also..has anyone else experienced memory problems since surgery?? I know my mind is not the same and seems to worsen more amd more..I'm in college for nursing so studying is becoming more and more frequent because it's getting harder to remember stuff...even simple things..thank you all for any help
Hi and welcome to the Chiari forum.
ICP also know as PTC pusedo tumor cerebri can manifest post op...for those that may not have had it prior to surgery.So u r not alone in developing this post op.
Have ur Drs tried DIAMOX?
AS far as memory issue, I always had it and post op it seems to be more short term memory issues that plague me...I can still remember my older sisters first day of school, but do not ask me what I did yesterday...lol..
When I was in school, I used to have to write down all important facts to help remember them...just reading did not sink in,....granted that was all b4 I was ever dx'd...but the way I had to handle it, along with notes posted everywhere...lol..
Selma thank you for your response..my phone battery is almost gone..I had one diamox pill the night before my surgery..I had a pretty bad seizure that night so they are not sure if it was the chiari pressure or an allergic reaction to the diamox...haven't had one since..this new nuerologist recommended it until I told her that...I might go back on topimax or something similar but not until she sees my mri and pressure level
Oh ,,,that is not good, but I am sure there r other diuretics that u can try.....TOPAMAX may help with HA's but not the excess CSF that builds up.
Do keep us posted on what this new Dr suggests.
Oops sorry about the spelling..yeah she mentioned lasix (sp once again) as well...I will def let y'all know the day after tomorrow..
Plus...Selma or anyone that reads this..has anyone else experienced optic nerve thinning and/or lost flakes of your iris? The peripheral vision damage is concerning as is the flakes of blue eye floating around somewhere in my head (ha) but I know God will take care of it all..I just was curious if anyone else has this or similar issues?
I know some have had issues with the optic nerve...what the exact issue was/is I can not be sure...and not sure I have heard of the lost of iris flakes?
That is not something I recall at all.....
No worries we have have issues with spelling and seems we r able to read it neway,.....lol...