Aa
Aa
A
A
A
Close
Avatar universal

Pituitary tumor / optic nerve lesion

Hello , at 12 I was diagnosed with a lesion in the optic nerve with no reason for that.By this time i have done a campimetry test and a ct scan of the  cranium. The campimetry showed that the lession affected half of visual area of the right eye but the ct scan didnt show anything wrong.Now I'm 23 and my doctor asked all those tests again the campimetry and ct scan showed the same results but the doctor said that my photomotor reflex was a bit affect this time and it was not affected before.I went to 2 doctors, one told i have nothing to worry about another one just told me to go back there every 6 months but he didn't aynthing else. is it something to worry about? could they be missing something?
My brother has a pituitary tumor that affected his prolactin and thyroid hormone. so i was asking myself if it could be hereditary? or if the pituitary tumor can be seen by a ct scan?
2 Responses
Sort by: Helpful Oldest Newest
Avatar universal
Well, my doctor isn't a neuro-opthomalogist. He looks at my tests with ? face, actually both doctor just said it's a lession but they dont know why it is there. or if there's something else.

yes I'll go to another doctor and see what happen. Thanks for your answer.
Helpful - 0
Avatar universal
My first question is to ask if there is any reason why you could not have an MRI as, no, Pituitary lesions are not usually seen on MRIs. In fact, if the MRI is not done well, even up to 40% of pit tumors will not show up anyway for various reasons - being small (it can fall between the slices), radiologist misses it, or bad MRI (it should be a certain technique called dynamic).

So you are getting visual fields - they know you have deficits, yet they are doing. er, nothing but a CT? Is your doctor a neuro-opthomalogist, and is any taking you to see an endo that specializes in pituitary tumors?

As for the hereditary bit, it is not common, and very much denied - but I know it happens with Cushing's, but I am not sure about other pituitary tumors. But since pit tumors are auto-immune, and that does run in families, well, heck, you have the right to be tested effectively for it.

You sound like you need an MRI - a CT is not effective for what you have. Sounds like a new doc is in order - get copies of everything.
Helpful - 0
Have an Answer?

You are reading content posted in the Brain/Pituitary Tumors Community

Top Cancer Answerers
Avatar universal
Northern, NJ
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Here are 15 ways to help prevent lung cancer.
New cervical cancer screening guidelines change when and how women should be tested for the disease.
They got it all wrong: Why the PSA test is imperative for saving lives from prostate cancer
Everything you wanted to know about colonoscopy but were afraid to ask
A quick primer on the different ways breast cancer can be treated.
Get the facts about this disease that affects more than 240,000 men each year.