Here is what I found for you from Wikipedia...
Phyllodes tumors (from Greek: phullon leaf), also cystosarcoma phyllodes, cystosarcoma phylloides and phylloides tumor, are typically large, fast growing masses that form from the periductal stromal cells of the breast. They account for less than 1% of all breast neoplasms.
Classification
Phyllodes tumors are a fibroepithelial tumor composed of an epithelial and a cellular stromal component. They may be considered benign, borderline, or malignant depending on histologic features including stromal cellularity, infiltration at the tumor's edge, and mitotic activity. All forms of phyllodes tumors are considered breast cancer, as even the benign form is regarded as having malignant potential.
They are classified as a fibroepithelial tumor by ICD-O, but not by MeSH.
Presentation
This is predominantly a tumor of adult women, with very few examples reported in adolescents. Patients typically present with a firm, palpable mass. These tumors are very fast growing, and can increase in size in just a few weeks. Occurrence is most common between the ages of 40 and 50, prior to the menopause. This is about 15 years older than the typical age of patients with fibroadenoma, a condition with which Phyllodes tumors may be confused.
Treatment
The common treatment for phyllodes is wide local excision. Other than surgery, there is no cure for phyllodes, as chemotherapy & radiation therapy are not effective. The risk of developing local recurrence or metastases is related to the histologic grade, according to the above-named features.
One study has suggested that total mastectomy is more effective than breast-conserving surgery.[1]
Spectrum
Phyllodes tumors are considered to be on a spectrum of disease[2] that consists of fibroadenoma, fibroadenoma variant and benign phyllodes. Some would extend the spectrum to include malignant phyllodes tumors and frank sarcoma.
I hope that helps you, best wishes.
Yes i found that info also. I am looking to talk with others that has had the same thing. What are their experiences? What support did they have from the time of diagnosis to final end of no longer having to worry about it.
Welcome to MedHelp and to the BC Community!
Since you especially want to communicate with others who have dealt with what you are dealing with, I would suggest typing phyllodes tumor into the search box right next to your post. You should come up with about 80 archived posts, which you could then sort through looking for recent dates, to increase the likelihood that the people might still be using this site.
Regards...