Hi and welcome back....wish you had a better update ....
EDS can affect recovery for sure.....and I have been DX'd with a neurogenic bladder....but I also have tethered cord which can also affect the bladder....
I have had issues and went to the ER with what I thought was stones of some sort as well....many muscle spasms too....
Did you not have EDS ruled out b4 surgery?
Wish I had better update as well! It is what it is.
No it wasn't until just recently with a new nl it was discussed.
I can see with the spasms someone would go to ER. So painful!
I've never had a spinal mri! Scary huh?
I've had to resign from my job. So now I have insurance that is crazy pricy. New nl really wants that spinal Mri.
Gonna have to wait till 2016.
So sorry you are having to deal with all of this....but know it may not be the Chiari directly or surgery related issues you are having....it could be a related condition like EDS....not that it is a good thing, but may help if it does not lead back to a 2nd decompression surgery....
Hang in there , try to keep positive and update here when you can.