I agree with all the answers you received. It does not necessarily means you have Cushing's disease, but with your symptoms I agree it should be investigated/ruled out.
You should discuss with an endocrinologist, ideally one specialized in neuro-endocrinology (pituitary).
There is no one test to rule Cushing's in or out.
There are sites on it. You would need several sets of 24 hour urinary free cortisol tests, 8am blood tests, midnight salivas if the doc gives them. followed up with source tests like dex suppression tests, perhaps IPSS if imaging not clear.
Check out this site as well as do some reading here :)
Sorry...that links just the forum page...this is the link for testing info :)
Do either one of you have some sort of personal experience with cushings? Does this sound like it could be cushings?? I kinda wanted to have some sort of reassurance before I went into my doctors office looking like a paranoid ding dong for thinking I had some rare diesease... Lol I have read up on the condition and I know I have a lot of the symptoms but does it sound like it could be something else perhaps??
I was diagnosed with cushings disease in February this year
I had my pituitary gland removed end of March
Im still in recovery mode :)
I guess the main thing i found with cushings is, everyone presents differently.
I wasnt a real typical cushings case. I didnt " LOOK " like i had cushings, moon face, buffalo hump, stretch marks.
But i had very high blood pressure and very high glucose levels and neither could be controlled with multiple medications. So an endocrinologist tested my cortisol levels on the off chance and next thing i know im going thru lots of tests and sure enough...all my biochemistry indicated Cushings.
So i guess my advice is even if you dont have all the symptoms, but only have some, what can it hurt to get your cortisol checked !!! Ask your doc :)
I had a 24hr Urine Free cortisol and a Midnight saliva cortisol to start. when they came back high i had another 24 hr urine, midnight saliva, dexamethazone suppression test followed by an early am serum cortisol. I ended up having 4 months of testing just to make sure.
It could always be something else. The only way you get to know these things is by ruling them out :). Its just a simple urine/ saliva test. No big deal. I certainly didnt have any trouble getting my Endocrinologist to order tests. She wanted to keep testing to make sure, over n over lol. Mainly because i didnt look typical :)
A GOOD doctor will always listen to a patient !!! make sure you have a good doctor :)
Okay, Thank you so much for sharing your experience with me. That gives me the reassurance I was looking for. I will def ask my doctor to order the tests. I find it just so hard to believe that I have got 4 different conditions and there isn't an underlying cause for all of them ya know?? A friend of mine going through med school just mentioned that because all of these (minus the anemia) have to do with horomones it definitely sounded like it had something to do with my pituitary gland. So I've kinds shifted focus to that for now... Earlier this year o was trying to get my insurance to approve gastric bypass and I couldn't get it approved, starting to think that all this might be the reason why lol some kinda sign from above to explore everything before I go having life altering surgery.
I did not have anemia, but mine caused me to not clot properly. It is not a typical symptom.
I think that once you have one auto-immune issue, others tend to follow.