Hi, I'm 15 and I have been ill for 2 years now. I have a shunt in to drain the fluid from my brain, as this is what they thought was the problem, until a few months back when I wasn't responding to treatment, and a new MRI showed up an enlarged pituitary gland - I'm not sure of the size.
I was referred to an Endocrinologist who said that a pituitary tumour was the top of his list, and when he compared the scan to one I had had a year ago, he said it had shown up as bulky before.
He said that because I was 14 at the time, as it is a very hormonal age, someone could have maybe thought that was the reason for it, but as it had increased significantly in size in a year, this could not be the reason now.
I then had lots of tests which showed low FSH, high LH and insulin resistancy. They thought this could be down to having polycystic ovaries - which we are not sure of yet, but we were told that it was a non-functioning tumour.
I saw a pituitary surgeon about removal, who said that obviously it was a very big thing if they have to remove the whole gland and they want to be completely sure they are doing the right thing. I then went to see my Neurologist who has been dealing with everything from the begining of my care, who has said that although the pituitary gland is enlarged, it does not have any bumps indicating a tumour, so they still think it is because I am at a hormonal age.
I am now extremely confused, and in a lot of pain, getting worse all the time. I have lots of symptoms of a pituitary tumour and hearing it was just because of my age after what was said before what a real shock.
Does anyone know if the pituitary gland can be signifcantly enlarged just because you are at a hormonal age, and also if not seeing any bumps in the gland would be a reason for there not to be a tumour even if it's enlarged?
Obviously I don't want to have one at all, but I am so confused after being told outright that I did! Thank you for your help!