me in hospital tested again lupus,etc & "nothing")... Magnesium & B-vitamins = no migraines! Alot of greens (chlorphyll,spirulina). D-ribose. Eat regular &small. Using stress mngmnt&relaxation.Lightening my work/home load. Light movements.

WHAT ELSE SHOULD I DO?  I AM BY NO MEANS AGAINST CONVENTIONAL MEDS/DRS.I JUST WANT RESULTS! WHAT IS THE POSSIBLE CAUSE? WHAT TESTS SHOULD I  REQUEST? ( The one common feeling by all = "something is off & odd, even w/tests are showing nothing.") ANY IDEAS THAT COULD LEAD ME TO ROOT CAUSE?
THANK U

[PlateletGal]

Please consider joining me in the fibro/CFS forum. I also have Chronic Fatigue Syndrome and can relate to everything you are saying. Many people with CFS often have overlapping conditions and it sounds like that is what could be responsible for your newest symptoms. (puffiness in hands, etc) .

There are treatments for CFS and some of them look to be very promising.... here's the link to the fibro/CFS forum and the Health Pages in the forum:

http://www.medhelp.org/forums/show/44?personal_page_id=1064

http://www.medhelp.org/health_pages/list?cid=39

[mercygracious]

I am afraid we are all suffering from these debilitating symptoms and seem to be getting no where.  I think to myself.  If only I could find a doctor who truly cares and would just really take their time to sit down and listen to me.  I find that most of them are in such a hurry we are nothing but a number to them.  How sad it is!!!  Our medical system is in dire need of improvements!! I just hope something is done before it is too late but I have my doubts considering all the millions of sick people in this world.   All I know to say to you at this point is to just keep doing what you have been doing , keep trying different docs, research as much as you can on internet (which we all do and probably too much lol).  Other than that I don't have any good ideas.  I am still trying to figure my situation out as well which seems to be a never ending thing.  Good Luck to you!!!!  Best Wishes!!