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atypical ductal hypoplasmia
Went in for a routine mammo and was told I would need a stereotactic biopsy for microcalcifications. I just got the results today: atypical ductal hypoplasmia. I now have to go in for a lumpectomy. Can someone tell me more about this. The doctor told me that it is NOT cancer and not pre-cancer. It is cells that have degenerated and can, if left untreated, lead to cancer.
I would love for any info about this.
I would love for any info about this.
Glad to hear you're doing ok. I didn't think the stereo was too bad. A little uncomfortable, but the nurses and radiologist were very nice. I am sure the biopsy will be ok. I had to ice my breast after the stereo, so I imagine I will have to do the same for the next biopsy.
I am waiting for a call from my doctor to tell me when the biopsy will take place. For now, I will just try to relax.
Please let me know how you are doing with the Evista, and I will let you know how the biopsy goes.
I am waiting for a call from my doctor to tell me when the biopsy will take place. For now, I will just try to relax.
Please let me know how you are doing with the Evista, and I will let you know how the biopsy goes.
Yep, you understand it all right honey. Well, I didn't like the stereotactic very much, so I thought the excisional was going to be bad. I worried for nothing. I had a wire guided biopsy. I only felt a quick needle stick while I was told to to try to relax by some very kind techs. Before I knew it I felt nothing and that procedure was over. Then the excisional biopsy was a piece of cake. Off to la-la land with some nice drugs and I fell asleep. Woke up numb. Took prescribed pain pills in anticipation, but could have done with just tylenol, maybe. I used ice packs in my bra and relaxed & followed their instructions. So all went well. However, and this is typical of ME, I did get a little infection and the incision opened enough to cause some oozing, so I had to keep covered with gauze for some weeks. This is pretty rare. But nothing major and I am ok. I'm sure you willl be fine and my thoughts are with you all the way. Let us know how it goes for you and your results too. My rx is clinical breast exams every 6 mos and mammograms every 6 mos so that I am seen every 3 mos. I'm supposed to start Evista (not Tamoxifene because I am post menopausal) but I am waiting for my hot flashes to stop before I take the Evista because I was taking Prempro and weaned off of that when I found out about LCIS. Gotta go get my oil changed. Talk at 'ya later.
Hi,
You are correct that I a) have to stop reading articles and info on the internet; and b) relax and follow my doctor's recommendations.
I also understand what you mean by the 20-30% referring to nearby tissue. That is why it is more common for an excision biopsy after a needle biopsy. They want to check the surrounding tissue.
How did your biopsy go? Was it painful? What do you need to do now with your LCIS dx? I hope you are well, and I thank you for your reply.
You are correct that I a) have to stop reading articles and info on the internet; and b) relax and follow my doctor's recommendations.
I also understand what you mean by the 20-30% referring to nearby tissue. That is why it is more common for an excision biopsy after a needle biopsy. They want to check the surrounding tissue.
How did your biopsy go? Was it painful? What do you need to do now with your LCIS dx? I hope you are well, and I thank you for your reply.
Hi, I was diagnosed by stereotactic biopsy with ADH. I was told and read much about 20% chance of having DCIS or another breast issue in NEARBY tissue. An excisional biopsy takes a larger section of cells than stereotactic biopsy. Stereotactic biopsy is a sampling of tissue and may miss any DCIS cells nearby. It is true that there is a slight chance that the ADH may have been misread, but that is very small and not the 20-30 per cent you are speaking of in your post. THE 20-30% REFERS TO THE CHANCE OF OTHER PROBLEMS IN NEARBY TISSUE. ADH is ADH and it does increase your risk. My excisional showed LCIS nearby. That increases risk as well. Think positive. There is about an 80% chance that there is nothing more. My thoughts are with you. Be careful what you are reading and how you interpret. Your dr is the best source/
I read some journal articles about how upon excision biopsy, 20-30% of ADH is actually DCIS. That is why the new protocol is to have an excision biopsy in cases of ADH.
I don't think the pathologist misread the sample. I have complete trust in the Breast Center I go to. I think that they are being prudent and following the protocol to make sure that the ADH is not DCIS.
I am really glad to hear that you have never seen this. I will message you privately. Thank you so much for answering my query and offering to answer any future questions.
I don't think the pathologist misread the sample. I have complete trust in the Breast Center I go to. I think that they are being prudent and following the protocol to make sure that the ADH is not DCIS.
I am really glad to hear that you have never seen this. I will message you privately. Thank you so much for answering my query and offering to answer any future questions.
Thank you for the information. I did get the wording of the diagnosis wrong.
I have read that many doctors recommend excisional biopsy when a woman is diagnosed with ADH because ADH can actually be DCIS. My doctor is recommending that I get an excisional biopsy to remove the tissue around the ADH site. Do you know if there is a chance that it is actually DCIS and not ADH?
I have read that many doctors recommend excisional biopsy when a woman is diagnosed with ADH because ADH can actually be DCIS. My doctor is recommending that I get an excisional biopsy to remove the tissue around the ADH site. Do you know if there is a chance that it is actually DCIS and not ADH?
Are you sure it is not "atypical ductal hyperplasia". I think you got the diagnosis wording incorrect. Here is what that is:
Atypical ductal hyperplasia (ADH) is a medical condition in which the cells which line the milk ducts of the breasts experience abnormal growth. This condition is not cancerous, but an incidence of atypical ductal hyperplasia can indicate an increased cancer risk for a woman. As a result, doctors usually recommend careful monitoring and follow-up in patients who have exhibited atypical ductal hyperplasia in one or both breasts.
The term “hyperplasia” is used to describe any increase in the number of cells in a particular region. A number of things can lead to hyperplasia, and the condition is often so benign that people don't even notice it. In other instances, the hyperplasia causes organ displacement, soreness, and other symptoms which make it noticeable. In the case of atypical ductal hyperplasia, the condition is usually diagnosed during routine mammograms.
On a mammogram, atypical ductal hyperplasia shows up as a small deposit around the milk duct. A doctor will usually ask to take a biopsy of the area to confirm that the growth is atypical ductal hyperplasia, to eliminate causes such as a malignant tumor. When the biopsy confirms that the patient has atypical ductal hyperplasia, the doctor may discuss a number of options with the patient.
The simplest option is to leave the site alone. Because this condition is not cancerous, it does not require treatment. However, doctors will usually recommend that their patients monitor their breasts carefully during monthly breast self exams, and patients may be encouraged to have clinical breast exams and mammograms on a more regular basis. By remaining vigilant, patient and physician can catch the signs of breast cancer early, if it emerges.
Some women choose to take prophylactic drugs if they develop atypical ductal hyperplasia, especially if their family members have a history of cancer. These drugs can help reduce the risk of breast cancer. More radically, a woman may opt for a preventative mastectomy. This is not a choice to be undertaken lightly, and it is generally only considered when a woman has a substantial family history of breast cancer along with other risk factors which elevate the probability of developing breast cancer.
By performing regular breast self exams and receiving recommend healthcare screening such as mammograms, women can identify atypical ductal hyperplasia and other health conditions early and make proactive choices about their health. Women should talk to their doctors about recommended preventative health screenings.
Atypical ductal hyperplasia (ADH) is a medical condition in which the cells which line the milk ducts of the breasts experience abnormal growth. This condition is not cancerous, but an incidence of atypical ductal hyperplasia can indicate an increased cancer risk for a woman. As a result, doctors usually recommend careful monitoring and follow-up in patients who have exhibited atypical ductal hyperplasia in one or both breasts.
The term “hyperplasia” is used to describe any increase in the number of cells in a particular region. A number of things can lead to hyperplasia, and the condition is often so benign that people don't even notice it. In other instances, the hyperplasia causes organ displacement, soreness, and other symptoms which make it noticeable. In the case of atypical ductal hyperplasia, the condition is usually diagnosed during routine mammograms.
On a mammogram, atypical ductal hyperplasia shows up as a small deposit around the milk duct. A doctor will usually ask to take a biopsy of the area to confirm that the growth is atypical ductal hyperplasia, to eliminate causes such as a malignant tumor. When the biopsy confirms that the patient has atypical ductal hyperplasia, the doctor may discuss a number of options with the patient.
The simplest option is to leave the site alone. Because this condition is not cancerous, it does not require treatment. However, doctors will usually recommend that their patients monitor their breasts carefully during monthly breast self exams, and patients may be encouraged to have clinical breast exams and mammograms on a more regular basis. By remaining vigilant, patient and physician can catch the signs of breast cancer early, if it emerges.
Some women choose to take prophylactic drugs if they develop atypical ductal hyperplasia, especially if their family members have a history of cancer. These drugs can help reduce the risk of breast cancer. More radically, a woman may opt for a preventative mastectomy. This is not a choice to be undertaken lightly, and it is generally only considered when a woman has a substantial family history of breast cancer along with other risk factors which elevate the probability of developing breast cancer.
By performing regular breast self exams and receiving recommend healthcare screening such as mammograms, women can identify atypical ductal hyperplasia and other health conditions early and make proactive choices about their health. Women should talk to their doctors about recommended preventative health screenings.
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