Id like more info on increased icp

[shesabstrakt]

besides the wikipedia information.

does anyone have this? and when ur pressure is increased do you automaticly
have to go to the hospital and get it lowered, how do you live with it and how do
you know you have it LP? Do you have to be monitored? does it fluxuate? lol

[horselip]

I had increased intracranial pressure after my last csf leak surgery in 07/2010. My pressure was at 33. So my neurosurgeon put me onto Diamox. Ends up I was allergic to it (sulfa) so I took/take Topamax which lowers csf volume. It has another benefit of being a headache preventative too so it is also part of my pain regime. Now the pressure is a moot point as I started leaking from my left ear, intermittently about three months after that. So now I am having a workup on the current leak. Seems like my body want to have it's own  "built in" shunt.
Horselip

[selmaS]

  No worries...I am sure there is more info than what I offered, but this is what I know from my research on this topic.

  "selma"

[shesabstrakt]

okay thanks, as always

[selmaS]

  ICP can sometimes manifest post op after chiari surgery....some were mis-dx'd...and others it could have been due to long term meds...there r a # of reasons , and the idiopathic reason...no reason.

  Sometimes it is said to be related to being overweight...but there r those that r thin that have been dx'd.....it can be secondary or u could have it as a result of having something like lupus, sleep apnea ....

[shesabstrakt]

Do you know if they knew they had it forever?, or is there an onset hmmm? is it from certain syndromes lol I think that low pressure headaches are more common and less serious

[selmaS]

  Hi..from what I understand the symptoms r very similar to chiari...and they do use a LP to dx ICP. Depending on how high the pressure is will determine the treatment.

Diamox is a med that is used  to help lower the pressure ...if this does not work, a shunt is surgically implanted to allow the excess fluid to drain into the stomach  or where ever the Dr feels is best.

It is possible for this to fluxuate, and at some time to no longer need the shunt, I have heard they may leave them in place.

It is also possible to need adjustments to get  the flow right....too fast and u feel awful and too slow the same...so it is a dance to get it just right.

  This is all I know...and I do know we have a few members with a shunt due to this condition and I am sure they will add to ur thread.

   "selma"