are there any adults here with mild CP?

[mamiJ]

I was born with mild CP. The spacicity was in my legs and with the help of braces and therapy, I was able to walk "normal".

I am now 38. I have always had almost no muscle on the left side of my body. If I was very tired, sometimed I would get a little limp,but that's all.

Now, I have been having neuropathy, and most recently spacicity in arms and legs that becomes quite  painful.

Sometimes, I notice my fingers and toes sticking together.

What I'm wondering is do any other adults with mild CP have these symptoms?

The dr's have no idea what is causing my issues.

Thank you for reading

[sunshine904975]

I know a little of what u r going through. I use a scooter on occasion n I love that's its there when I need it. It has allowed me to do things with my 9 n 5 year old. I didn't want to have one lol n I joke all the time about being 33 in a 90 year old body. I have spastic diplega and the hard Wood floors make my legs hurt more often, faster, and for longer periods of time more so in winter. Carpet isn't in the cards for us and we moved to a one level home to help. I just found this site today and I'm glad.

[sunshine904975]

P.s.  after having the Botox I can now spread my toes apart

[sunshine904975]

I am 33 and reading all of these comments has made me feel not so alone. I have mild spastic diplega and have the tendon surgery at 7 yrs old. I have notice the same things. I had a test done n four that I have dystonia which is common in c.p. I had Botox injections in my legs and was put on gabapentin and that has made life way more tolerable . I use to go to the courage center but my neurologist has help so much I will be for ever greatful to him. I hope this helps. And thanks for posting things u r going through, it has made me feel like I'm not alone and what I'm going through is real

[Zenathewarriorprincess]

I am 18 years old and to be honest growing up with mild cp was difficult. my whole family always pushed me to be like them and do things that I just couldn't do and as a kid.... it made me really self conscious. my family believes that I am making it up or that I could if I wanted to. I am really afraid to drive... like I have anxiety's how even my slightest spasm could harm others. I don't drive and I don't want to but I would like to know if you guys do how do you feel? confident and in control? And if you are a parent with CP has it effected your parenting at all?

[Sunshine1024]

I am 33 years old and have mild CP. I have a also noticed that I do not bounce back as fast as I use to. Remaining calm and not being too hard on myself has helped reduce the number of spasms I get. Does anyone have any advice on how to deal with a brother or sister who still expects you to perform at the the same physical level as you did when you were a child/teenager? Any advice would be appreciated.

[burrido]

Only time will tell I guess. Everyone's experiences seem to differ but you sound a lot like I was at your age and things are going downhill for me. I wish you the best.