Hi all,
I have been diagnosed with Chiari 1 (7mm herniation of tonsils) one month ago. The MRI shows that the CSF flow is normal and no compression phenomena are found in this area.
However, since I was 17, I suffer from vertigo and extreme headaches that have lasted 5 years in total so far (yes, 5 years non-stop). I have balance problems, cognitive problems and memory loss. My right hand and leg have gone numb and weak from time to time. Chronic fatigue is also another big problem. Symptoms are exacerbated when I have those tension headaches that feel more like neuralgia. Once I had a crisis that affected the right side of my brain and body and hit very hard my trigeminal nerve.
I do not have the typical Chiari 1 symptoms (cough headache, neck or shoulder pain).
Most doctors say that my symptoms do not have to do with Chiari 1. The best doctor I have been so far said that CSF flow may look normal but sometimes my brain may swell and block the CFS flow causing all those symptoms.
Does anybody here have normal CFS flow and broad foramen magnum but still have extreme symptoms?
Your opinion will be highly valued and appreciated!
I am almost invalid. I am 29.