well im guessing ny would have it. there pretty popular hahaha.
im willing to go there!
but yeah scottie, you should get a better mri for sure. an opened mri with no contrast is not gonna show anything! you can barely see mine in a closed mri with contrast. but mine was super small.
im still not sure the diff between a tumor and a lesion.
Hey testdeprived...
I do not know the NJ area at all so I wouldn't know... but I do know that there are not an infinite number of these closed MRI's using a 3T magnet in the USA... There are only a handful of radiology imaging centers that have it.
You may need to go out of state... your family doctor should be able to help you find the nearest facility with the MRI you are looking for.
Now... if you don't have a GP (family doc), then it could be hard to find... and I wouldn't know where to look either.
rumpled where in nj can i get the best mris done? icant find anything with closed dynamic protocols 3t mris
and do i need with contraist./r
so 3t is the most powerful mri? i just searched them and found a place called 3t open mri.
how could they be most powerful if they are opened mris? only closed detect pits./
Will do... thanks:]
I'm freaking out a little over all of this... hence the spewing of my thoughts into that last post haha.
Sounds like you need a sleep study then! Let us know what happens.
Hey Rumpled, thanks for all the responses and stuff :)
Okay.... so my blood work came back for Lyme... negative...
2 months ago I had a full blood panel done that my doctor told me would detect things like cancer and anemia, etc... so I know it's nothing like that.
I called my Neurologist back and moved my next appointment up. It was scheduled March 19th... but I had them move it to Feb 25th, the soonest available appointment.
I am going to talk to him about my MRI and the fact that it was an open MRI with no dye. I want him to judge if he thinks I need a full blown closed MRI with contrast... I personally think I should get one just to rule it out. Better to be safe than sorry when it comes to someone with symptoms like my own.
My eye doc did say he did not notice any inflammation with my optic nerve though... so that is a good sign there is nothing growing in my brain.
I have been thinking a lot more about my symptoms... and I have talked with my sister who is epileptic to great lengths about this.
The more I talk with her, the more it sounds like I have what she has.
She never experienced full blown seizures while awake... it always happened in her sleep... This caused a chain reaction with her body, because she was never able to get the right kind of sleep. REM sleep.
She was so weak and tired all the time she had to quit her job, which was when we were really worried about a tumor with her or something major (she had the same neurologist that I currently have... he as well suspected tumor and scared the crap out of her too)
Anyway... after about 6 months of NOT knowing what she had going on... she finally went to a different neurologist and he decided to do a sleep study to see what was happening in her sleep. Sure enough, her brain was 400% more active than normal while sleeping. She was havnig seizures in her sleep! So... he followed it up with an EEG and sure enough, abnormal!
She was diagnosed epilepsy, prescribed medication and has been doing great since.
I feel like this is what's wrong with me... I want it to be, because honestly I need to get better... and if it's epilepsy then atleast there is a light at the end of the tunnel.
I literally feel like I am dying... and I know most of that feeling stems from NEVER sleeping.
I NEVER sleep. When I do sleep, it's not deep... very light sleep that is more like laying there day dreaming... to eventually awake from my alarm and I think to myself "did i ever fall asleep?" every single night.
Then blood tests are your friend... in that case, MRIs come along last. Get to a doc and test.
Well that is a bit of a bummer! :(
My neurologist seems to think like there may be nothing wrong with me... The MRI came back normal.
It's funny you say that about pituitary tumors... because I feel my symptoms most mimic that of a pituitary tumor.
Oh... I don't know anything about open MRIs except that I know that they don't see pituitary tumors - they are not strong enough. It is .7. The .7 refers to the strength of the magnet.
An old MRI - closed - is 1.5. A new closed one is 3.0T!
Hey Rumpled,
Google is my friend:)
This is the exact machine.
http://nsimri.com/index.php?option=com_content&view=article&id=59&Itemid=65
Hey rumpled,
Reading my report from 2006, which used the same machine as I was in this time... it says the images were taken by Tesla 0.7 or soemthing along those lines. Does that make sense?
I left the report at my house or I would type exactly what it said word for word.
My eye doctor appointment went well. Optic nerve looks to be in perfect condition, no inflammation or anything.
It means IMHO, some things would not show - they look to contrast for uptake, changes, and all, but for first MRI passes, many docs go for the no contrast as contrast can be hard on the kidneys.
If they have a 3T, they can see better even without it.
You know that after 24-48 hours, you too can get a report from that place usually.
I remember when I had an MRI of my brain back in 2006, at the same location of the one I had last Friday... anyway, back in 2006, they were going to use dye for contrast, but then said they did not need it because they had a new machine that allowed them to see clearly without contrast...
I don't know if this seems feasible, but I am pretty sure this place almost never uses contrast. And the machine is pretty new (looks to be the same as the one in 2006), I can find out exactly what it is if that helps.
Is no contrast bad? :(
I look on the MRI and you are right the images say no contrast on all of them.
Does this mean there could be a tumor there that the MRI doesn't catch?
15 minutes... so no contrast.
It is good to get checked for Lyme - a couple of my friends had it - nasty.
Hey Rumpled,
Thanks for the response.
The MRI went well Friday. Took only about 15 minutes and I was given a CD with my images on them for my own viewing.
From what I can tell, there is nothing obviously abnormal about my MRI. No massive GBM that stands out like a sore thumb... doesn't mean nothing is wrong, but it's cautious optimism.
I go for blood tests today to test for everything (again)... This time, including Lyme disease since I live where Tick's carry it, and I woke up with a tick in my neck 8 months ago... but my doctor at the time did not suspect Lyme, but figured it would be safe to rule it out so he wants me to get tested now.
Tomorrow I see the eye doctor @ 2pm. I should probably hear from my Neurologist on my MRI tomorrow as well.
I am glad you have seen a doctor and an eye doctor - but now you have to wait for the results and possibly get more tests.
The waiting is the worst part, but it sounds like when the dilated the eye, they could see the structure of the eye fine at the eye doc place (which is fairly normal - my pupils are not even either).
The MRI is a good idea and I hope it puts your mind at rest. There could be so many things going on here - so it may take time to determine what is going on - and you have a history of headaches that are pretty severe, so that makes you think of the head, but it can be elsewhere too.
Did you get a copy of any of the tests, and make sure you get a copy of the report - and let us know what happens.
Oh and I need to mention one more thing.
I had a brain MRI for my headaches and stuff about 3 or 4 years ago... and it came back negative then...
So, if I do have a tumor, it's new as of 4 years ago.