I was just diagnosed with Thoracic spine pseudomeningocele and Chiari malformation. I also have scoliosis and NF1. I started having headache 4/16 and they only got worse. I didn't go to the doctors until I felt so much pressure on my eyes, ears and the back of head when I coughed. It felt like I was going to die. I had a MRI done on a unrelated issue and the image showed something on T8 of my spine. Since I have NF1 that's what we thought it was. So I was waiting to see a specialist at UCLA medical center. Didn't get in until 2/1/17. They did a CT and this what they found on my spine
FINDINGS:
Multiple large cystic outpouchings from the thoracic spine are seen traversing an expanding the neural foramina predominately on the right side from C3-4 through T8-9, the largest of which are seen from C4-5 through T6-7 and at T8-9. The largest lesion
spans up to approximately 39 mm CC x 40 mm AP x 52 mm TR. There is prominent S-shaped scoliosis of the thoracic spine. Edematous changes are noted in the right paraspinal soft tissues at the level of the large meningocele as.
No abnormal enhancement is seen within the spinal canal. No significant foraminal or canal stenosis is seen at any level. Note is made of small T2 hyperintense foci along the dorsal aspect of the upper thoracic cord from T2 through T4 which may represent
tiny foci of myelomalacia.
The doctor say it's connected and since my Chiari is minor we are going to hold off on surgery. They will do another CT and MRI next year or if my headache get worse. If the pseudo get any larger they will have to have surgery to remove them and they will do the surgery on my chiari...
Sorry so long....