Hi....I use to get that feeling but that was b4 I had the surgery....I have not had it since....
SO u r not alone.
But did you also feel high pressure at the same time because for me it really feels like low pressure or vacuum in my head, like my brain is too small for my head.
Does it hurt the worst when you jump up and down? I feel that way too. Hence why I don't jump up and down. :)
Yes, it was a very strange feeling I would get the sensation of it moving around and times when it felt too large and was going to blow apart....
Have they tested u for ICP or POTS?
@ Wyssa...I can not jump either...when I did the feeling was of an echo of pain....not sure how else to describe it....I never liked jumpin either...
Yes, I can not jump up and down. I can hardly do anything actually.
I have POTS but (almost) nobody else with POTS that I have talked to has these symptoms, so not sure it is from that.
Wyssa, do you know what is causing this in your case?
I just feel like inside my neck area my head is not connected to my spine right. I have tremors now and it happened after I moved my neck back and forth with 8 hrs depositions. And every time I move my neck the tremors get worse it just feels like something is wrong inside. I know when I had the whole In my spine they found it with a mylegram now all they do is MRI for Chiari. I was wondering if tremors have to do with Chiari's. I also had to have the decompression back in 1995. I made medical history for living with the whole in my spine with symptoms for a year before I went to doctor for symptoms back in 1973. Any doctors out there or anyone know about tremors being a symptom from Chiari 's please let me know.
Hi and welcome to the Chiari forum.
Many with Chiari have asked the same question if Chiari and tremors are related....and in my opinion I believe they are....
There are many related conditions to Chiari that can also cause tremors....
U said u had decompression surgery in '95, may I ask were ALL related conditions b4 u had surgery?
Yes,I feel a bizarre pressure when I drive over speed bumps in the road,my brain can’t keep up with my skull if I try turn my head too quickly,this is hell to live with! Back of my brain wobbles with every little movement.
Hi and welcome to the Chiari forum.
Our heads can give us the sensation of the brain moving about and it can feel like it is squeezed in there so tight our heads may explode.....
May I ask when you were diagnosed? Have you had the decompression surgery?