Chiari 1 malformation

[Cathie9696]

Is their such thing as mild chiari malformation.  my husbands MRI just came back and said he has right sided assymetrical chiari malformation 7mm below.  His Dr. does not seem to concern however his symptoms (constand ringing in right ear, weakness in limbs, shorterm memory loss, hands swelling, dizziness etc.) have all come about  withing the last two months but slowing coming togeather over the past two years and progressively getting worse.  Whata do I do.

[Lorikim]

My daughter is 19 and has suffered from headaches for years, since elementary school. At that time they weren't severe, but within the last few years they have become Migraines, with ringing in ears, vision issues, numbness and tingling of her hands, dizziness and nausea. The first time we saw a doctor they said it could be her intake of caffeine, taking too much ibuprofen (which she took because of the headaches) or possibly allergies. Well after continual headaches they finally did an MRI. She has now been diagnosed with Chiari 1 with 4mm herniation. The Neurologist prescribed her Nortriptyline to be taken daily, which she's been on for 3 months, but continues to have the Migraines. Now the physician is recommending Topamax. After reading the side effects I don't know if I want her taking this. Has anyone else been recommended these meds and if so what were your results? Any other meds recommended for others that seemed to work. I think I'll be looking into taking her to Dr. Frim in Chicago  or Dr. Todd Alexander since we're in that area. Any thoughts?

[selmaS]

  Hi and welcome to the Chiari forum.

We do have a list of the members Drs for ur use to research Drs, there may not be ne listed in that area, but it does not mean there may not be a well informed Dr there ,....we r just not aware of it as yet.

Please use our list as a means to get ur research started, not a referral.

[joeyslove]

are there any drs in the daytona beach area?

[Rylanesmom]

Just saw the date is really old .... I hope you found great care long ago:)

[Rylanesmom]

I live in Missouri and upon researching chose Dr Oro in Aurora Co.. The airplane ticket is usually around 100.00 if purchased a few weeks out.  I do not believe you will find a chiari expert here as I did not.  A plane ride is worth it considering the type of care we need.  Check him out on the web:)

[selmaS]

  Hi and welcome to the Chiari forum.

There are many Drs out there that use old out dated criteria to determine Chiari as a condition that is symptomatic or not...instead of  listening to the patient.

A true Chiari specialist will do more testing, and look to see if u have a CSF obstruction....

Do take a look at our list of chiari drs and do some research....the list is not meant as a referral.

http://www.medhelp.org/health_pages/Neurological%20Disorders/DOCTORS-LIST-FOR-CHIARI-SYRINGOMYELIA/show/1062?cid=186

    "selma"