Anticardiolipin blood problem

[Jonasdada]

I had 2 miscarriages in the past 4 yrs and my dr tested me with having anticardiolipin lupus anticoagulant when i am pregnant only.
Problem is i was pregnant and because i moved i had to see another dr and he said that my new results dont show anything. I lost the baby my third miscarriage a month ago at 13 wks pregnancy.
I would like to try for the last baby but how do i need to proceed in order for the dr to give me proper care?
My last pregnancy i was put on fragmin for nine months and everything went well. Now the last loss the dr only gave me baby aspirin and now i lost the baby.
What am i supposed to do if i want another child? What steps i need to take?
Thank you in advance

[Dr Sharma]

Hi there. Women with anti phospholipid syndrome have poor obstetric histories, and need constant care throughout gestational period and later. human chorionic gonadotropin hCG, values in the first trimester and can be followed to evaluate the viability of the pregnancy.  When the increases are abnormal , a poor outcome is predicted. Initiation of heparin during failing pregnancy should be undertaken with caution due to bleeding risks. Ultrasonography is recommended at 30-32weeks gestation to assess fetal growth.  anticoagulation with heparin is recommended in APS and pregnancy. The doctor would also tell about adverse effects of heparin like osteoporosis. drugs like chlorquine and cytotoxic agents are not recommended during pregnancy and must be stopped months before becoming pregnant. Warfarin may be substituted. Consult your gynecologist for expert advice. Take care.

[Jonasdada]

hi
well i also lost 2 babbies but at the start of the pregnancy! all i know is that u need to be tested for aps there are complex tests and sometimes they send u to a hematology specialist... they test u there but sometimes results have come back negative like they were for me!
so i only basically need blood thinners while i am pregnant! other then that i am still waiting for tests to see if i also need the blood thinners when i am not pregnant...
we r trying for another baby but we want to make sure they treat this problem properly...
if u dont mind me asking, how did u get far to have still births witout blood thinners? how did the baby survive that long and died at term?
let me know more or if u have more questions i can help with all i can ok!

[xjennax]

i have read how much u helped someone with APS and i was hoping for some advice too i lost 2 daughters last year thru still births due to not being able to pass enuff blood thru to the babies the doctors havent gave me an answer top what condition i might have all they have done is put me on clexane and aspirin daily to help thin my blood they tested me for blood clots but none where found     i just wish i new more hope you can help thanks  

[thyroidian]

Hi.
You definately have the Antiphospolipid Syndrome.
I would ask different hospitals in the area, or the big teaching hospitals if they have a specialist what has a general interest in APS. Then make an appointment to go and see them, or get a referral, your doctor shouldnt refuse due to your past history.

I have persistant positive bloods, that means my APS doesnt go away it is always found in my blood.
But i also know people who were positive, and then they became seronegative, which means they cant find it in the blood, and they still get anticoagulants the same. But you would have to look into this, that is why i said find yourself a good specialist in this and one what knows what he his doing.

I cant use birth control due to bloodclots, so i have the mirena coil, which doesnt release any hormones in the blood , only in the uterus, But i would ask about this also.

Yes you should definately ask for a referral, as you have APS. Take it from there and seek out a good specialist. Your case warrants a referral anyway, i cant see how your doctor can refuse you.

The neurological problems i have are headaches, double vision, vertigo, dizziness, and sometimes i feel deaf in one ear.
I also have pins and needles, tingles, in different places like my hands, feet, etc.
The headaches are horrendous, and really debilitating, they have even given me slurred speech. I also get memory problems, too were i forget, and being only 40 years old this is no joke.

I hope this has helped you, if you need anymore info just let me know , and if i can help you in anyway i will.
Good Luck, Get that referral
Nicola

[Jonasdada]

Thank u for the reply! Yes thats exactly what i have! But it seems so far it has only been diagnosed while i am pregnant.
Sorry that u have fone thru having blood clots and other symptoms... I am scared also that because there haa not been a proper diagnosis in my case that something major may happen to my health...
I live in canada so the only dr is a hematology i would have to find a specialist...
I just have a question... Should i be in treatment even when i am not pregnant?
Also what kind of birth control can i use? Because i read that most of the ones that contain hormones may cause blood clots?
Should i ask for referral myself? What if they dont find anything in my blood? Should i insist on blood thinners just in case?
Hope to hear from u soon! I am glad u found me! What other neurological problems u have due to this? If u dont mind me asking?
Thanks

[thyroidian]

Im sorry to hear of your three miscarriages. How sad.

It sounds like you have the Antiphospolipid Syndrome/ Hughes Syndrome.
This is sticky blood which causes miscarriages along with other problems.

It looks like the aspirin, was not effeciant enough for you the last time, especially with you saying you was given fragmin, and having a successful pregnancy.

I am a sufferer of the Antiphospolipid Syndrome also, but i have had bloodclots, and plenty of neurological problems, also.

I would suggest finding a doctor who is an Antiphospolipid Syndrome/Hughes Syndrome, specialist, who knows what he his doing.


I dont know where you are from, but if you live in the UK, The best place to go for this illness is London. Especially St Thomas, s
St Thomas,s Hospital is the centre of excellence for this illness, and they even have a specialist pregnancy clinic for this illness.

If you need anymore info just let me know , and i will help you all you can.
You could even ask for a referral to St Thomas,s. The pregnancy doctor is excellent and definately knows what he his doing, in all aspects of this illness.

Good Luck
Nicola