Chiari Center in Milwaukee

[Sara_Jane19]

Hey all just a quick update and a question :)

I rejected another stitch two days ago. I have been feeling really poorly still; the symptoms are not improving and have been consistent for 6 weeks or so. I am off the Florinef and that did not seem to be the culprit. The NS has no idea what is going on, and i could go back but at this point it seems pointless.  I am just taking muscle relaxers and the occasional pain meds. This helps, but the pain and stiffness is not under control and my dysautonomia is acting up.

I was doing some research because i am not overly satisfied with either my electrophysiologist or my NS, they are not bad by any means but not great either. I found that there is a Chiari center in Milwaukee! Has anyone been there or heard anything about it? It really appeals to me to go somewhere where the will treat all of my symptoms as a whole, rather than individual issues. They have a comprehensive team of doctors all in one place and I think this might be the way to go! It is also not that much further from the hospitals my current doctors are at which is a huge bonus. Opinions would be greatly appreciated!

Hope everyone is doing well :)
Sara

[Sara_Jane19]

Thank you both for your opinions!

Sara

[soccero]

in my opinion stay away!! i had two surgeries there and since have had 15 more. granted it wasnt all caused by dr heffez but imo he was very rude and arrogant and it was hard being in another state and being sick. imo stay away! i since have been to dr henderson and i would say go to him he is great!!! if u want moreinfo please let me no.
molly

[selmaS]

  Hi...I have had a positive experience at TCI in NY...we have had many happy with the Center in CO... and Drs in NC and MD....

I felt so secure knowing I had more then one Chiari specialist in the OR with me, and that is a huge plus with such centers. But not all are alike, so it is good u r asking.

[Sara_Jane19]

Whoops! I just noticed that someone had just posted a question about the Chiari center in Wisconsin. I guess overall opinions would still be appreciated and input as to wether people have liked the concept of a multidisciplinary team (at any center, not just Wisconsin).