Prolactin Levels

[njannel]

Why are prolacting levels still elevated eventhough Pituitary Tumor is not present?

[rumpled]

So you have liver, pituitary and adrenal issues... oh man...
Have you seen a good gyne re the period? What kind of testing has been done - any LH, FSH, estrogen, testosterone etc.

Do you get proper pit tumors - dynamic? With and without contrast, contrast given while you are in the machine?

As for the adrenals - any stim tests? Are you on replacements?

[haljas]

Hi all,
Well I am usually on a liver site, but glad I fell upon this one...I had a prolactin level of over 200 and endo said I would not have a period, well I had a period and thought I was going to bleed to death..now levels are at about 60ish and well here we are again with another period....life is just grand..lol...so i am scheduled for MRI on Oct 4th, cause they want to see pit gland anyway, as I am now also cortisol defiencent...and the tests are not helping...bloodwork....

So any advise here??

Thanks
Haljas

[rumpled]

Go to the place where the procedure was done, find medical records and get a copy for yourself. You may or may not have to pay - but get a copy.

Then do find a competent endo.

[njannel]

Thx rumpled :) Endo has not really given me many answers as of today.  I'm searching for another endo that can help me and understands these types of scenerios.  The pathology report was not given to me...endo kept it.  When I find another competent endo is when I'm planning to ask for all of my records.  I'm just hoping tumor doesn't grow.  Prolactin level was @ 60 a mo. after surgery :(  

[rumpled]

I would still go see an endo - and ask her about the side effects of the bromo. There is another med - and one is Europe... still, wow - that is strange!

Usually if the tumor bursts like that, it is called a pituitary apoplexy. I can see that some tumor have different texture as heard that from the surgeons - I know the cushing's tumors are gooey. There are cysts there - did you get back pathology and read the report?

You do not want the tumor to grow - I would go see the endo.

[njannel]

Ok...here I am 1mo. After my microscopic surgery to remove my so called "tumor".  I previously had my post op appointment w/ neurosurgeon and was adviced that I was a "one of a kind case".  He explained that during surgery, he notices that the absess was NOT a tumor!  It was a fibrotic cyst.  There was trace of blood sitting on cavity (which he removed) and when he went to remove cyst blood just shot out like it was pressurized (my simple English
wording).  So apparently that was what was causing my pressure headaches, dizziness, etc.  I believe this because I have been headache free now for 6 days.
On another note, he mentioned that inside the pit. gland there was a solidified tumor...not significantly big.  He could NOT remove because he would have to remove most of my pit. gland to do so...which meant a lot of supplemental hormones.  He strongly stressed how confident he was that the cyst was the one causing the problem and made the call to leave tumor and control it w/ medicine.  He also mentioned that he believes the bromocriptine was the cause of my tumor solidifying.
Have not seen endocrinologist after his visit, but what dies this mean?  My prolactine levels are still a little elevated...which means I still have to take medicine.  But if tumor is a solid, not sure if it can continue to grow, have a different effect on me?
Not sure if anyone else has heard of a tumor solidifying...but if you have, what were your experiences?