Hi and welcome to the Chiari forum.
May I ask how large was your encephalocele? You are one of the first ones I recall saying they have been DX'd with this type and have this along with a syrinx, tethered cord, and hydrocephalous......
The problem is many Drs are not aware of how to treat these conditions OR that they do in fact cause severe symptoms.....
Have you been to a Dr that is a true Chiari specialist?
i have type 3 an the doctors have a said there s nothing they can do for me im always in pain every day s there someone else that can help me????
Thanks for ur endorsement....it is wonderful to have members share their experiences with the drs so that it helps someone else make a decision.....
.......everyone should research teh drs on their own...for the very reasons u gave...they may be competent, but a personally issue may keep u from feeling completely comfortable...so do ur research.
Can I please vouch for Mr Haden at Derriford hospital Plymouth, and also Mr Ashpole, Queens Medical centre. Mr Ashpole was my original NS, and although he is a fabulous guy, I couldn't personally feel comfortable with him. Don't get me wrong, nothing wrong with him, has done many of these surgeries and seen a lot of Chiari patients. When I moved 300 miles away, I was then referred to Mr Haden and it took me all of 20 minutes to decide that he was the NS to treat me. He is a fabulous NS, and dealt with me, and all my extra complications that were not expected, fantastically.
xxx
Great...please let us know Jackie.
How have u been doing??
Thanks Selma. I see there's one here in Ireland too. I'll check him out to see if he deals with children.